My sixteen-year-old daughter took 100 mg Minocycline for eight days for her acne.
She started feeling dizzy but she continued to take it after her 8 days the next morning she woke up with terrible pain behind her eyes, double vision, 3D Vision, the worst headache, and her head looks swollen. I took her to her pcm doctor who sent us to the ER, she had a MRI with and without contrast and they found nothing.
The next day the PCM and the dermatologist who had prescribed the Minocycline told me I should take her to an ophthalmologist so the following day I took her to a neuro ophthalmologist and her, prior to this medication, 20/20 vision had decreased and they can't find anything either. Why did her twin who's been on it for 3 months have no problems and she have these problems? And will she get over them? Will her vision improve? Is there anything I can do to help her? We do a lot of homeopathic detoxing type of stuff. I'm pulling out all the things I know. does this simply resolved itself or she going to be now stuck with this issue? She already had some health issues and we had work hard at overcoming due to having ehlers-danlos syndrome. Please help me my heart is ripping in to for my daughter because she just started school last week and she can't even hardly see to do her homework and she wanted to be such a success this year after all the hard years she's had in school with her health issues. (Mind you once we got a diagnosis of ehlers-danlos syndrome in 2016 and we had found our homeopathic healer in 2014 who helped her become the healthiest ever and last school year was the best school year ever and now I just feel terrible about
introducing this Minocycline into her life)
Makes me wonder if she has had some unresolved lyme issues that we didn't know about
that's why she's struggling? I know in the past that she's had some lymph node issues that our previous unhelpful Dr disregarded. Tia...
mpost said...
Ills said...
I thought I took Lyme disease topic off but unfortunately I didn't. I don't have Lyme disease. I was prescribed mino for a weird dry patch on my stomach. My family thinks I'm over reacting when I say I think there may be something wrong with me.
dude you are not over reacting, send your family that link to the research article i gave you, it's a side effect even after one week off it, it can go on for a while. This is a paste from the drug's official side effects:
"
Call your doctor at once if you have a serious side effect such as:stomach cramps, diarrhea that is watery or bloody;
flu symptoms, sores in your mouth and throat;
pale or yellowed skin, weakness, dark colored urine, unusual bleeding (nose, mouth, vagina, or rectum), purple or red pinpoint spots under your skin;
fever, skin rash, bruising, severe tingling or numbness, muscle weakness,
upper stomach pain, loss of appetite, jaundice (yellowing of the skin or eyes);
chest pain, irregular heart rhythm, cough, wheezing, feeling short of breath;
confusion, vomiting, swelling, weight gain, urinating less than usual or not at all;
headache or pain behind your eyes, ringing in your ears, vision problems;joint pain or swelling with fever, swollen glands, muscle aches, general ill feeling, unusual thoughts or behavior, and/or seizure (convulsions); or
severe skin reaction -- fever, sore throat, swelling in your face or tongue, burning in your eyes, skin pain, followed by a red or purple skin rash that spreads (especially in the face or upper body) and causes blistering and peeling.
"
www.rxlist.com/minocin-capsules-side-effects-drug-center.htm"Cessation of minocycline reversed the disease process
though the resolution was much slower in the patient with the longest history of minocycline intake. One subject still had persisting lower nasal quadrantic field loss 6 months after cessation of minocycline. "
/www.ncbi.nlm.nih.gov/pubmed/2534972It's a drug with serious side effects. The fact that your dr does not respond to calls means he is irresponsible and u need to find another dr to take you seriously given u've taken a drug that can give you intracranial pressure and you have side effects from it that match what is written on the box. For god's sakes, u cannot be accused of being nuts if the drug u were taking has those effects written on its box...
Ills said...
Last week I started having bad headaches that are a lot better this week.
Of course it is, you stopped taking it. Give it one more week, it will probably go all away. Just find a doctor that understands what minocycline is and can do, and don't ever think again that u are nuts. The drug accumulates in fat tissues (brain is fat) and can create increased pressure there for days after u stop it, with all sorts of effects to your brain/vision. I mean it says it on the box, we're not making this up ... Jeez ...
I told you in my first post, this has NOTHING to do with lyme, it's the drug, those people in that article were treated for acne, notice one was treated for several months and he had the worse side effects...