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Recommended readings on Lyme relapse

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Posted 3/18/2017 12:06 AM (GMT 0)
Hello

I'm looking for any books, sites, anything at all for information on relapsing. I'm currently being re-treated for Lyme after about a year and half. I don't know if I'm technically relapsing since I wasn't confirmed for Lyme the first time. I tested positive for anaplasmosis and only had one positive band (41) for lyme. I was still treated with antibiotics, 4 months of augmentin (amox) then herbals for about a year. Now I tested positive for several bands and my Lyme doc said i'm just shy of CDC positive. So now she's treating me with Ceftin, Nysatin and Plaquenil and and herbal named Melia Supreme. Right now the theory is my immune system is finally kicking in and trying to fight it off which is why its now showing up.

I really want to kick ass this time around. While my diet is very restricted and has been for the last three years, no sugar, no diary, no gluten, no chocolate, no soy. I don't have tube so I do the epson salt/mustard foot baths, lemon water, alka seltzer gold and I just bought some Yogi detox tea.

Any more detox ideas? or anything I should be on the lookout for while relapsing? I really want to read and research as much as I can so if anyone can point me in the right direction, I would appreciate it.
Posted 3/18/2017 12:33 AM (GMT 0)
How about a binder for detox?

I also like Nutramedix Pinella and Burbur - not cheap though.
Posted 3/18/2017 5:56 PM (GMT 0)
Well, a relapse indicates that you had treatment and healed, but you don't indicate that you have had specific Lyme treatment, so this would be a case of chronic Lyme, not relapsed Lyme.

And, it's just retreatment, using a different protocol depending on what your specifics are (mainly Neuro or Psych issues, or whatever).

Here's my list of what I do for detoxing daily - maybe you can get some ideas from it:

I use a foot soak daily,
dry skin brushing,
making sure my bowels moved at least once a day (sorry if it's TMI!)
pushing myself to drink at least 64 ounces of lemon water each and every day,
liver/gall bladder flushes (all natural), as needed,
oil pulling with tea tree oil,
taking activated charcoal, as needed,
Alpha lipoic acid,
Quercetin,
turmeric,
Methyl B-12 and methyl folate,
Dandelion tincture,
red root tincture,
Yogi brand detox tea (original flavor)
and keeping the amount of stress in my life at a bare minimum.


​ I have used apple cider vinegar to help with detoxing as well - it's really good, but started making my stomach issues worse, so I stopped using it daily and only use it occasionally when I know I need a boost in my detoxing for just a day or two.​

You can find some really good detoxing suggestions in the "New to Lyme?" thread that sits at the top of the forum. And this is another really good resource for detoxing ideas for Lyme patients:
www.tiredoflyme.com/detox-methods.html

But, there is such a thing as over detoxing. This happens when we move more toxins than our body is capable of processing out effectively. Many toxins are stored in our tissues, and by detoxing, we move them to the bloodstream where we can process them out of our bodies through the lymph system, then on to the liver and kidneys as so on. We have to be sure to add in more detoxing routines slowly and carefully, or we will end up herxing just like we had never been detoxing. This article helps to explain that some: www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html
Posted 3/18/2017 7:42 PM (GMT 0)
there are dozens of things but in my experience very few do work. Careful, im talking about detox here, not anti inflammatory stuff. So what works:

- activated charcoal - perfect gut detox and u know it works because thats what they'll give in ER for most ingested poisonous chemicals

- sauna - buy a portable sauna, does not have to be infrared, drink water and sweat it in the sauna, it always works for me

- red root - for the lymph nodes, we don't know exactly what this does, either helps lymph flow or makes nodes less tender, so it may not be a detox herb maybe anti inflammatory. There are zero (0) studies about this herb and the lymph. sad.

- massage and exercise (light)

- artichoke - helps relax gall bladder muscles

- drinking more water than usual, i have to set alarms to remember to drink, so 3-4 liters of water per day

that's it, i've tried lots of other things but nothing else worked. if u look at the number of votes on tiredoflyme page you will notice the things i listed above are among the most popular, not because i picked them (there are a few that i havent tried and are not in this list) but because they probably work more often. Probably many of the rest in that list are placebo, or maybe they work for some minority but not for all. It's very easy to get fooled by this disease, the symptoms come and go, you can easily blame it on something u ate/took one-two-three days before it happened...

Now, anti inflammatory - that's something else and that's where there are lots of things that work:

- magnesium but not magnesium oxide
- turmeric (only with black pepper, without it only a fraction gets aborbed)
- melatonin
- vitamin C >300mg
- ibuprofen/acetaminophen
- resveratrol
- vitamin D
- vitamin E
- Omega 3
- EGCG (green tea)
- glutathione IV
- lipoic acid (ALA)
- SLEEP !! (take sleeping pills if u have to, anything to get a 7hrs of sleep or so every night)

ofc for lyme management u need both anti inflammatory and detox. I just think that by detox many people simply understand everything that makes them feel better during a herx. And that includes anti inflammatory drugs or herbs or supplements. But ibuprofen certainly is not detox, although it does help with inflammation and will make u feel better...

Post Edited (mpost) : 3/18/2017 1:50:23 PM (GMT-6)

Posted 3/18/2017 7:52 PM (GMT 0)
Mpost, I'm very sorry that you feel that the other detox methods don't help you, but they do help many people. I'm very choosy about what I put in/on my body and how I use it, and every single thing on my list helps in one way or another - I can literally feel the difference, or I simply wouldn't continue to use them. The things I listed are the things that help my body no longer feel toxic on a daily basis, I do use them (actually increase them during a herx), but do not only use them during herxing - they are part of my daily routine.

Maybe you don't have the issues with detoxing that some of us have though, so you won't notice the benefits as much as others might.

Some things take longer to help than others, and some are only very slightly felt in the body, but help to keep the flow of toxins moving, rather than allow them to accumulate in the body.
Posted 3/18/2017 8:19 PM (GMT 0)
Trav, absolutely. i just listed what works for me, i mean i feel they do, immediately after i take them in a few hrs or so. Pretty sure that list of mine is not exact/complete.

Because this disease has symptoms that come and go it is really hard for me to say what helps me detox on a time span that stretches for weeks. I've tried to not take anything and my symptoms will just lessen on their own, then return again in couple weeks/months. Depending how lucky i am smile

But i think people should experiment and see, as long as these things are food grade and non toxic, i mean why not ?
Posted 3/18/2017 8:20 PM (GMT 0)
"But i think people should experiment and see, as long as these things are food grade and non toxic, i mean why not ?"

I totally agree with that! Not everything works for every person!
Posted 3/19/2017 12:13 AM (GMT 0)

mpost said...
there are dozens of things but in my experience very few do work. Careful, im talking about detox here, not anti inflammatory stuff. So what works:

- activated charcoal - perfect gut detox and u know it works because thats what they'll give in ER for most ingested poisonous chemicals

- sauna - buy a portable sauna, does not have to be infrared, drink water and sweat it in the sauna, it always works for me

- red root - for the lymph nodes, we don't know exactly what this does, either helps lymph flow or makes nodes less tender, so it may not be a detox herb maybe anti inflammatory. There are zero (0) studies about this herb and the lymph. sad.

- massage and exercise (light)

- artichoke - helps relax gall bladder muscles

- drinking more water than usual, i have to set alarms to remember to drink, so 3-4 liters of water per day

that's it, i've tried lots of other things but nothing else worked. if u look at the number of votes on tiredoflyme page you will notice the things i listed above are among the most popular, not because i picked them (there are a few that i havent tried and are not in this list) but because they probably work more often. Probably many of the rest in that list are placebo, or maybe they work for some minority but not for all. It's very easy to get fooled by this disease, the symptoms come and go, you can easily blame it on something u ate/took one-two-three days before it happened...

Now, anti inflammatory - that's something else and that's where there are lots of things that work:

- magnesium but not magnesium oxide
- turmeric (only with black pepper, without it only a fraction gets aborbed)
- melatonin
- vitamin C >300mg
- ibuprofen/acetaminophen
- resveratrol
- vitamin D
- vitamin E
- Omega 3
- EGCG (green tea)
- glutathione IV
- lipoic acid (ALA)
- SLEEP !! (take sleeping pills if u have to, anything to get a 7hrs of sleep or so every night)

ofc for lyme management u need both anti inflammatory and detox. I just think that by detox many people simply understand everything that makes them feel better during a herx. And that includes anti inflammatory drugs or herbs or supplements. But ibuprofen certainly is not detox, although it does help with inflammation and will make u feel better...

Anti-inflammatory supplements also help with detox.

From LLMD MR writings:
How to treat a Herxheimer Die-Off Reaction

To treat Herxheimer die-off reactions there are a number of interventions to:
lower oxidizing agents,
decrease NF-kB genetic programming of cells,
block kinase enzymes,
block inflammatory prostaglandins triggered by cytokines,
promote liver detoxification, and
lower blood acid levels.


A few recommendations he makes: Curcumin, glutathione, ALA
Posted 3/19/2017 2:26 AM (GMT 0)

Girlie said...

Anti-inflammatory supplements also help with detox.

OK sure they help during a herx, for me ibuprofen or acetaminophen they help very much, but i have trouble thinking of tylenol as "detox herb" especially because it is toxic to the liver rolleyes

By detox i understand stuff that takes toxins/poisons out of you somehow, either by absorbing them directly, like charcoal, or by helping the body flush them out, like sauna, artichoke (helps gall bladder), drinking water and massage helps lymph flow.

Anyway the discussion is now beside the point, i think we all listed a lot of stuff that will help during "toxic times" such as a herx... detox or anti inflammatories, what ever smile
Posted 3/19/2017 12:38 PM (GMT 0)
Like most on here, I've engaged in ongoing Lyme & Co's research for at least as long as I've had the infections.

This translates into saving hundreds of links and reading 10 or 15 books.

Out of all that I've read, I'm finding the recently-released book "Unlocking Lyme" to be the most helpful. Dr. Rawl totally gets what's necessary for healing....and staying healed.

The book is available in Kindle version (that can be viewed on the Cloud) for $ 7.49 (I got lucky last month and got it for $2.99). It was some of the best money I ever spent.

The article I'm linking below provides a sneak preview to some of what is in the book:

/rawlsmd.com/health-articles/chronic-immune-dysfunction-lyme-disease

I know I sound like a salesperson for the book but I'm not. I wish the book was out when I first became infected - it would have saved me a lot of money and wasted time.

Good luck!
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