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What are your worst symptoms?

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Posted 3/21/2017 1:11 PM (GMT 0)
After 1 year of treatment 75% of my symptoms are gone but I'm still only 20% better because my worst symptoms are still awful. They include head pressure, anxiety, depression, joint pain and air hunger. What are yours?

Stuff that have gone away are night sweats, heart palps, double vision, words stuck on my tongue, memory loss, severe paranoia where I had to keep my gun on my in my house at all times (I'm trained as I went through army boot camp but had to drop out due to my
Medical issues), arm numbness and many other things are mostly gone.

Post Edited (LymeIsWorseThanCancer) : 3/21/2017 7:22:53 AM (GMT-6)

Posted 3/21/2017 1:19 PM (GMT 0)
I have only been treating 5 months. My worst symptoms are the derealization(brain fog) although less in severity and various eye symptoms.
Posted 3/21/2017 1:22 PM (GMT 0)
Depression, hands down. When I flare or Herx, it's debilitating. I have some anxiety during those times as well, but I find a low dose of Klonopin handles those really well. I can manage the pain, nausea and such, but I haven't found anything that helps the depression.
Posted 3/21/2017 2:45 PM (GMT 0)
Pain and anxiety are my worst symptoms. Cognitive stuff is a struggle too but it's the pain that ramps up my depression and anxiety. It's unrelenting. I get migraines a few times a week too I'm so sick of being in pain and feel trapped in my own body with no escape. I hate it.
Posted 3/21/2017 2:56 PM (GMT 0)
Chronic muscle pain, numbness, pulses and twitches when muscles at rest, eye sensitivity.

Haven't started treatment yet. Soon. I'm wondering what will appear or worsen when I do. Restricted diet has relieved some of the muscle pain.
Posted 3/21/2017 3:02 PM (GMT 0)
Anxiety and pain also but as treatment has progressed id say the wonder if I ever will be my old self again
Posted 3/21/2017 4:21 PM (GMT 0)
My last symptoms to go are also my worst...how unfair is that!!!


...the nerve pain - thoracic back, left arm, hand
...nervous system 'shivers' and vibrations
...head 'stuff' (pressure in my head that was good and is now back some days)
Posted 3/23/2017 12:46 AM (GMT 0)
My worst symptoms are neuropathy, muscle pain, and exhaustion. My brain fog is bad but I could live with that, or at least at this point, I think I could.

I can't tell if the pain is the same or better? Maybe as it gets better my tolerance has decreased.
Posted 3/23/2017 12:55 AM (GMT 0)
Undoubtedly my shot nervous system. I would say having to be on oxygen night and day to function, but who knows if that's related to my tick diseases.
Posted 3/23/2017 12:58 AM (GMT 0)
Crushing fatigue ,muscle wasting and poor circulation ....anxiety deppression is just icing on the lyme cupcake
Posted 3/23/2017 1:03 AM (GMT 0)
First off I like your Username! And I've been treating for almost a year now and still have some of my worst symptoms which are: anxiety, depression and fibromyalgia type pains and muscle stiffness.
Posted 3/23/2017 1:38 AM (GMT 0)
Been treating for 6 months now, I hope and believe I am at 85% better. Numerous symptoms I had before, that I wish on no one are gone.
Remaining is Neuro thumping/pulsing/current in head/neck/throat after a few days whenever I increase herbal protocol.
Itching and skin issues on scalp diminishing quite nicely, thank God.

I learned early on from posts here , that it will take time. I just keep on trying to add or increase herbs to get to an amount that is sufficient for me. I've been self treating with the herbs and I let the llmd figure out the ABX stuff and have found he has been right so far even when I was unsure.
Hang in there everyone. Sincerely, Jo
Posted 3/23/2017 1:52 AM (GMT 0)
Depersonalization/Derealization, depression/anxiety, apathy, problems with cognition, and suicidal ideation. Dark but true gang.
Posted 3/23/2017 1:56 AM (GMT 0)

Little_Moe said...
Depersonalization/Derealization, depression/anxiety, apathy, problems with cognition, and suicidal ideation. Dark but true gang.

That hovers in the shadows for many of us Little Moe. Just please, stay in the light and do not look longingly for the darkness. It will get better. And there are herbs that help with some of the specific areas that you have.
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