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Is my Lyme chronic?? Please help

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Posted 4/4/2017 8:03 PM (GMT 0)
I am a 20 year old college student from Pennsylvania. I was bitten by a tick and got a bullseye rash about 3 years ago. After seeing the rash and experiencing pain while trying to touch my toes, I went to my doctor. He took blood which tested positive for Lyme and gave me doxycycline. The rash and symptoms went away completely. But now, 3 years later, I am experiencing slight tailbone pain while sitting down. It is a dull pain and makes sitting uncomfortable. As far as I know, this is my only symptom. There is no pain at all while walking, standing, or laying down. Still, I am worried this may be a symptom of chronic Lyme and I don't know what to do. Do I go to my doctor and demand a blood test or meds? Please, if you have any input at all, help me.

Thank you all so much.

Post Edited (cweber7) : 4/4/2017 2:09:47 PM (GMT-6)

Posted 4/4/2017 8:11 PM (GMT 0)
Well, it could be a sign that the Lyme bacteria or a co-infection is still in you, and something now has re-activated it.

Chances are, depending on how quickly you were able to start the Doxy treatment, and how long you were on it, that it wasn't enough treatment, only sent it into hiding.

Chances are you may not test pos., now, since it's had a chance to form biofilms and cyst like disguises for itself.

If you decide to get retested, don't take the results or the Dr.'s interpretation as gospel if you're told "negative".

Thank you for joining our group, we've got lots of good supportive people here.

Please take the time to read the intro "New to Lyme?.....start here".
Posted 4/4/2017 8:26 PM (GMT 0)
Welcome to our community!

No point in retesting...as you can test positive from your initial bite...so it wouldn't be telling you anything.


Tailbone pain was one of my symptoms.

You can either go ahead and treat it...and see if the tailbone pain resolves...Maybe an herbal protocol is something to try...see how you react on it.
..or you can keep an eye on it and see if you get more symptoms...

Maybe see a LLMD for an evaluation?
Posted 4/4/2017 8:27 PM (GMT 0)
Is this dull lower back/tailbone pain symptom common for chronic Lyme? What meds should I ask for?
Posted 4/4/2017 8:33 PM (GMT 0)
I've come across several people (on this forum) who have or had the tailbone pain.


Mine was strange...it didn't hurt so much when I sat down just a bit...but when I got up to stand...it would hurt a lot.

Do you have a Dr. that will give you antibiotics for tailbone pain...and accept it's from undertreated Lyme?

Have you checked the symptom lists for lyme and co-infections...sometimes we have symptoms, but have gotten so used to them (if they're minor ones) and don't realize the connection.

It's really a tough call - having just that one symptom.

The meds would be antibiotics. ...and it would need to be two together.
Posted 4/4/2017 8:39 PM (GMT 0)
I've checked the symptom list and my dull tailbone pain is the only thing wrong with me. I feel perfectly fine otherwise, and I've felt perfectly fine for the last 3 years. I thought it was cured. The only thing I currently have that could treat the pain is ibuprofen, which I rarely use - only for my headaches which are typically few and far between.

If there's no point in retesting, I'm fine with that. I just want some meds in case. I'm pretty sure if I know what to ask for (since I've tested positive before), they'll write my a perception for whatever antibiotics would help. I'm allergic to penicillin and ammoxicilin. What should I ask for?
Posted 4/4/2017 8:46 PM (GMT 0)
Sound similar to my story. Got bit like you and had classic bulls eye rash. PCP gave me 100 mg doxy 2x/day for 30 days and declared me cured. But I never tested CDC positive. So try to get a copy of that report and don't ever misplace it.

3 years later lots of strange shooting nerve pain, lower back stiffness and yes, the nagging tailbone pain I thought was from PT that the headcase neuro made me go to cause he knew I didn't have Lyme anymore.

I'ld find a good LLMD and get treatment. I wasted a year with neuro and another years seeing a rheumy before getting to a real LLMD.
Posted 4/4/2017 8:53 PM (GMT 0)
if the only symptom is tailbone pain...and this wasn't one of your original symptoms - I wonder if it is from the lyme.


You could ask for minocycline and pulse tinidazole two or three days a week (for cyst form)
Minocycline is 100 mg twice daily and tinidazole 500 mg twice daily two or three days/week.


Hopefully if you do antibiotics you will have a response soon...and you'll know if you're on the right track (either a herx...or you'll feel relief in the tailbone pain)

You can subscribe to LLMD MR TreatLyme online book - there are many combinations of antibiotics there:

www.treatlyme.net

I think it's only $4.99 per month...so you could subscribe for a month and write down the combinations.

With only that one symptom...maybe consider doing an herbal protocol instead? You can buy the herbs online.
(since it's not clear that the symptom is from Lyme)
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