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Flagyl and feeling HORRIBLE

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Posted 4/10/2017 9:33 AM (GMT 0)
Hi friends.

I just finished my third day of Flagyl for C diff. I feel horrific. Slept for three hours and woke up at 1am drenched in sweat. I am nauseated and my head feels so awful. Foggy and pain at the base of my head. I just woke my husband to hold my hand because I honestly do not remember feeling this bad since I first got diagnosed with lyme and all my crapty co-infections.

Throughout my treatment for lyme and co infections, my LLMD had never put me on Flagyl. However, now with testing positive for C Diff, flagyl is the treatment so I really have no way around this.

Please tell me that feeling this bad will get better!?!? I am supposed to be on Flagyl for ten more days of the C Diff treatment.

Is the drenching sweats a side effect? Or a herx? Babesia waking up? Or am I relapsing because I had to stop all my other meds while we treat the C diff?

Such a mess. Trying my best to stay positive.
Posted 4/10/2017 10:44 AM (GMT 0)
It is hard to say what exactly you are feeling and what it is from. C diff is the reason why my doctor doesnt like to prescribe more than one round of antibiotics for lyme... the big chance of getting C diff and no proof that antobootics make the lyme disease go away.

Right now you need to treat the C diff and rest, relax, sleep as much as you can and eat enough good meals to keep your nutrients up. Once the c diff is gone I would take a break and re-evaluate your lyme treatment. There are people on here that have had multiple rounds of antibiotics and do not seem any better off than I am and I have only had one round. Maybe am wrong but the antibiotics don't seem to change the outcome of lyme disease after the initial round of treatment. It seems everyone here had multiple rounds of antibiotics and still complains. So why risk getting C diff for something that isnt going to work. Idk. This disease confuses me, its akways a guessing game but sometimes less might be better if youve been treating for a long time. Maybe taking nothing would be a godsend for an herb/medication filled body and bloodstream.
Posted 4/10/2017 11:21 AM (GMT 0)
Thanks for your input. I have improved tremendously with medication. Just last week during spring break, my husband and I were going on walks every day and I was even swimming laps for thirty minutes in the pool! However, I am convinced my biggest issue is this persistent Babesia. I am not sure how much of a player Lyme is these days.

Once I get through this C diff treatment, I am strongly considering stopping all antibiotics and going the herbal route. But... I need to get through the Flagyl treatment to get rid of C diff. I've emailed my internist to see if she has any tips to make this Flagyl more manageable. Awful.
Posted 4/10/2017 11:45 AM (GMT 0)
Why do you need flagyl for c diff? Would something like berberine not work? I'm thinking something with poor absorption would treat the c diff while minimizing all the side effects of hitting your systemic infections
Posted 4/10/2017 1:01 PM (GMT 0)
I'd love to hear stories of people who got rid of C-Diff with non abx. C-Diff is a tough mudder I know someone who needed to take Gentamycin IV's for 9 months to eradicate it when other stuff wouldn't.

In terms of Flagyl/Tindamax this abx hits so many things its a broad spectrum abx very effective at killing anaerobic bacteria as well as an anti-parasitical so not surprising you're feeling things after taking it for the first time.

I've read several stories of people using antibiotics to get 70-90% better then they switch to herbals to tackle the rest. Not sure if correlation causes causation or whether your body is well enough to get the rest of the way on its own but some try it.
Posted 4/10/2017 1:47 PM (GMT 0)
Depending on the dose, you could be hitting the tick-borne infections as well. I would assume that it's safe enough for you to continue to detox well - but I'm not sure if binders can be used too??? I really know nothing of C-diff, except the risks and the possible symptoms.

Can you call your doc and ask about those things? If you can use them, it might really make a difference!

And, I'm so very sorry that you are going through this on top of everything else!!
Posted 4/10/2017 3:14 PM (GMT 0)
I am so sorry you are suffering Evanston! I also had a truly tough time with Metronidazole it was almost traumatic! Can you ask your doctor if he can switch you to Tinidazole? It is a 100x kinder than Metro (in my opinion). The difference was like night and day.

I read that tini is also used for cdiff and is effective against tougher strains while metro is more effective against the more common, milder ones. Maybe someone can confirm...

Would you consider doing a cofee enema? That really helped me get over thise tough days.

Hugs to you, Evanston and chin up...you will get through this. 💕
Posted 4/10/2017 5:46 PM (GMT 0)
I would treat the C-Difficile with antibiotics....


Then after if you want to switch to herbs for lyme treatment ...go ahead.
Posted 4/10/2017 5:53 PM (GMT 0)

MAF249 said...


There are people on here that have had multiple rounds of antibiotics and do not seem any better off than I am and I have only had one round. Maybe am wrong but the antibiotics don't seem to change the outcome of lyme disease after the initial round of treatment. It seems everyone here had multiple rounds of antibiotics and still complains. So why risk getting C diff for something that isnt going to work. .


i do know people who did antibiotics as their main treatment and are better. In fact I personally know more people with success using antibiotics than other modalities.

That isn't including the forum members though...just ones in my 'neck of the woods'.

The forum has quite a few success stories using herbals...and/or antibiotics.

Do I sound defensive? LOL smile
Posted 4/11/2017 4:26 AM (GMT 0)
To me flagyl is just nasty on its own, thankfully I was able to switch to tinidazole, much easier but I don't have c-diff
Posted 4/11/2017 6:46 AM (GMT 0)

doors12 said...
chronic low vitamin D

hey I have that too, it just came up on my blood work, is it indicative of Lyme and Co? I don't know how many signs I need, I know I have it but what else I mean co-infections for which tests I cannot afford! anyhoo

but about Flagyl...oh boy... I started a weekend pulsing Metronidazole and Minocycline and it made me profoundly depressed with loopy paranoid obsessive thoughts, so I stopped for now. Maybe it's getting at deeper neuro infections so the toxins released possibly upset a fragile balance. It's difficult to detox this too, cranio sacral release? hot shower? epsom bath? coffee enema sounds like good idea, supplement with glutathione and N-Acetyl Cysteine.

You're not alone in feeling bad on this particular Abx. Oh yeah and night sweats because of night terrors and abject fear is not fun either.
Posted 4/11/2017 2:44 PM (GMT 0)
same here black toung after 3 months remain same.
Posted 4/11/2017 2:50 PM (GMT 0)
Abhi - do you mean you got a black tongue from the meds, or is it a symptom? If it's a symptom, that's a symptom of yeast issues.
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