collecting data...

Fellow Lymies
I'd like to start collecting some data; by asking some questions.
I'm doing my own kinda research.

As for me... I remember the bite and that has been 23 years ago?
The Lyme "evidence" was awakened by a scorpion bite three years ago if not four!
Now it is my journey?

Post Edited (JeanBean55) : 4/7/2017 7:44:52 AM (GMT-6)

Chick Norris cute username! wow Bless your ❤. Thanks for the responce.

8 years before treatment. Don't know when I was bit, just when I started having symptoms.

I'm a 45 year survivor of Lyme, Bartonella, Babesia, RMSF, Ehrlichia, Anaplasmosis, Brucella and that's where the doc just said - assume you have them all. I healed with herbal only treatments - then got reinfected during the time when my adrenals had crashed, so I'm back in the fight - with the added "weight" of trying to heal adrenals on top of it all.

Thinking about Lymepilot's post - I never had a bull's eye rash, although I've had a ton of rashes over my lifetime (how can one not with these infections having a party inside of you?).

I had a fully CDC positive Western Blot - but not until I had had 12 months of treatment. Never bothered to retest after being reinfected.

I believe I had it about 16 months untreated. Clinically diagnosed Neuro Lyme late Sept. 2016. Started treatment then.

Still waiting and praying for the day I can say" Yes!!! thank you God, I am healed!!!!!!!!!!!!!!!!!!!!!!!!!!!"

Sorry wishful thinking gone wild. Take care , Jo

Contracted various somethings at least 20+ yrs ago. Slowly developed sx in-between 3 major (quit-my-job) crashes. Although I was living in NYC at the time (working all around northeast) no one ever thought to test me.

Then I cycled through 8-9 diff MDs dealing w/ a 13-month long sinusitis and bronchitis. They kept putting me on various short courses of abx and only then did I develop very specific Lyme & co sx… that was 4 yrs ago - still in treatment.

I have a CDC-positive IGenex and a positive Fry Labs test for bart (or something) but no test positive for babs, yet I have sx. I don't recall an EM, specifically, but vaguely remember a large rash on back at the time I came down w/ flu-like sx for 4 days. If it looked like a bullets-eye, I would remember. It was blobby and all over my back.

After I started treating I developed 3 diff kinds of lesions, including EM. I sit in the camp of most Lyme cases don't produce an EM.

-p

Probably had it for 30 years ,believ3d it was arthritis,cysts anxiety ,then als sx happened after a short course of bactrim,had a bulls eye 15 yrs ago thought it was a spiderbite...turns out my whole family has it .maybe wisconsin ,maybe chicago probably colorado...been in hard core tx 1.75 yrs with iv abx ,bvt ,rife herbs ,oxidative therapy etc etc...again why do you ask?

Thank you all for participating. Your stories are "whew" what can I say.

Thank you for your courage and stamina. My prayers are with you all.

Maybe 20 or 30 years? I had plenty of tick bites as a kid. Looking back, I had mild to moderate symptoms during my childhood and wasn't diagnosed until I was 35.

Hey Chickenarise!
I actually didn't assume I had them all, that's what my LLMD told me after listening to my symptoms and history. That was literally the worst day of my life, when he told me I had at least those infections, and most likely all of the tick-borne infections.

But, your point is well taken - once the immune function is down, invaders come!!!