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Posted 4/30/2017 4:48 AM (GMT 0)
Just wondering if there's many others who've dealt with noise sensitivity as one of their symptoms. For me it's like I have a sensory processing disorder now- I'm a musician and did a whole 4 years at a music school, but have been in varying stages of gettig sick since about 1.5 years into it. By my last semester I was having meltdowns in the middle of sets (I was a singer) because the noise/vibrations put me into fight/flight.

Sometimes I can't even handle certain voices because the vibrations of their voice hurt and weaken my body. It's like vibrations cause all the energy to be sucked out of my body. Other times even the flick of a light switch or the crinkle of a food packet causes echoing, sometimes painful thumps in my ears.

It's really hard because even beyond all the other symptoms, it hinders my ability to socialise with other people. I even have to live alone because of it all.

I'm beginning college again in a different major in June (believing I'll be well enough) and I'm worried about ending up in a class where the professor might have a voice that hurts or where the class might be loud. I can't control the fight/flight/flop thing (totally just made up the flop thing btw but that's what my body does if I don't run. It cries then shuts down). And my cognitive skills get worse too in those situations.

Anyway I've been thinking about this for a while and just wanted to let it out amongst people who might understand/won't get tired of my sickness... And if anyone else has experience, any tips? smile
Posted 4/30/2017 6:20 AM (GMT 0)
ugh! I suffer from this too. It's maddening. I used to love noise action and now it feels i have to hide from the world. I hope this will get better for us. I know for many it improves with treatment. Makes it hard to be in the world though while its happening. We feel so sensitive to noise light smell I never imagined such things.

I hope it gets better for us it is a common symptom.
Posted 4/30/2017 8:16 AM (GMT 0)
Yep. I have this. What should be a gentle whirr of white noise from a computer, or the droning of a pool pump motor, the spinning of an A/C unit (or furnace I guess if you live up North), lawn mowers, buzzing of planes, helicopters get extremely acute like horror movie suspense, fire engines, any noise pollution can cause this adrenal startle fight/flight response and the emotional lability that it brings. (In addition to the light sensitivity/unreality, or doing 2-3 hours of housework then feeling like I was hit by a truck.) And even the noise from a TV in the next room can keep me annoyed and irritated all night.

And if I had the choice I would also live alone, and I'm making a slight career change to do this.

Have you every tried Claritin? It seems to dampen some symptoms. Or Magnesium? A multivitamin high in B levels may also help nerve stuff.

But anyway, yeah noise sensitivity to the point of super sonic hearing, and my hearing is pretty sharp to begin with (as I also play music) but this is more like when you haven't slept. It's a weird disease with weird symptoms.
Posted 4/30/2017 8:56 AM (GMT 0)
Lithium orotate can help. Anything that increases norepinephrine may help. Headaches are also an effect when the nerves of the inner ear are inflamed. I'm not a fan of caffeinated beverages when someone has this condition. Oxidative stress is a major concern because over a period of years, the damage can lead to demyelination. I believe I've had demyelination over my years of being sick as I can't write in cursive without messing up the letters. I can write really slow like an old person and write fine, but it's a far cry from years ago.
Posted 4/30/2017 1:38 PM (GMT 0)
That's your nervous system on overload, and I know miserable that can be. I was on overload for all sensory for what felt like forever, in reality, it was only for a few years.

Try increasing your detoxing, and using therapies that target healing of the nervous system. I've used Avena sativa (soothes and heals) and Lion's mane (helps with remyelination of the nerves) with some good success, but I do realize not only that not everyone wishes to use herbs, but that those herbs may not help everyone - but they are a good start for those that are interested.
Posted 4/30/2017 5:35 PM (GMT 0)
Thanks everyone- this is so encouraging to know that it can and will improve! I just started on a new protocol a couple months ago and part of it is a magnesium supplement that specifically helps the brain, and methylation support that includes lots of Bs, as well as another B6 supplement and a customized remedy that helps to rewire my HPA axis. So it is getting addressed, yay smile My supplements/remedies are a mix of herbs/homeopathics and chinese medicine.

I think I was getting better for a bit until I went and stayed an hour in a loud music environment (introduce meltdown) just because friends I hadn't seen in years were there from overseas. That set me back a lot.

And I haven't been able to detox as much the last few weeks, so that's obviously part of the problem too. Thanks so much for the encouragement! This is one of the symptoms I find hardest to deal with. Even laughter freaks me out! (Unless we're outside where the sound can dissapate easier and not echo into my ears)
Posted 4/30/2017 6:02 PM (GMT 0)
Yes, I have this problem. Sometimes things sound just awfully out of tune. I play with the church band sometimes, and the bass irritates the **** out of me- the vibration rattles me deeply. I have to take out my earbuds and play "deaf."

Also can't sing anymore because Babesia has literally taken my breath away.

BUT. Today was really good. My fingers know where the notes are again, and things sound wonderful. I'm not done with treatment, but every time I get something back that I lost I feel lots of relief and joy.

You will enjoy music again someday!
Posted 4/30/2017 6:04 PM (GMT 0)
So glad for you BabsBunny smile
Posted 4/30/2017 7:46 PM (GMT 0)
One thing that may be interesting to note for some is that my blood tests came out with magnesium as being only slightly low - my doc tested me and got me to stop the mag I was taking and take this other one which has magnesium malate which will directly benefit/support my brain function. Apparently there's different types of magnesium which work well for different things - all the things you learn!

It also helps to chelate metals...

Post Edited (Blueskies7) : 4/30/2017 1:50:10 PM (GMT-6)

Posted 4/30/2017 10:25 PM (GMT 0)

Georgia Hunter said...
Lithium orotate can help. Anything that increases norepinephrine may help. Headaches are also an effect when the nerves of the inner ear are inflamed. I'm not a fan of caffeinated beverages when someone has this condition. Oxidative stress is a major concern because over a period of years, the damage can lead to demyelination. I believe I've had demyelination over my years of being sick as I can't write in cursive without messing up the letters. I can write really slow like an old person and write fine, but it's a far cry from years ago.



i was a musician too.and while the physical is like georgia stated actually a nerve thing (possibly bart) as i remyleinate it gets better ..the radio began hard or crowded places ,i had to wear earplugs ...and i had thrown concerts for 15 yrs ?!

In my experience, i believe in frequency medice ,that like a wine glass or the bridge in physics class ,everything has a natural frequency at which it vibrates ...including the pathogens ..this is the theory and reasoning behind rife .
it could be that the bugs actually dont like that vibration.

For a while i became facinated with low frequency ocillation at extreme decibels. I think i was treating the lyme bart without knowing it ...
anyway this is a music proffesor from skidmore /www.youtube.com/watch?v=-bgClQUhVVw its worth the 17 min watch he is using a plasma machine designed by james bare btw

all that said ..stop the pathogens ,then heal with iv mag ,lions mane ,high dose biotin ,lots of essential fatty acids like avacado ,codliver oil ,phosphtyadlcholine ,high dose royal jelly has acetycholine and ghee .absorption of fat with a working gall bladder helps too

Post Edited (bluelyme) : 4/30/2017 4:28:26 PM (GMT-6)

Posted 5/1/2017 12:01 AM (GMT 0)
ALso NTFactor for reMyelination of your nerve sheaths and possibly Colostrum (I'm speaking out of my depth here). NT Factor is good stuff I know this for fact. NTFactor is sort of a rebuild after the blasting out bugs with Abx.
Posted 5/1/2017 12:14 AM (GMT 0)

Georgia Hunter said...
Lithium orotate can help. Anything that increases norepinephrine may help. Headaches are also an effect when the nerves of the inner ear are inflamed. I'm not a fan of caffeinated beverages when someone has this condition. Oxidative stress is a major concern because over a period of years, the damage can lead to demyelination. I believe I've had demyelination over my years of being sick as I can't write in cursive without messing up the letters. I can write really slow like an old person and write fine, but it's a far cry from years ago.

You have exactly described my issue with writing cursive! I may start off fine, depending on what the letters are, but pretty soon it's not only beginning to look like Physician scratches, it's very uncomfortable to hold the pen in my fingers. I used to have fairly nice handwriting before these years of Lyme.

Some combinations of letters, including my own name, have become impossible for me to write legibly in one smooth motion. Printing isn't very easy for me any more either.

Sound sensitivity has been a big issue with me, particularly if it's someone other than me making it. But it's not always painfully loud, like the tv sometimes I can't hear it well enough when everyone else can.

It's totally unpredictable. Unexpected noises like a dog yapping, or a gun shot, rips my nerves right out of me. Trains going by send me cringing into my seat. I'm very light sensitive too, and that varies.

These are issues I haven't ventured into to treat yet. I'm up for it though, anytime!
Posted 5/1/2017 1:43 PM (GMT 0)

Blueskies7 said...
One thing that may be interesting to note for some is that my blood tests came out with magnesium as being only slightly low - my doc tested me and got me to stop the mag I was taking and take this other one which has magnesium malate which will directly benefit/support my brain function. Apparently there's different types of magnesium which work well for different things - all the things you learn!

It also helps to chelate metals...

Here is a great article that explains each type of magnesium:
www.globalhealingcenter.com/natural-health/types-of-magnesium/
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