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Posted 6/7/2017 2:10 AM (GMT 0)
Okay, so after spending like a crapload of money on seeing doctors who don't even recognize the presence of Lyme Disease in Hong Kong, and cannot give me an explanation as to why I felt like shiiite in the previous month apart from pure stress which I found hilarioous (and actually even worse with insomnia, joint heat and cracks, dizziness, brain fog and a whole pile of others in the following days), I have decided to treat myself without doc's diagnosis. Anyhow I shall either go broke seeing useless docs and doing useless checkups (as in the case of Lyme, you never know when there will be a positive result but maybe decades later), or die from wrong doses (either too much or too little) of antibiotics, so I choose the latter.

FYI I remember clearly a EM-alike rash and flu-like symptoms back in last mid-September, so probably now about 9 months have already passed.

Browsing through the boards and chats here I come up with a treatment plan for myself. I think I shall go with Minocycline 100mg daily from Monday to Friday, as well as Tinidazole 500mg daily for Saturday and Suday for the first week, and then step up to Mino 200mg daily from Mon to Fri, as well as Tini 500mg daily for Saturday and Sunday (no change in dosage for Tini) for the subsequent weeks. I shall do this continuous for, say, 6 months (I guess?) before switching to Biaxin and Plaquenil for some more 3 to 6 months, so the whole process would last 9 months to a year long (probably end in mid-June 2018).

At the same time I am taking GNC Ultra 100 billion CFUs Probiotic Complex every other day together with my abx intake. Every day starting from the morning I shall drink lemon water (a piece of lemon only in water), and foot soak every night for 15 minutes as well as exercising (jogging and occasionally, swimming) during weekends (which I am normally too lazy to do so).

So now, questions:
1. Do you think that my abx stepping up initiative and dosage / intake / duration is enough? Do I need to add in more, or say, pulse them (and/or in a different way)?

2. Do you think that my detoxing methods are good enough? What other natural methods (beside buying herbs and crap 'cause there are no ways you can get those weirds herbs in Hong Kong, even Chinese medicinal herbs need to be prescribed by doctors) would you suggest / recommend?

3. And for the diet part I am confused, so basically I cannot eat starch, laxative, sugar, gluten and... anything more? But like in Chinese meals rice is a must for everyday and every meal so it is actually impossible to stay away from that lol (I can consider rice vermicelli in the morning though). And no spaghetti, bread, cakes, sweets, snacks, ice-cream, miso-soup, congee, spicy food, fried chicken, cereal and... for god sake it seems like there is nothing I can eat. I think I shall die from malnutrition rather than Lyme itself and its debiliating symptoms lol

Post Edited (Kev9412) : 6/6/2017 8:15:45 PM (GMT-6)

Posted 6/7/2017 2:56 AM (GMT 0)
I am so sorry you are hurting. I know all the "don'ts" can see overwhelming but I decided to be smarter than the don'ts. I found many alternatives. I even found tortilla type chips that are amazing - made my Luke's. I used my lyme brain as best I could and decided to outsmart this dang stupid disease.

If I can do it as an old woman, you certainly can do it. Get inventive. Or get mad like I did and use your noggin.

And if you need any recipes, just drop me an email. I live in the boonies. My closest store is 45 minutes away. Whole Foods is over an hour away. Same with Walmart. So I am the ultimate Chopped Chef. What that means is I have to make do with what I have in my pantry and cannot run to a store for an egg.

I improvise one heck of a lot. Oh and my husband, well he is one heck of an eater and picky at that.
Posted 6/7/2017 3:09 AM (GMT 0)

PeteZa said...
I am so sorry you are hurting. I know all the "don'ts" can see overwhelming but I decided to be smarter than the don'ts. I found many alternatives. I even found tortilla type chips that are amazing - made my Luke's. I used my lyme brain as best I could and decided to outsmart this dang stupid disease.

If I can do it as an old woman, you certainly can do it. Get inventive. Or get mad like I did and use your noggin.

And if you need any recipes, just drop me an email. I live in the boonies. My closest store is 45 minutes away. Whole Foods is over an hour away. Same with Walmart. So I am the ultimate Chopped Chef. What that means is I have to make do with what I have in my pantry and cannot run to a store for an egg.

I improvise one heck of a lot. Oh and my husband, well he is one heck of an eater and picky at that.

Herbs can be great of course, just that there is no way I am able to buy them in Hong Kong. Besides, even though you take the herbs, without abx it would be impossible to tackle the most fundamental problem underlied: the bacteria itself.
Posted 6/7/2017 3:18 AM (GMT 0)
Sorry, Kev that you can't get herbs in Hong Kong. I, and my husband, are proof that herbs alone can heal you of lyme.

I probably am anxious to put my husband in the healed column, but he has only been off herbs for 2 days.

I have been healed for over a year on herbs.
Posted 6/7/2017 3:49 AM (GMT 0)

PeteZa said...
Sorry, Kev that you can't get herbs in Hong Kong. I, and my husband, are proof that herbs alone can heal you of lyme.

I probably am anxious to put my husband in the healed column, but he has only been off herbs for 2 days.

I have been healed for over a year on herbs.

Which types of herbs had you had?
And that your herbs can achieve the part of killing the bacteria?
Posted 6/7/2017 4:45 AM (GMT 0)

Kev9412 said...


Browsing through the boards and chats here I come up with a treatment plan for myself. I think I shall go with Minocycline 100mg daily from Monday to Friday, as well as Tinidazole 500mg daily for Saturday and Suday for the first week, and then step up to Mino 200mg daily from Mon to Fri, as well as Tini 500mg daily for Saturday and Sunday (no change in dosage for Tini) for the subsequent weeks. I shall do this continuous for, say, 6 months (I guess?) before switching to Biaxin and Plaquenil for some more 3 to 6 months, so the whole process would last 9 months to a year long (probably end in mid-June 2018).

So now, questions:
1. Do you think that my abx stepping up initiative and dosage / intake / duration is enough? Do I need to add in more, or say, pulse them (and/or in a different way)?

It is fine to start the mino 100 mg once daily, and then a week or two weeks later increase to 100 mg twice daily.
I pulsed tinidazole 500 mg twice daily for two days a week.

Many LLMD's would add something to the mino rather than switch to a different one.
Posted 6/7/2017 6:36 AM (GMT 0)

Girlie said...

Kev9412 said...


Browsing through the boards and chats here I come up with a treatment plan for myself. I think I shall go with Minocycline 100mg daily from Monday to Friday, as well as Tinidazole 500mg daily for Saturday and Suday for the first week, and then step up to Mino 200mg daily from Mon to Fri, as well as Tini 500mg daily for Saturday and Sunday (no change in dosage for Tini) for the subsequent weeks. I shall do this continuous for, say, 6 months (I guess?) before switching to Biaxin and Plaquenil for some more 3 to 6 months, so the whole process would last 9 months to a year long (probably end in mid-June 2018).

So now, questions:
1. Do you think that my abx stepping up initiative and dosage / intake / duration is enough? Do I need to add in more, or say, pulse them (and/or in a different way)?

It is fine to start the mino 100 mg once daily, and then a week or two weeks later increase to 100 mg twice daily.
I pulsed tinidazole 500 mg twice daily for two days a week.

Many LLMD's would add something to the mino rather than switch to a different one.

I see, thanks. So did you do any week pulses like the two weeks on, one / two week(s) off thing? Or just abx every week?

And what would you suggest apart from Mino and Tini? 'Cuz originally I planned to switch directly to Biaxin & Plaquenil from Mino & Tini after say, 3 to 6 months.
Posted 6/7/2017 6:41 AM (GMT 0)
Having taken Mino for a few days what I could say by now is it's giving me dizziness at times. Kind of fatigue, though I am able to sleep for a longer duration before being abruptly awaken. Not sure if this would be the effect, or anything else.

However, I noticed that the the seborrheic dermatitis (which I had a doctor's diagnosis prior to any bug bites) on my face has kind of worsened. I am kinda reluctant to treat it with the topping corticosteroid as before ever since knowing about the troubles it may bring to Lyme. Would it be lupus? Shall I continue on the abx therapy?
Posted 6/7/2017 7:14 AM (GMT 0)

Kev9412 said...

Girlie said...

Kev9412 said...


Browsing through the boards and chats here I come up with a treatment plan for myself. I think I shall go with Minocycline 100mg daily from Monday to Friday, as well as Tinidazole 500mg daily for Saturday and Suday for the first week, and then step up to Mino 200mg daily from Mon to Fri, as well as Tini 500mg daily for Saturday and Sunday (no change in dosage for Tini) for the subsequent weeks. I shall do this continuous for, say, 6 months (I guess?) before switching to Biaxin and Plaquenil for some more 3 to 6 months, so the whole process would last 9 months to a year long (probably end in mid-June 2018).

So now, questions:
1. Do you think that my abx stepping up initiative and dosage / intake / duration is enough? Do I need to add in more, or say, pulse them (and/or in a different way)?

It is fine to start the mino 100 mg once daily, and then a week or two weeks later increase to 100 mg twice daily.
I pulsed tinidazole 500 mg twice daily for two days a week.

Many LLMD's would add something to the mino rather than switch to a different one.

I see, thanks. So did you do any week pulses like the two weeks on, one / two week(s) off thing? Or just abx every week?

And what would you suggest apart from Mino and Tini? 'Cuz originally I planned to switch directly to Biaxin & Plaquenil from Mino & Tini after say, 3 to 6 months.

At first I did two antibiotics every day with no breaks.

Then I switched to M/W/F for two weeks, then one week off.
I think you could add biaxin to the minocycline.

Or you could add azithromycin to the minocycline.
Posted 6/7/2017 7:53 AM (GMT 0)

Girlie said...

Kev9412 said...

Girlie said...

Kev9412 said...


Browsing through the boards and chats here I come up with a treatment plan for myself. I think I shall go with Minocycline 100mg daily from Monday to Friday, as well as Tinidazole 500mg daily for Saturday and Suday for the first week, and then step up to Mino 200mg daily from Mon to Fri, as well as Tini 500mg daily for Saturday and Sunday (no change in dosage for Tini) for the subsequent weeks. I shall do this continuous for, say, 6 months (I guess?) before switching to Biaxin and Plaquenil for some more 3 to 6 months, so the whole process would last 9 months to a year long (probably end in mid-June 2018).

So now, questions:
1. Do you think that my abx stepping up initiative and dosage / intake / duration is enough? Do I need to add in more, or say, pulse them (and/or in a different way)?

It is fine to start the mino 100 mg once daily, and then a week or two weeks later increase to 100 mg twice daily.
I pulsed tinidazole 500 mg twice daily for two days a week.

Many LLMD's would add something to the mino rather than switch to a different one.

I see, thanks. So did you do any week pulses like the two weeks on, one / two week(s) off thing? Or just abx every week?

And what would you suggest apart from Mino and Tini? 'Cuz originally I planned to switch directly to Biaxin & Plaquenil from Mino & Tini after say, 3 to 6 months.

At first I did two antibiotics every day with no breaks.

Then I switched to M/W/F for two weeks, then one week off.
I think you could add biaxin to the minocycline.

Or you could add azithromycin to the minocycline.

Nice, what is the dosage for you at that time?
Have you been cured by now? smurf
Posted 6/7/2017 8:22 AM (GMT 0)
These are the doses I took:

minocycline - 100 mg twice daily

Biaxin - 500 mg twice daily

Tinidazole 500 mg twice daily.

I didn't take those three together though.

No, I'm not symptom free yet. Whittling away at the symptom list...but not there yet. sad
Posted 6/7/2017 8:53 AM (GMT 0)

Girlie said...
These are the doses I took:

minocycline - 100 mg twice daily

Biaxin - 500 mg twice daily

Tinidazole 500 mg twice daily.

I didn't take those three together though.

I see. How are you feeling now? Cured of Lyme already?
Posted 6/7/2017 8:55 AM (GMT 0)
I'm now treating babesia after a very long time treating bartonella (too long)...so we'll see how that goes.
Posted 6/7/2017 9:20 AM (GMT 0)

Girlie said...
I'm now treating babesia after a very long time treating bartonella (too long)...so we'll see how that goes.

Oh... I thought the same antibiotics can be used to treat all three types of borrelia, babesia and bartonella? Aren't they the same in terms of treatment?
Posted 6/7/2017 10:42 AM (GMT 0)
Sounds like a good plan. I have a similar one. Minus the Tinidazole (because my ID doctor doesn't realize that Tini it is next-generation Azole and less side effects than what she prescribed me generic Flagyl Metronidazole! sry still pissed about it!) Neither my traditional doctors nor the people I have to live with understand as much as I do about this complex disease. I have a bunch of Doxycycline though. Maybe a month supply of Minocycline. 10 days of Azithromycin Z-Pak. And 7 days of Bactrim. I've been holding off from the ABX and treating my symptoms (poorly sometimes with alcohol, it eases the pain, and I get a few hours of relief a day though it's not advisable), trying to eat right to gear up for the next round. Because I'm undersupplied and not in the safest environment. Oh and thankfully I have some of these herbal tinctures: cats claw, otoba here in the states. I don't blame you for going ahead and starting treatment. I'm being gaslighted by everyone it seems. Your approach is smart and should yield good results based on what I've read. Cabbage is a great food right now (raw preferred). You can avoid rice if you try hard enough, or minimize your intake greatly. I had a slice of pizza and a soda last night and I've been paying for it in symptoms (depression, head fevers, nausea).
Posted 6/7/2017 2:12 PM (GMT 0)

borrelioburgdorferii said...
Sounds like a good plan. I have a similar one. Minus the Tinidazole (because my ID doctor doesn't realize that Tini it is next-generation Azole and less side effects than what she prescribed me generic Flagyl Metronidazole! sry still pissed about it!) Neither my traditional doctors nor the people I have to live with understand as much as I do about this complex disease. I have a bunch of Doxycycline though. Maybe a month supply of Minocycline. 10 days of Azithromycin Z-Pak. And 7 days of Bactrim. I've been holding off from the ABX and treating my symptoms (poorly sometimes with alcohol, it eases the pain, and I get a few hours of relief a day though it's not advisable), trying to eat right to gear up for the next round. Because I'm undersupplied and not in the safest environment. Oh and thankfully I have some of these herbal tinctures: cats claw, otoba here in the states. I don't blame you for going ahead and starting treatment. I'm being gaslighted by everyone it seems. Your approach is smart and should yield good results based on what I've read. Cabbage is a great food right now (raw preferred). You can avoid rice if you try hard enough, or minimize your intake greatly. I had a slice of pizza and a soda last night and I've been paying for it in symptoms (depression, head fevers, nausea).

Thanks man. But I am deciding to stop treatment for the moment as Mino is making me too much of a fatigue and symptoms like back pain and dizziness (side effect?) resurges on this second day of treatment...
Posted 6/7/2017 2:19 PM (GMT 0)
No, the different types of bacteria need different types of abx.

And just to address the herbs again - I'm also proof that herbs alone can not only kill the specific bacteria, but also heal a person. I healed using the Chronic Tonic ([url]https://www.healingwell.com/community/default.aspx?f=30&m=3244272[url]) for healing Lyme. I had other tick borne infections I healed using other herbs.

If you are interested, Buhner has a very well laid out herbal protocol, and if you buy his book, he explains not only the actions of each plant, but how to use them and when.
Posted 6/7/2017 2:22 PM (GMT 0)

Kev9412 said...
Thanks man. But I am deciding to stop treatment for the moment as Mino is making me too much of a fatigue and symptoms like back pain and dizziness (side effect?) resurges on this second day of treatment...

This is likely a herx - so you may wish to lower your dose a bit, but not completely stop. If you also increase your detoxing, it will shorten the length of the herx. Here is a good list to use to find more detoxing routines into your day: www.tiredoflyme.com/detox-methods
Posted 6/7/2017 2:38 PM (GMT 0)
I am not sure if this is helpful, or not, but I was on low dose minocycline for about 9 months once about 8 years ago (for recurrent cysts, not for Lyme), and I got a bunch of nasty, rare side effects - tinnitus in my ears, muscular pain/tightness, which caused my sciatica to flare up for months (my mother had the same side effect with the muscle problems - she was also on minocycline at the time) and also very, very bad dizzy spells - I could not go on the computer at all for about a month, and stopped driving my car for a while because of it.
When I went off of minocycline, everything went back to normal and the side effects disappeared.
So, I would just watch it with the minocycline, in case you are sensitive, as well (sounds like you might be).
Posted 6/7/2017 2:55 PM (GMT 0)

Canadian99999 said...
I am not sure if this is helpful, or not, but I was on low dose minocycline for about 9 months once about 8 years ago (for recurrent cysts, not for Lyme), and I got a bunch of nasty, rare side effects - tinnitus in my ears, muscular pain/tightness, which caused my sciatica to flare up for months (my mother had the same side effect with the muscle problems - she was also on minocycline at the time) and also very, very bad dizzy spells - I could not go on the computer at all for about a month, and stopped driving my car for a while because of it.
When I went off of minocycline, everything went back to normal and the side effects disappeared.
So, I would just watch it with the minocycline, in case you are sensitive, as well (sounds like you might be).

But did you recover from the cysts you mentioned by then?
Besides, I thought you'd need cyst busters for that instead of tetracyclines... ?
Posted 6/7/2017 3:31 PM (GMT 0)

Kev9412 said...

PeteZa said...
Sorry, Kev that you can't get herbs in Hong Kong. I, and my husband, are proof that herbs alone can heal you of lyme.

I probably am anxious to put my husband in the healed column, but he has only been off herbs for 2 days.

I have been healed for over a year on herbs.

Which types of herbs had you had?
And that your herbs can achieve the part of killing the bacteria?

I and my husband both did Beyond Balance and Buhner's protocol.
Posted 6/8/2017 3:18 AM (GMT 0)

Traveler said...

Kev9412 said...
Thanks man. But I am deciding to stop treatment for the moment as Mino is making me too much of a fatigue and symptoms like back pain and dizziness (side effect?) resurges on this second day of treatment...

This is likely a herx - so you may wish to lower your dose a bit, but not completely stop. If you also increase your detoxing, it will shorten the length of the herx. Here is a good list to use to find more detoxing routines into your day: www.tiredoflyme.com/detox-methods

Nah I don't think this would be a herx. Herxing already on the second day of treatment? Isn't it too early to come? lol

More like a troubling side effect to me. Not sure, I may switch from Mino to Zithromax a few days later. Let's see how it goes.
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