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Posted 6/12/2017 3:30 PM (GMT 0)
Hello everyone:

I recently was given doxy for 2 weeks at 100mg twice a day for a positive IgM test. My IgG was negative, but doctor felt it was best to just start the medication anyway. The only main symptom I have is facial and forehead paresthesia (annoying, but doesn't hurt). My muscles are slightly sore (but I also lift 3-4x a weej), and I've been more tired then usual but I would not say to the level of fatigue. I'm leaning towards a false positive, but alas, here I am. My question is -- how long is it reported that doxy works and symptoms begin to alleviate ? My doctor has speculated that we will know if it was indeed a true positive IgM test if my facial paresthesia goes away.

Thanks for your thoughts!
Posted 6/12/2017 3:37 PM (GMT 0)
Well, 200 mgs a day is about half of the dose that you really need to treat Lyme. Are you supposed to raise your dose later? If not, are you seeing an ILADS trained LLMD? They are not miracle workers, but at least they will usually work within the ILADS guidelines.

Also, since you have symptoms, the treatment recommendations are for 6 weeks minimum. How long have you been on this dosage?

A positive IgM is a positive test. Period. You definitely need effective treatments to keep this from going into a chronic state that will take many months/years to heal from.

ILADS treatment guidelines: www.lymenet.org/BurrGuide200810.pdf
Posted 6/12/2017 3:55 PM (GMT 0)
I see-- okay. I'm not seeing an ILADS trained LLMD. I just wrote ILADS to get a list of doctors near me. I was only given a prescription for 14 days. I guess I've been having a hard time wrapping my head around this since I don't "feel" sick.
Posted 6/12/2017 4:21 PM (GMT 0)
Where are you located? If you enable your email and let folks here know we are you, someone can forward you the names of LLMDs in your area.
Posted 6/12/2017 4:38 PM (GMT 0)
Thanks- just enabled it. I'm in Philadelphia
Posted 6/12/2017 5:23 PM (GMT 0)

AZez15 said...
I see-- okay. I'm not seeing an ILADS trained LLMD. I just wrote ILADS to get a list of doctors near me. I was only given a prescription for 14 days. I guess I've been having a hard time wrapping my head around this since I don't "feel" sick.

How long have you had symptoms?

14 days isn't enough for an acute infection - never mind a chronic one.
Plus - it needs to be 200 mg twice daily.
Posted 6/12/2017 5:28 PM (GMT 0)
And are you seeing one of the doctors from that list? If so, I would really appreciate it if you would email me and send me the name of this doctor, as they are NOT treating by ILADS standards and I don't want to be sending others to them for them to have to go through the same things.

​ ​​​​​​​​​​​​​​​​​​​For information on finding a​n ILADS​ trained​ LLMD in your area, you ​​​​​​​​​​​​can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

​​​​You can start a new thread titled something like "Looking for LLMD in the ​​(insert the nearest larger city & state)​​ ​​area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Y​​ou can go to ​​The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
​​​​​​​​www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​

​​ ​​​​​​​​​​​​​​​​​​Y​​ou can email ​​​​the​​ ​​​​Tick-Borne Disease Alliance at​: [email protected]​​​

​​ ​​​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf
Posted 6/12/2017 6:02 PM (GMT 0)

AZez15 said...
Thanks- just enabled it. I'm in Philadelphia

My beloved home town! I don't live there any longer, so sadly I'm not much help in finding you an LLMD, but I know there are several in the area. Hopefully someone will get in touch with you soon.
Posted 6/12/2017 6:10 PM (GMT 0)
I guess I've had this facial tingling for the last 2 months. That's really my only main symptom, besides back and forth headaches. My doctors and neuro were initially searching for a brain/spine issue. All scans came up clear, and that's when went to a blood test.
Posted 6/12/2017 6:23 PM (GMT 0)
you're wasting your time with mainstream doctors/specialists they wouldn't know lyme if one flew out of your mouth and hit em in the head.

you got the lyme bug and maybe some of his friends (co-infections). i wouldn't shrug it off and just deal with the symptoms to just go away that's not how this infection usually works just gets worse and worse. get treated right while you're early into this.

it'll cost you some $$$ to see a lyme certified doctor but boy is it worth it if you can eradicate this thing in short order. i've been on antibiotics for over 2 years and still have symptoms every day.
Posted 6/12/2017 6:33 PM (GMT 0)
Good luck with your treatment. Get with a good llmd, hopefully it will save you alot if heartache...
Posted 6/13/2017 2:59 PM (GMT 0)
AXez15: "I see-- okay. I'm not seeing an ILADS trained LLMD. I just wrote ILADS to get a list of doctors near me. I was only given a prescription for 14 days. I guess I've been having a hard time wrapping my head around this since I don't "feel" sick."

Not "feeling sick" is a blessing. Not treating because of what you currently feel is the curse. If you tested positive, treat it now, treat it aggressively and treat it for 6 weeks beyond any symptoms. The very nature of Lyme & cos is to not disturb your immune system so as to be able to dig deeper into your body. Once it does you might never dislodge it. Lyme never sleeps and it never gives up.
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