Does this still sound like Lyme/coinfections? Have any of you had these symptoms too?

Hi,

I'm not sure how many will remember me. I've been off antibiotics for several months and I was feeling so horrible when I first stopped them, I was scared I would die. Then I gradually started feeling slightly better and able to cope with symptoms and do what I need to do but have never been symptom free.

I have an appointment for my son and I to see a naturopath coming up in July. This is not necessarily a Lyme literate naturopath but they are local and I am hoping it could help us.

I wanted to see what you guys think of my remaining symptoms. These symptoms come and go and rotate around. I can't see a clear pattern to it all other than that my symptoms always always get really bad before and during my periods, sometimes unbearably so.

Symptoms I'm having especially before and during my periods:

-Migrating pains (wrist tendons, arms, right knee, hips, lower back)
-swollen hands when I wake up in the morning, especially the right hand - uncomfortable feeling when bending my swollen fingers and they are only mildly swollen
-pain in finger joints
-getting very hot during sleep towards morning, also got chills the other morning - so I'm always pulling blankets off and on towards morning (& no I am not in menopause or pre menopause). I do not get this at all during the day, it is only when I'm sleeping and only early in the morning, probably about 6am every single morning.
-depression that's unattached to any cause and that comes and goes and can be very severe before bowel movements
-feeling that I'm losing my mind but I don't
-feeling of fear for no reason
-forgetfulness that is uncharacteristic of me
-heightened anxiety
-irritability which is not at all in my nature
-random recollections of parts of dreams I've had years ago and also in more recent years
-nightmares and waking up after nightmares sometimes every few hours
-insomnia, sometimes most of the entire night, have to listen to hypnosis to sleep and this will typically happen a few nights in a row possibly when I'm ovulating
-dry mouth during sleep (only sometimes now)
-slight headaches (not bad) that also come with feelings of pressure in my head, particularly the right side of my brain
-constipation & severe bloating which began after 2 months on antibiotics and which has never resolved even though I stopped the antibiotics after 4.5 months (8 months now), also there is no relief of the bloating, it actually gets worse after bowel movements though you'd think it would get a little better
-fatigue and waking up feeling exhausted (not every day)
-muscle soreness at times in leg muscles
-teeth have become very see through
-pain in right Achilles' tendon that started up randomly about a month or two ago has finally seemed to stop but I'm never sure that it won't return
-muscles twitching, comes and goes
-heart palpitations, comes and goes
-severe pain in my right hip if I roll onto my right side in my sleep and sleep on that hip for a while - the pain wakes me up

I am wondering if any of you have or have had any of my symptoms. Do they sound like Lyme still or more of a coinfection or a few coinfections? What does it all sound like to you? In case it helps, the only thing I tested positive for was Lyme and RMSF and I only was tested through standard CDC labs. I'm still not even sure I had/have RMSF or if it just showed up positive because of the Lyme.

For the bloating I have eliminated so much and yet it has made no change. I am gluten free, dairy free, processed sugar free, eat all organic barely eating any processed foods. There isn't much left that I can even eat with this current diet. I also added bone broth and yet still no change in the bloating and constipation. I am really only eating vegetables, fruits, almonds, walnuts, meat, and fish.

I think I'm definitely better than I was before the antibiotics in many ways and yet much worse in other ways, especially the horrible, severe, uncomfortable, pregnant-looking bloating.

Thank you so much to anyone who reads this. I so wish I didn't still have a need to ask for help like this. I just want to be healthy and I know that there's a completely healthy body underneath all of this just being weighed/run down so badly. I just so badly want a normal life and normal worries and wishes like my friends and family get to have. I'm sure so many of you feel the same way but I feel so alone and scared I will never be well. Thank you so much again, I'm sorry this is so long.

Jrpsf, thank you so much! Do any coinfections jump out specifically when you read the symptoms? Also, why is it so severe before and during my periods? Do you know if periods shut down the immune system? It's a shame if I need treatment mostly during those two weeks every month! And it's sometimes nearly unbearable!!

Thank you so much Babs! I'm so sorry for what you suffer through!!

Hi H Mommy,

I was recently diagnosed last week after 3 months of hell. My biggest complaint is my psychological state which I have been in for the last 2 months. I understand everyone suffers differently but for me the psychiatric lyme occurred very early. I feel as if I am losing my mind, severe depression, anxiety and panic attacks. I just feel wierd. Seriously, it has completely disabled me. Don't get me wrong I have a tendency to worry and have had bouts of anxiety in my life but I always felt normal and was always highly functioning, productive, worked and had hobbies, a happy clown etc...

For example, In January I moved to California after living out of the country for 7 years with no physical or mental issues at all. When returning to the states for the first months of course I had some anxiety it was a life changing event and looking for a job and an apartment. Withing some weeks I found a job and an apartment. My anxiety was more about being a good teacher and having a great class (normal anxieties). Not the anxieties and panic that you feel you need to be institutionalized.

When I got hit with this Lyme the end of March with Flu-like symptoms, then all these other strange symptoms.. By the end of April I literately woke up in this psychological state. It was so bad I could not get out of bed. I would say to myself... "what is wrong with me? Why do I feel so horrible? Why am I losing my mind? Is this a nervous breakdown?" In May I had to quit my job and moved to NY to be with my family. That is not me! And I never quit a job before in my life because I was going crazy. My point is that is not my pattern. My question for you since I noticed you have suffered for about a year is does it get better? Which treatments work? I just want my life back. What do we do?

Post Edited (chrisespo) : 6/25/2017 2:30:06 PM (GMT-6)

When your immune system is lower than it should be the door is open for lyme and many others.
I think it helps to concentrate on both killing the bugs you can ID and trying to figure out what causes were in play to open the door for lyme and others. Such as-heavy metals, parasite, root canal, diet, implants.
FYI- yeast can be the body trying to get rid of metals.
Best of luck

Why did you stop treatments before you were 2 months symptom free?

I too would agree that you need more treatment - those are symptoms that Lyme and company produce - including a serious yeast/fungal infection. Also, be sure to have all of your hormones tested - just to be sure.

It also sounds a lot like yeast (finger joint pain is more yeast than Bb, according to dr. K).
Bacteria usually attack more bigger joints, hips, than fingers, toes (smaller joints).

Bloating etc, could be either food allergies, or candida or who knows what. I'm taking some Chinese herbs and other stuff for my GI tract (just 2 products containing many different natural treatments), and bloating is down to 50% very fast... let's see...

See through teeth = mineral malabsorption. Probably related to the gut again: yeast, or other problems.

Look into HPU / KPU (zinc mineral deficiency,...)

After lyme went dormant, my liver and gut were in bad shape. I had to fight candida badly. My teeth were a wreck. Do you have dead teeth? Heart symptoms, waking up suddenly in the night could be from dead teeth...
My symptoms (heart and insomnia-like symptoms) were solved almost immediately after cavitation surgery.

Yeast and lyme have very similar symptoms. Very similar, hard to distinguish.

It looks to me that you seem very toxic (anxiety, nervousness, etc) usually are toxic symptoms (not always, but for me, about90% of the time those neuro-like symptoms went out after massive doses of binders...

anyway, I hope you find some helps soon!! Sorry to know you're going through all that. Just keep treating, don't let go treating just because lyme went dormant... Try to improve gut health and detox organs, or do detoxing...

I had serious bilateral finger joint pain at the beginning... and the Nero symptoms