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How likely is Galaxy Bartonella (IFA) test a False Positive?

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Posted 6/27/2017 1:11 AM (GMT 0)
I have had 3 different tests for Lyme, and never had a CDC positive, but on each test, I always had 2-4 bands positive and a couple of them were Lyme specific bands (Igenex, LabCorp [spinal fluid], and Quest). Anyways, my main complaint has always been horrible nerve pain and horrible back pain, so myself and world-renowned Dr. thought I should get tested for Bartonella (specifically a Galaxy IFA test).

I did 2 Bart tests. One was with Galaxy and was an IFA test and the other with Igenex and was a FISH. I tested Negative on the Igenex and Positive on the IFA. However, I've always had doubts about my diagnosis and always thought it was something more pain/back related. How likely was the Galaxy test a False Positive?
Posted 6/27/2017 1:47 AM (GMT 0)
I was going to say it's not a false positive but when I went to the Galaxy Lab website - I read that there can be false positives with the IFA test.
Actually surprised me.

Is that what you're referring to?

So have you only treated Lyme? Not Bart and babs?
Posted 6/27/2017 1:50 AM (GMT 0)
You do know that the diagnosis of Lyme as well as Bart and Babs should be a clinical one, right!

And many LLMD's treat all the three B's.

Have you been in treatment for a year or longer?
Posted 6/27/2017 5:15 PM (GMT 0)
"Anyways, my main complaint has always been horrible nerve pain and horrible back pain"

These are common Bart + Lyme symptoms, as when these two infections 'combine' in the body, the usual result is more aggressive Neuro symptoms.

I've had a lot of nerve and back pain due to Lyme and Bart myself.

I would say that trialing treatments for Bart would be the next step. Any response (improvement of symptoms or herxing) will be proof you have the infection(s).
Posted 6/27/2017 6:06 PM (GMT 0)
I "third" Girlie and Trav... But just save the money on more tests and start treating bart aggressively. Maybe take a challenge test to see how you react. There are so many strains of Bart and "bart-like" organisms (BLO's), its tough to get any confident testing. Maybe a good dose of A-Bart to start with before trying Rifampin or the more risky Levaquin and Cipro class ABX.
Posted 6/28/2017 5:33 PM (GMT 0)
Yesterday was my second or third day of Houttuynia Tea (1 g/cup three x per day). I worked in my bed (on my computer) from wake-up (10 am) to 8 pm. I had not gotten up to eat all day. I was not hungry or thirsty. I was tingling and itching on my head, neck, back, etc like usual, but I had severe muscle/bone pain that didn't get bad until like 8 pm. I had 2 servings of Houttuynia that day before this incident. I got up to smoke weed at 8 pm (to help my tingling and itching), and afterward, was in a muscle spasm that put me in horrible, horrible pain.

I needed my girlfriend's help to walk. I felt like I was falling apart. My bones felt brittle, and the pain was in my bones, mucles, and nerves. I sat on the couch and could not move. I felt like I was in a constant state of tension, like was curling into a ball and I could not move. It was one of the worst pains I've ever had and it was downright scary. But, for some reason it didn't happen until I smoked weed (but at the same time, I didnt really get up that day until 8 pm, when I smoked) so it could have been coincidental.

Does this sound like a Bart. herx?
Posted 6/28/2017 5:39 PM (GMT 0)
"Funny" that you had the muscle cramps yesterday - so did I. I have a group of muscles in my back that are cramping (I think it's due to a pinched nerve or a slipped disk)- today it's miserable.

Are you taking the full strength dose? You may want to cut it in half and see how you do.

And, since you didn't get out of bed yesterday - were you detoxing?

It was likely it was a Bart herx, but of course I can't be sure - only you can be. I do know that sounds like my Bart herxes from houttuynia though.

I do hope that today is an easier day for you!
Posted 6/28/2017 10:21 PM (GMT 0)
Please, no Cipro or Levaquin. They can cause a lot more problems than it is worth. Google search fluoroquinolone toxicity. This is my opinion and many others who have been damaged using those antibiotics.

Patty
Posted 6/29/2017 2:28 PM (GMT 0)

summer16 said...
Please, no Cipro or Levaquin. They can cause a lot more problems than it is worth. Google search fluoroquinolone toxicity. This is my opinion and many others who have been damaged using those antibiotics.

My Dr. tried prescribing Levaquin for me and I said NO! I didn't want permanent ligament damage - thanks for letting me know.

Traveler said...
"Funny" that you had the muscle cramps yesterday - so did I. I have a group of muscles in my back that are cramping (I think it's due to a pinched nerve or a slipped disk)- today it's miserable.

Are you taking the full strength dose? You may want to cut it in half and see how you do.

Actually, I felt pretty crappy before I took the Houttynia as well. I have 8 herniated discs (thats right, 8!) and this past weekend I played cornhole and went to a concert (I sat in a recliner of course), but that's a huge weekend for someone in my condition. It could just be that I permanently damaged more nerves, orrrrrrr it could be herxing. I've never herxed soI wouldn't know. If only I didn't do all that crap this past weekend, then I would know for sure it's herxing!
Posted 6/29/2017 3:13 PM (GMT 0)
Rest, relax and detox to allow your body to recover and hopefully you will be feeling okay again in just a few days!

Do be sure to let us know how you are doing!
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