My daughter is suffering

My daughter has many symptoms and was told she is negative two days ago but she tested positive for the markers numbered 58 and 66. The only specialist I can see here in Staten Island Ny does not take our insurance. We are very frustrated. She has terrible aches and pains every day and can't sleep or think straight. We are at our wit's end. I've seen a lot of posts here about the false negatives and possibly putting her on a cyst buster to bring out the antibodies. Please advise! Thanks so much!!

Given your area and symptoms I'd say to keep pursuing. Most lyme docs don't take insurance. After the initial appointment, the cost goes down. We put our max amount in Flexible Spending and it takes some of the financial strain off.

There is an a urine test you can order yourself that tests for lyme & co's - dna connexions. It looks for bacteria dna not antibodies. Cost is $500. If you choose to do it she should get a deep massage or exercise, then collect urine. I think they are now saying to not use first urine after exercise/massage and collect next one.

Hi Geogiagrlnyc!
Welcome to our community! I'm so glad you found us.

You've been given some good information so far, let's see if I can add to that.

I​f ​you haven't ​yet​,​​ it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as​​ ​​it is packed ​​full of ​​important information​​, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​​ ​​​​And, here's another good place to find helpful detoxing rout​​​​​​​​​​​​​​​​​​​​​​​​​​ines​​:​​​​​​ ​​​http://www.tiredoflyme.com/detox-methods.html​​
​

​​​​​​​​​​​​​​​​​​​For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will​​​​​​​​​​​​​​​​​​ need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​​​​​​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​You ​​​​​​ ​​​​​​​​​​​​can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

​​​​​​You can start a new thread titled something like "Looking for LLMD in the ​​(insert the nearest larger city & state)​​ ​​area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Y​​ou can go to ​​The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
​​​​​​​​www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​

​​ ​​​​​​​​​​​​​​​​​​Y​​ou can email ​​​​the​​ ​​​​​​Tick-Borne Disease Alliance at​: [email protected]​
​​

​​ ​​​​​​​​ILADS has their own referral system as well:
​​​​​​​​​​​​​​http://ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf

I too wanted to say how sorry I am that your daughter is suffering.

Lyme light may offer funding ...do the dna connexions test ,no doc needed no blood .welcome best of luck

I'm glad you found us on behalf of your daughter. This community can tell you with a wealth of knowledge to help your daughter heal. Hugs to you both!!