Dear forum members,
I have a problem which I have no answer to, please help if you can.
I have been diagnosed with lyme disease in 2014 march with lyme disease and confections: bartonella, chlamydia, mycoplasma pn. and viruses: EBV , coxackie, herpes viruses.I was extremely sick.I did a 9 month long treatment with Abx. (extreme herxes at the beginning), always had Flagyl or Tini pulsed in each scheme, also did HBOT for 6 days , got to 85-95%, thought it meant being healed, followed up with herbals and relapsed may 2015 quite suddenly.
Restarted treatment with approx. same schemes, tolerated very badly.Stopped treatment after 5 months for a month, cd57 went down to 15, researched here, started per an LLMD that I visited only once doxicycline at 100 mg(finally reached 400mg), Azitro 500 mg 3x/week, artemisin.Per HW forum discovered MCAD symptoms in myself, did MCAD treatment in parallel(omeprazole, ketotifen, claritine, xanax) and had herxes and subsequent got better.Got to my LLMD which I also visit now, who added different herbs, antivirals, Meyer cocktail, supplement and cd57 went up to 59, accordingly I felt better being able to take care of family, work, do pilates and even go on holiday.I felt well during and after treatment for approx. 9 months with mild herxes(which now I see was not good!).Stopped treatment in july 2016(because of treatment for reactivated EBV), relapsed end of september 2017.
Restarted treatment and had extreme herxes, being unfunctional for a long while except work and taking care of my daughter.Changed Abx., herxed, got a little better.Because of herpangina, streptococcus in throat, staphilococus in nose now am dealing with following treatment:
Cefuroxim 2x500mg/day
Minocycline 150 mg/day(have to go up to 200mg)
Rifa 300 mg/day(started it before throat problem, LLMD thought we should keep it and get up after throat treatment)
Antivirals+Takuna+propolis tincture+Colostrum.
Getting info from a scheme from another LLMD who has very high remission rate(does not treat viruses, extremely bad bedside manner, difficult communication) I saw Tinidazole in it.So, started Tinidazole at 500 mg Sat., Sun., for two weeks.Hexes seem to build up every week, last Monday-Thursday morning, every Thursday night, Friday seems to be better, then Tini hits again.
How the herxes look like:week, weepy-crying, head pressure(just this weekend), brain fog, zombie feeling, irritable, see non existent colours on my skin(red/green), image tends to whoosh away, floor looks like sliding- have to jump in an armchair.
Have telephone appointment with current LLMD in one week, but she is against Tini, I will still try to ask about
it(am an MD so can buy Abx. for myself, no problem
).
Questions:
1.do you think I have a high load of cysts after not treating with appropriate cyst busters for such a long time, hence the herxes.So, should I build up with Tini and stand the herx as much as possible, or relapse awaits me around the corner again?
2.I take Burbur Pinella daily and propolis tincture-can I have a disulfiram type reaction to them?Please tell about
your experience.
Thank you in advance, Ioana.