Back stuff/Update

Hey, all. I was hoping to post a Lyme Success story at some point this year but still working on getting better! Since February, I've been feeling pretty awesome. I was struggling with some foot problems the past couple months and I went to 2 different orthopedics because they diagnosed me with 3 different things (the pain kept moving slightly from the bottom of my toe to the ball of my foot, to the joint). I started thinking it must be LYME. I figure if you go to the doctor, do all the PT, do all the stretching, take all the anti-inflammatories and you don't get better - its LYME. HA. One day my foot just stopped hurting. Literally overnight, my foot healed. Then about a week later, I was lying in bed and all of a sudden, I had excruciating back pain for no reason. Nothing was happening, I swear!!! I didn't even roll over. Now my back is giving me problems. I have no disk between L4& L5. I recently met a woman who recovered from Lyme and she said the Lyme ate her disks, so she has the same thing. I went to Ortho for my back, he kind of shrugged because "I'm not that bad" (just the usual weird numbness in bottom of feet). However, after sitting 3 days at a conference, new symptoms: calves feel like the are pulling and I feel like my legs don't want to walk without me thinking about it. I'm heading to chiro to see if something is out. Probably should save my money, but I still like to rule things out. I mean, am I gonna go through life and just say its Lyme every time?

Other than those issues, I'm feeling pretty good. Still doing Buhner herbs and my LDI shots, MCP @ 3 pm and 1 packet of CSM at 3 am when I get up to pee. My tongue is no longer white and I don't have to take epson salt baths anymore so I'm definitely not toxic!!! I have a neuro flare (numbness, neuropathy, etc) for about 2 weeks after my LDI shots, then feel almost normal other than these structural issues. My latest scan said Lyme was still in my nervous system.

I've messed around with stopping the Buhner herbs for a week here and there just to see what happens and my neuro symptoms seems to creep back a bit. Quite the life . Trying to move past and it just drags me right back in...

And I wanted to add that you WILL be posting a success story here. Hopefully soon

Hi cr3ativegirl! glad to hear you are feeling better!

what's LDI?

LDI is low dose immunotherapy.

Thanks everyone and here's hoping for all of us to do better. Last night everything went numb. Felt like in the beginning when I didn't know what was up. I took some Cat's Claw and JK and went back to bed. I'm seeing a my functional med doc/local LLMD today. I'm gonna see if he thinks popping one minocycline a week will help clean up the rest of the cysts. That has to be what is breaking open at this point. This is a test of fortitude for sure.

I get scans using an EDS (Electro-dermal Screening) machine. CSM is Cholestyramine.

I was thinking that since I was continuing to have symptoms that the cysts were opening up and that the minocycline would mop anything that was out. I was on tinidozole/minocylcine pulse for 9 months. I didn't seem to have much problem on it. the question is how long do these cysts hang out. Years!!!


Will keep you posted!

I was just thinking of you yesterday and wondering how you've been. So weird! Was the numbness while sleeping? I get that in spurts too. Jk, CC and andro seemed to keep it at bay. Not sure which one specifically. I stopped the mcp awhile back when doc had me do welchol. I haven't been sleeping great so i'm going back to mcp. Maybe welchol at night - doesn't seem to do much for me.

Maybe you could try a week of mino/tindi a month? Keep us updated what doc suggests!