FROGGY THROAT ANYONE?

Hi everyone,

I haven't been here in FOREVER. I love this board and feel bad I haven't visited. I was a moderator on here some years ago. This board was literally my saving grace when I was first diagnosed back in 2009. I do still suffer from chronic lyme and as a matter of fact am back on doxy after having been off since 2013. However, overall feeling not too bad.

I have been complaining about losing my voice for over a year now. Originally, noticed that I couldn't hit high notes or when I went to scream or yell (like at a concert), nothing would come out. Its to the point now that my throat is froggy.

Just wondering if anyone has had this "symptom" at all as I hate like heck to visit yet another dr. and try to explain my chronic lyme to.

Hmmm - interesting. Thank you.

I have many nerve problems. The reason I am back in treatment was I was afflicted with trigeminal neuralgia facial pain which after a hospitalization the neurologist determined to be attributable to the lyme infection.

Yes treating lyme did put me into remission but the trigeminal was the first indication of a relapse and hence back on the doxy. The doxy does seem to be helping with the TN pain, but I had to add baclofen to the mix for that also so who knows what's really doing the trick.

Maybe revisiting the neuro rather than an ENT. We shall see.

Thanks again and thanks for moderating the forum and helping with all the lyme community.

No I can't backoff the baclofen cuz even if I forget for a few hours, I can feel it.

Yes, I love my LLMD. She is the only who has me back on antibiotics since the TN hospitalization last September. She has suggested seeing an ENT. Ugh. Hate to start with a new dr.

Neurologist was hesitant to attribute to lyme. Only after MRI of brain showed lesions and my previous spinal tap showed no MS, did he agree.

Thank you so much for your reply.

Having battled so many odd symptoms from this bizarre disease, I am so hesitant to wait it out and see what happens rather than start with another dr. who doesn't have a clue about lyme.

Hi springsjean. I am still here and I do remember all the great work you did for this forum. Sad to see you back.

My throat was raspy for quite some time. I still can't sing.

Patty

springsjean,

I lost my voice for 4 months. First it was just froggy and couldn't speak loud or with any force. Then it went to a whisper and then gone, over about a few days time.

This was during my treatment and I was living one long nightmarish herx. For months and months...8 or 9. I never got relief. I went to the ent who did a scope and saw my cords weren't moving. But he said they weren't paralyzed. insert eyebrow raise here....didn't make sense to me. He said not caused by lyme cause lyme only causes joint pain. So right there I knew he was a moron.

Then I switched to dr j in dc. I told him what the ent said about them not moving but not paralyzed, and dr j was like well if they don't move they are paralyzed. He was concerned that I would lose my voice forever. He said it was one of two things in my case....

1. bells palsey of the cranial nerve innervating the voice box nerves.
2. toxins from severe herxing building up on those nerves.

So he had me go off the treatment plan and just do a maintenance dose for 6 weeks to get me stable but to keep the bacteria from damaging the nerve further. I was to go on iv therapy after those 6 weeks. But 3 days shy of the 6 week checkup, my voice just came back...one minute not there and the next there it was...totally normal. I opted out of the iv therapy and they agreed the crisis with my voice was over and we could try a less invasive approach now.

So for me it was all about toxins. Although when I first got sick from lyme 8 years prior to this one of the first symptoms was a froggy voice for about 6 months...I just never lost it then.

So yep, imho, I feel it is a symptom of lyme and also a symptom maybe of needing to detox more. I have the mthfr gene and detoxing is hard for me, so going off the protocol helped me get a handle on it and then I went on a pulsed schedule which has helped me tremendously in not letting it get too bad for my body to handle.

Its been a year this week since I lost my voice and it has been totally normal since it has recovered except once or twice I get the frogginess when I talk and it passes quickly usually within an hour or so.