gluten intolerance

If you're not gluten intolerant - you're not affected adversely then I don't see a problem with eating it.

I did gluten free for awhile when first diagnosed and there was no difference in the way I felt.

My son has Celiac disease, but neither my husband nor I react to it even though there is a hereditary component.

Some people believe that gluten causes inflammation and everyone should avoid it.

mpost said...
because u asked on a lyme forum im going to reply on topic.

bear in mind chronic lyme/ms people are having an explosion of autoimmune reactions due to their immune system struggle to adapt and kill the pathogen.

regular celiac tests do not work here because the antibodies are not the regular transglutaminase ones found in celiac people (tTG).

/www.ncbi.nlm.nih.gov/pubmed/25408772

"CONCLUSIONS:
CD may mimic MS and may be present despite the absence of anti-gliadin, endomysial or transglutaminase antibodies. CD should be considered if there is a gastrointestinal problem, polyneuropathy, and ataxia, even if CSF and MRI findings are suggestive of MS."

so there is some scientific backing for not to eat gluten if u have an autoimmune related disease. now for normal people i dont know if this is so relevant. bread is afterall a wonderful nutrient source. i would agree with you that bread obtained from OVERPROCESSED WHEAT is a cause of trouble, the real bread with impure wheat is much better, but u need to search for a producer, grocery bread is out of question...

Interesting, mpost.

The report did say the person had a history of diarrhea. (Digestive issues are a common reaction to gluten if you have Celiac disease.)
"CD should be considered if there is a gastrointestinal problem, polyneuropathy, and ataxia, even if CSF and MRI findings are suggestive of MS."

This wasn't the case for me. No diarrhea...and gluten free did not help with any of my symptoms..

But, many people with lyme do respond well to a gluten-free diet.

Well, it may have been only 3 months...can't remember...but it was a fair amount of time.

No change in symptoms on gluten free or off it.

On Dr. Rawl's summit he states that gluten is like glue and needs to be avoided to prevent leaky gut.

Patty

That's great that the jaw pain has lessened....hope it's completely gone soon!

astroman said...
GF is pretty easy if the homework is done beforehand.

i would disagree with you here. True GF is NOT easy and GF plus dairy free, now THAT is difficult. The world is full of wheat, and the GF food is usually full of dairy, to compensate to some extent...

I say true GF because if u cheat, then yeah gluten sticks to your intestines for days
www.livestrong.com/article/496690-how-fast-does-gluten-go-through-the-intestines/

so it's enough to cheat once a week to erase any benefits of your gluten free diet altogether.

I keep on finding gluten in everything, when i go out with friends, unless i want to eat chicken with boiled potatoes all my life, there is a constant struggle with restaurants to find out what exactly is in their sauce or how do they serve that dish or this one... They put wheat in everything, so my theory is half of a normal westerner's nutrients come from wheat and probably a quarter from dairy. Maybe im nuts but this is what i see when i look at what my family and friends are eating. Remove 75% of everything they eat and u are left with your diet options ... call that easy

Compared to what I've been through during this 20 years, yes eating clean is easy. I've done it , I do it, I plan ahead......thats my opinion. I dont make excuses. Having MS like symptoms was hard. Waking up blind was hard. Reflux was hard. Pain was hard. Memory was gone and replaced with word searching, and dyslexia, with brain fog. Tremors too.all that was harder than diet change..

Social eating - it takes planning and willpower to say "no thank!".

**For people who benefit from it, its worth it** - Note: The bennefits did not happen overnight for me.

I just pedaled my road bike 25 miles yesterday, not possible last summer or fall.

Maybe my gut will reset itself someday, I have no idea, but right now I'm still healing, at a faster pace than when I didnt eat clean.

I researched my grocery list a month before hand- I have many more afordable options now than ever. way out in the sticks would require more driving to get "clean" diet foods though. Being single would make this easier- but ....then you also do all the work yourself.

I am fully aware not everyone will experience this like I did, but I didnt know till I fully dove in- yes more than just glutan free. Just gluten free would be even easier.

Yes, I was and still am zero dairy, I drink almond milk with no added sweetener. No dairy in anything as an additive either. I do mis cheeze a lot, but not the after effect.

I eat fruit sep from fatty meat. Fatty meat with fruit mutiplies the blood glucose.

Was zero grains for three months and no added sugar - now I minimize the last two. My snack today was nuts and carrots, lunch was grilled chicken breast and veggies.

Did only GF for three months in the distant past and gave up, I didnt do my homework and wasnt ready for more than three months - now I look at it as practice.

As for the OP- I can see this might be harder in India, so I understand.

I was shocked to learn there is no specific test for MS either, I , like most, assumed there was.

Had I not fought off the stiffness and ridgitity through several alternative muscle therapy methods which I learned with the help of others, I might have been DX'd with MS too, and in a wheel chair. If I did nothing and took the minimal advice from conventional Medicine, ya, my life would be pretty much over. They dont DX people till its too late it seems.

So what Dr Wahls really has, we dont really know since we dont really know was MS is. Realy Lyme?.......In some cases, probably.

I really do value all of your opinions--but I still make my own choices. Those choices would probably be different if I felt really sick--but I don't.

In fact, after two weeks of eating medium well (I'll give details below) and a small assortment of herbs that I already had on hand or were easy to get, I feel significantly better.

Diet: the worst it usually gets is typical Indian/Himalayan diet, too much white rice and white flour, not enough veggies and those I get are usually greasy with soy or other PUFA oils, too much salt, some legumes. I avoid sweet tea like the plague it is, may occasionally indulge in other sugars. Because I love the high Himalayan regions for other reasons, I will put up with this for a month or so at a time in order to be there, or occasionally if I have to travel.

The best it gets is low carb and intermittent fasting. The IF is usually that I have a six to eight hour window during which I eat, every day. Low carb, most of what's on my plate is veggies, liberal amounts of coconut oil, ghee, and/or olive oil, and the protein is eggs (unfortunately, I think they're factory farmed), panir which is from local pastured cows, and a pound or two per week of mutton that is local and pastured, which I make into bone broth. Oh, and some hard cheese when I can get it, don't know too much about its history. And one cup of coffee a day. I don't usually stay this strict for more than a month or two at a time.

Somewhere in the middle is where I eat most of the time, with occasional indulgences in sugar, daily use of whole wheat (usually home made, often yeast raised) and tsampa (roasted barley flour) and occasional legumes. Still eat an average of a pound or more of fresh veggies a day.

Obviously, tending toward the better end of the range will help with general health and treating Lyme.

The herbs I've been taking for the past week or so are a mix that I got from a Tibetan doctor, who I think is pretty good--he's the sort that takes your pulse and tells you what is going on with your body before he even asks what your symptoms are. And I have added in (don't tell him, please) ashwagandha, rhodiola, nettle, ginger, cinnamon, and green tea. Today, after about a week of these, it feels like a significant shift to more energy.

http://www.tiredoflyme.com/diet.html

This site also suggests the gluten-casein-sugar free diet for lyme.

I forgot to say, that after many months gluten-free, every time I consume gluten, I feel it in my gut, a sort of discomfort. Like it is much harder to digest, as though the food stayed stuck.

When I was eating spelt, I did not feel that, only after going gluten-free for months I can pin-point that after re-adding gluten containing products.

Post Edited (Jinna) : 7/26/2017 7:44:29 AM (GMT-6)

Spelt.....HU?

/authoritynutrition.com/what-is-spelt/ :

".................Since they are close relatives, spelt and wheat have similar nutritional profiles and both contain gluten. Spelt should therefore be avoided on a gluten-free diet (2, 3)"