Healed of Lyme or darn close

I am a new guy here posting, I have posted a couple of times before but not many. I have seen a couple LLMD and its believed I have Lyme. I have a protocol to follow comprised of ABX. Mino, Azith, Omnicef, pulsing. I am not a pill taker before all this and hate to take pills, so as of yet I haven't started. Yes I am scared.... My Dr. joked and said I got the wrong disease if I hate to take pills.
Even though I haven't posted here much I have read on here quite a bit until frustration sets in. Please don't take this the wrong way, I beg you. But I see a post on something I want to read about and there are 50 comments, 45 of which have nothing to do with the topic of the post. I ask PLEASE no commentary just answers and again I am not trying to be rude. I just want to be able to compile data and form an opinion.
If you would please just post on this if you are 90% or better, complete remission of symptoms or even cured if you are so bold. You may copy and past the questions below with your answers.

1. What avenue you took to reach the 90% point- ABX or Natural
2. What those ABX were or Naturals were
3. How long you were on them and what dosage
4. I have elevated ANA has anyone else had this and it went back to normal after remission. My numbers vary from 1:40 to 1:160 to even normal once over the last 4 years.
5. Every time I work out my CPK levels go high 3 to 6000. They come back down quickly "a few days" with no damage but none the less. Has anyone else experienced this. Numbers only elevated after working out
6. Thyroid has also been elevated but not much at least not enough for meds. Just the thyroid peroxidase around 70. TSH and all other markers normal. Went hyper once but came back to normal in a couple weeks. Anyone else have this and did it go back to normal after therapy or remission.

Again thank you in advance and I hope I didn't rub anyone the wrong way.

Not really interested in Detox information at this point, I will start another thread later for that.

Welcome back GNSLDay,
I am 90 % and a bit more healed from Neuro lyme.

Use ABX and Buhner protocols.

Doxy-4 months of 400mg 2Xday

then,

Azithrimicin 250mg 1Xday, Malorone250mg 2Xday going on 6 months

added to the above:

Bactrim DS800/160mg 2Xday going on 3 months

Started Buhner core protocol Sept 2016 , added neuroborreliosis Nov 2016, added Bartonella protocol May 2017
All Buhner protocols I am only on roughly half the required dosages, except for Bartonella, almost full dosing.

I cant help with other questions not experienced about those issues.

I have to say, I hope you are able to find the treatment path you are seeking or the answers that will help you move forward and begin healing.
Take care, Jo

Doxy only for 4 months when first clinically diagnosed.

Then stopped doxy and began others. no pulsing.

I am still on malarone, Bactrim, azith and Buhner lyme , bartonella protocol, and neuro protocol.

I had pretty severe neuro lyme.

Take care, Jo

Just over 1 year to date sick and I'm about 90-95%. That is up from a baseline of about 20% and taking a years worth of disability.

I embalmed myself with a stupid amount of antibiotics the first six months, which I regret.

In my opinion my recovery is based on the initial abx to stop the infection. A very optimistic and positive mindset. It's so easy to get inundated with lyme lyme lyme 24/7, the best thing I ever did was reducing my lyme activity throughout the day and just pushing for a normal life. I eat mostly healthy, but I also don't let that control my life. If I wanted coffee, ice cream, sugar or fruit I would have it. The gym was also very helpful for me.

Goodluck, people very regularly beat lyme, for some it just takes a while.

First month was doxy 100mg twice a day, then amoxi 500mg x 3/day, and finally IV Rocephin for a month. I wish I realized this at the time, but I now believe any active infection had been stopped at that point. That was all with non LLMD ID.

When I started seeing LLMD's it was the standard/typical dose of mino, rifampin, certain etc.

I am not treating what so ever. I go to the gym daily, that's not for lyme, it's for a healthy lifestyle.

I am sorry to hear that your children are sick. As a father it would crush me not to be able to help. My thoughts are with you.
I know its only been two days since I posted but I really was hoping for more "hey I am cured or darn close stories" this doesn't make me feel to optimistic.

If you don't treat you most likely will never get better.


There are many success stories, and I believe there is hope to get 100 %.

Treatment is not always fast or easy, or comfortable but it what is needed.

You might get lucky and have some good days but I personally wouldn't want to take he risk.

Take care and if you choose to treat we are here fro support and a shoulder to lean on.

Take care, Jo

oh are you afraid of the medicine itself or more worried about herxing/reactions?


Maybe you could start very slow and ease your way into treating. That way you have a chance to build confidence and feel more comfortable treating.

I wish you the best and hope you can figure out a way to overcome this.

Sincerely, JO

All I have read says ABX are getting more results as first line to get the issue under control somewhat then follow up with naturals.
If you are doing naturals and ABX how are you coming along?

Bluelyme so happy to hear you're doing much better! I remember when you were struggling SO HAPPY FOR YOU

I think you are the same guy that posted in lymenet. I answered you there.

I'm fully healed. So is my daughter. for 8 years now.

Fully alternative, no drug practically.

I only come back because someone who was fully healed helped me in lymenet. Without her, I would be either dead or extremely ill. So it's my sort of pay-back to the community.

I really almost died, my daughter almost got handicapped with encephalitis (TBE), and the only help I got were from people living thousands of miles from me, through the forums.

So I owe you guys my life, my daughter's life. that's why I post even if I don't treat lyme any more for 8+ years.

Ok... I'm at bout 90% healed, and have been treating with ABX since March 2010. I switched LLMDs a year later to get more aggressive treatment for co-infections. I never had a positive Lyme, Babs or Bart test but have treated all three, plus for virals and parasites. I did have a SPECT that showed brain function loss associated with Lyme disease. My symptoms were both joint pain/stiffness and neuro. Joints resolved first, but I still have lingering neuro.

I started to introduce Buhner core herbs gradually in 2013 to present. I did reach 90% in 2015 and stopped ABX in March, only to relapse a few months later, and then restarted ABX.

Here's just the facts on all the ABX combos I've tried in reverse order. I'll refrain from listing all the supplements I take now or have tried in the past. I do list Crypto in with my ABX since that was Rx strength from compounding pharmacy.

7/24/17 – present: Tetra, Diflucan, Alinia 2 week on/3 week off pulse
7/1/17 – 7/9/17: Tetra 2 week pulse, ran out 7/9/17
6/14/17 – 6/30/17: Tetra, Alinia (ran-out) 2 week on/off pulse
5/27/17 – 6/13/17: Tetra, Diflucan, Alinia 2 week on/off pulse
5/1/17 – 5/26/17: Tetra, Diflucan, Alinia 2 week on/off pulse, continue Famvir full time
4/17/17 to 4/30/17: Ceftin and Bactrim full time after new bite, added Tetracyline, continued Famvir
11/24/16 to 4/16/17: Pulse Ceftin and Bactrim 2 weeks on/off. Added Famvir fulltime.
9/24/16 to 11/23/16: Pulse Ceftin and Bactrim 2 weeks on/off.
7/28/16 to 9/23/16: Pulse Ceftin, Bactrim, Diflucan 2 weeks on/off.
7/7/16 to 7/27/16: Pulse Ceftin and Bactrim 2 weeks on/off. No refills left for Alinia
5/9/16 to 7/6/16: Pulse Ceftin and Bactrim 2 weeks on/off, Alinia full time
2/29/16 to 5/7/16: Nystatin, Cipro, and Plaquenil full time; pulse Ceftin 2 weeks on/off
2/15/16 to 2/28/16: Crypto, Nystatin, Cipro, Tetracycline, Plaquenil full time, no pulse.
12/7/15 to 2/14/16: Crypto, Nystatin, Cipro, Tetracycline, Plaquenil. ABX pulsed 2 weeks on/off
11/26/15 to 12/6/15:Cryptolepis, Nystatin
9/23/15 to 11/25/15:Cryptolepis, Cipro, Tetracycline, Plaquenil, Nystatin (liquid)
7/31/15 to 9/17/15: Cryptolepis, Cipro, Minocycline
7/18/15 to 7/30/15: Cryptolepis, Cipro
5/21/15 to 7/17/15: Cryptolepis
4/16/15 to 5/15/15: Diflucan
3/19/15 to 4/15/15: Nystatin
2/1/15 to 3/18/15: Minocycline, Nystatin
12/17/14 to 2/1/15: Minocycline, Plaquenil, Nystatin
12/09/14 to 12/16/14: Plaquenil, Nystatin,
11/19/14 to 12/8/14: Plaquenil, Nystatin, Levaquin
11/12/14 to 11/18/14: Plaquenil, Nystatin, Minocycline
10/10/14 to 11/11/14: Plaquenil, Nystatin, Diflucan
9/8/14 to 10/9/14: Minocycline, Plaquenil, Nystatin
8/4/14 to 9/7/14: Minocycline, Plaquenil, Nystatin, Valtrex
7/8/14 to 8/3/14: Plaquenil, Nystatin, Valtrex
6/8/14 to 7/7/14: Minocycline, Plaquenil, Nystatin, Valtrex
4/19/14 to 6/7/14: Minocycline, Plaquenil, Nystatin
4/2/14 to 4/18/14: Doxycycline, Plaquenil, Nystatin
3/10/15 to 4/1/14: Coartem (last dose taken 3/26/14 am), Nystatin
2/6/14 to 3/6/14: Doxycycline, Plaquenil, Rifampin, Nystatin
11/23/13 to 2/5/14: Minocycline, Plaquenil, Rifampin, Nystatin
11/9/13 to 11/22/13: Minocycline, Plaquenil, Rifampin
10/30/13 to 11/4/13: Minocycline, Plaquenil, Parastroy,
10/20/13 to 10/29/13:Minocycline, Parastroy
10/11/13 to10/19/13: Diflucan, Parastroy
9/21/13 to 10/6/13: Coartem
8/16/13 to 9/20/13: Oral Minocycline, Bactrim DS, Alinia, Diflucan
5/23/13 to 8/15/13: Oral Minocycline, Bactrim DS, Tindamax, Alinia
4/1/13 to 5/22/13: Oral Minocycline, Bactrim DS, Tindamax
3/8/13 to 3/30/13: IV Doxycycline, Bactrim DS, Tindamax
2/5/13 to 3/7/13: Zithromax, IV Doxycycline, Mepron x2, Bactrim DS, Tindamax
1/21/13 to 2/5/13: Zithromax, IV Doxycycline, Actigall, Mepron x2, Bactrim DS, Tindamax
10/29/12 to 1/20/13: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron x2, Bactrim DS, Tindamax
9/12/12 to 10/29/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron x2, Bactrim DS
8/25/12 to 9/11/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron x2
6/30/12 to 8/24/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron x2, Diflucan
6/22/12 to 6/29/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron x2
4/19/12 to 6/21/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron, Bactrim DS
2/27/12 to 4/19/12: Zithromax, IV Rocephin (2x/4 days/wk), Actigall, Mepron
2/21/12 to 2/26/12: Zithromax, IV Rocephin (2x/4 days/wk, 3 days off pulse), Actigall, Rifampin
1/17/12 to 2/20/12: Zithromax, IV Rocephin (1x/day), Actigall, Rifampin
12/19/11 to 1/16/12: Zithromax, IV Rocephin (1x/day), Actigall
10/11/11 to 12/9/11: Zithromax, Doxycycline, Rifampin (STOPPED all due to elevated ALT/AST)
9/18/11 to 10/11/11: Zithromax, Augmentin, Rifampin
8/24/11 to 9/17/11: Zithromax, Augmentin, Mepron
6/29/11 to 8/23/11: Zithromax, Suprax, Mepron
5/10/11 to 6/28/11: Zithromax, Omnicef, Mepron
3/31/11 to 5/9/11: Zithromax, Omnicef
3/25/11 to 3/30/11: Biaxin, Plaquenil
3/18/11 to 3/24/11: Biaxin, Plaquenil, Diflucan
3/8/11 to 3/17/11: Biaxin, Plaquenil
11/4/10 to 3/7/11: Tetracycline
3/11/10 to 11/3/10: Biaxin, Plaquenil

get use to taking pills... or you may end up on IV

Post Edited (tickbite666) : 7/26/2017 10:31:21 AM (GMT-6)

GNSLDay said...
Cake girl..Are you cured or close?? If so what did you do or is your treatment now??
It would be nice if people who were healed and living their lives would create a FB page stating that and what they did to get there and maybe a section on here with a link to their page. They wouldn't have to take questions or update but it would sure add some hope to those of us on the journey. Thanks for the link I will read over

goshawk thank you for the offer of support and a shoulder it is appreciated.

There is a group on FB called "lyme success stories"