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Any Lymes literate doctors in Oregon?

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Posted 11/10/2013 1:39 AM (GMT 0)
Would love to hear about any Lyme MD's in Oregon. This last year I took the IGeneX test and was found positive. I do not even know if it is possible in this state to find help. I have gone thru two doctors in the Providence health plan. They do not believe that Lymes is even in this state!
Any help would be greatly appreciated and passed on.
Posted 11/10/2013 7:09 AM (GMT 0)
We can't post doctor's names here, so you'll need to enable your email to receive names. I can give you 2. Thanks.
Posted 11/10/2013 5:42 PM (GMT 0)
I should've asked what part of the state you're in also. The 2 I know about are in the Portland area.
Posted 11/10/2013 7:18 PM (GMT 0)
Thank you so much Garden Peace for getting back to me. I live in Sellwood. So Portland is perfect. Not sure how I enable my emails to receive names?
Posted 11/10/2013 11:59 PM (GMT 0)
If you will go to your profile, select "edit profile". Then scroll down just a bit until you see "show my email" - and select that. Be sure to scroll down to the bottom of the page and click the "submit" button to save your preferences! :-)
Posted 11/11/2013 2:08 AM (GMT 0)
Thanks, I enabled my my e-mail.
Posted 11/11/2013 3:54 PM (GMT 0)
Great! :-) Now you can get emails from other members!!
Posted 11/11/2013 6:17 PM (GMT 0)
I just sent you an email. Hope it helps!
Posted 1/18/2014 12:54 PM (GMT 0)
Hi all,

Need help finding a doctor ASAP!

I had to leave grad school, work, family, friends, everything, to move to Massachusetts by myself for insurance & treatment back in August of 2011, when I began getting extremely ill & could no longer continue with anything I had going in life (couldn't walk, was a marriage & family therapist, though was experiencing depersonalization, auditory & visual hallucinations, etc.).

I just officially made the decision to return home, though verifying that there won't be any gaps in insurance is my greatest concern. I have a portacatheter still from treatment that I am not even that worried if I miss a month or so of care. My biggest concern is that I'm on Fentanyl, which needs to be refilled every 30 days. Somehow I need to see my Pain Management Doctor here, leave on the day I get it refilled, drive across the country (I'm planning at least 8 days, weather dependent), see a new, ideally Lyme-knowledgeable PCP, get a referral to another Pain Doc., then get another Fentanyl script all within 30 days. I've applied for Oregon insurance stating that I was already a resident & unemployed (which I will be there, though I will not be until the day I leave). I am very concerned about finding a Lyme-literate doctor, since I originally had to come out here since this I wasn't able to find this years ago & had to come across the country to get someone who knew what was going on. I think I need at least a doctor to start with - If someone doesn't know anything about the insurance thing, I can at least call around to see who does or does not accept out of pocket in the case that I do not have insurance set up when I first arrive because I cannot be going into the ER every 3 days for the patch...

I saw the thing about enabling email addresses to send names - I tried to enable that person (Garden Peace) directly, but was unable...

Sorry for the detailed stuff, I am just so desperate to get out of here with an unstable living situation for the time being & having given my notice at work. Additionally I am just so so ready to go home!!!

Lisa
Posted 1/18/2014 8:24 PM (GMT 0)
Hi Lisa and welcome to the forum! It's only your own email you can enable and you already did that. I just emailed the support group leader to get the list of all the Doctors who work with Lyme patients, so I'll email it to you when I get it. There is only one LLMD in the area, but he isn't taking new patients at this time. There is a LLND in Tigard. You might have to go to Seattle if you need a LLMD.

The Lyme support group meets on the 2nd Sunday of each month, so you might want to come so you can be around others in the area who have Lyme disease and ask questions and learn from others.

Is there anyone that could travel with you to help with the driving? That would be nice if there is.

Here's the support group details.
Time: 1-3pm, 2nd Sunday of Each Month

location: Legacy Good Samaritan Hospital, 1040 NW 22nd Ave, Portland (2nd Floor)
Across the street from the Hospital's main entrance. There is a parking garage behind this building where you can park and a doorway in the garage on the first level that connects to the building. We will be meeting in the second floor conference room. There is an elevator if you can not take stairs and signs will posted.

As a reminder, please refrain from wearing scented perfumes, colognes, lotions etc. the day of the meeting. Many individuals with Lyme also deal with chemical sensitivities.

I wish you the best.
Posted 1/18/2014 11:19 PM (GMT 0)
I live in the Portland metro area Thaine. If you would like, you can email me too. My husband has not seen a LLMD, but he has had success with alternative therapies at very little cost to us. As Garden mentioned there is a Portland Lyme support group that we have not been to yet. Maybe you would be interested in checking that out too.

Post Edited (Cat53) : 1/19/2014 3:06:04 PM (GMT-7)

Posted 1/19/2014 10:31 PM (GMT 0)
I would love to check out the group - Thanks so much. I don't need a specialist so much, as I do have one in New York that will suffice for now, though I do need a doctor that will refer me to a pain management specialist immediately, so, hopefully, has some sense of that Lyme exists. Does anyone here have a PCP who does listen to them & recognize the Lyme as a diagnosis?

Thank you all for the advice - I look forward to meeting you all at the group.

And regarding the trip home, unfortunately, I do not have any companion. Lots of coffee, as I can hardly stay awake through a normal day with my usual lethargy ;p But I made it out here on my own, so...

Lisa
Posted 1/20/2014 3:25 AM (GMT 0)
That's too bad you don't have someone to go with you on your trip back. Are you leaving in the near future? If so, be safe.
Posted 1/21/2014 3:27 PM (GMT 0)
You can always ask around once you get to the meeting to see if you can't coordinate with others that may live near you. You could meet somewhere and make the drive together.
Posted 1/21/2014 10:50 PM (GMT 0)
Lisa, My husband and I are 20 min. west of Portland. I hope we get a chance to meet you at the next meeting.....and yes Garden, we are going to try to get there this time. We would have gone to the January meeting if I had gotten sick.
Posted 7/4/2015 12:15 AM (GMT 0)
I just moved to the Medford/Ashland, Oregon area, and am looking for a Primary Care Physician who is Lyme savvy. I lean to the Naturopathic side, but can possibly get a referral from a PCP.

Just moved from Portland. There were 3 female Naturopaths there that treated Lyme, not covered by my insurance. I traveled to see Dr. Cowden after reading about his success, and my symptoms are 80-90% gone. I plan to finish up with MMS. The tricky thing with this Borrelia, is it comes with so many possible co-infections, and so is very individual.

I made a record on my blog at www.leangreencafe.blogspot.com and just updated my Lyme journey.
Posted 7/26/2017 7:16 PM (GMT 0)
Please, anyone. Desperately seeking medical help for my wife. We live in Eugene, Oregon. She's suffered for almost a decade now. Just recently got on the lyme path. Please send me any names you can. In the Northwest would be very helpful. Really need a LLMD vs a LLND.
Posted 7/26/2017 7:17 PM (GMT 0)
Hey Steve - I did respond to your other post on another thread.

I do have some names listed for Oregon...if you want them, send me an email.

Although, I realize members' recommendations are best.
Posted 7/26/2017 7:19 PM (GMT 0)
Depending on how far you're willing to drive...I know of a LLMD in Seattle. would that be about 4 hour drive?

And the one in Seattle - is very experienced - I know of many people from my Province (in Canada) that see him.
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