Celiac Disease and Lyme Disease

Hello, I was wondering how many of you were diagnosed with Celiac Disease after your Lyme Disease diagnosis?

I just received a diagnosis of Celiac Disease last week. My head is still reeling from it and how much it will change my life. But am happy that maybe now I will finally get healthy. I have read in personal posts that Lyme Disease may active Celiac Disease if you are genetically predisposed to it but can't seem to find that anywhere in professional organizations on Celiac Disease or Lyme Disease. Has anyone else read that as well?

My new LLMD was the one who tested for it but was lacking in providing any patient education. She has many positives, but also many negatives in terms of providing much patient education and organization. I've ordered some books and am reading all I can about it but am not sure if I should seek out a gastroenterologist? I am not a real fan of doing that because the ones I have been too have been kind of jerks, but I will if it's advised. She didn't say anything about it, but as I have learned on my Lyme journey, I need to be my own advocate. Trust but verify.

Any suggestions or advice are much appreciated from those of you who are in the same boat as me. Thanks much.

Celiac is a genetic disease...but often it takes a trigger.

For our son it was most likely pyloric stenosis surgery when he was 5 weeks old.

maybe lyme was the trigger for you.

Either way - it doesn't matter how or why - if you have it, you need to be off gluten.

Thanks everyone, I did test high but I'm not sure exactly what tests were done. I haven't been able to open them up in their portal yet. I'm not sure why she tested me because I don't have any symptoms that seem like Celiac, but I have learned that many are the same as Lyme. I just wasn't getting better so I switched LLMD's and she ran a ton of tests which lead to my diagnosis.

Hoagie, I thought the same thing and then I learned that you need to make sure all of your supplements and prescriptions don't have gluten fillers. I'm on four and they are all generic so the pharmacy has to research them for me. It's more than just wheat too. Grains containing gluten – wheat varieties like spelt, kamut, farro and durum, plus products like bulgar and semolina), barley, rye, triticale and oats* unless oats say Gluten Free. It's also making sure restaurants have gluten free options that are not cross contaminated. We're invited over to someone's house on Thursday and it's been awful trying to help them plan their menu. I tried to tell them that I could just bring my own food, but they are being very gracious. On top of CD I have a ton of food allergies. It just all makes my head spin. I am happy that maybe now I will start to feel better.

I just wanted to know if the two are connected so I can let others know about it if they have Lyme and aren't getting better. It helps if you have a link to show them. One of my goals since getting Lyme is to educate people so they don't have to go through all that I have been through.

Thanks Girlie!

Yes try to get a copy of all test results for your records. Someone on this forum suggested that some of us with Lyme do not have the traditional form of Celiac.

They indicated that the probiotic that is needed to process gluten has been depleted from your system.

It will be a long time before you will be able to find out for sure.

I was not diagnosed, but for close to 2 years, eating any gluten brought horrible symptoms with it.

Now that I have made substantial progress, I can tolerate some gluten products. I do not go overboard with it.

This may not be a typical outcome.