Just got the "all clear" (for now)!

I've been off antibiotics for about a month now, and, while it seemed at first symptoms were coming back, I really turned a corner and have been feeling much better! My shoulders unfroze, pain is at a 2/3, anxiety is gone, and I feel pretty clear-headed.

Well, my LLMD just called me to see how I was doing (which is strange timing because I was going to call his office today to see if he still wanted to treat me). He said since I'm doing so much better that he doesn't want to change anything or add anything right now! He said to call him if I start feeling worse but hopefully I'll just keep feeling better.

I can't stop crying...I'm so happy but terrified it will come back. (I still have some minor issues, mostly collateral damage like making sure my teeth are ok, sticking to a hypoglycemic diet, etc)

Do you think this is solid advice? I was on abx for exactly a year. Now, I'm just on a ton of vitamins, some herbal tinctures, and some detox stuff. I don't feel like I'm fighting an infection anymore (not sure if that makes sense).

This is all so much to process at once!

So glad to hear the news and its nice to have someone have happy tears for a change!!!

I thinks its smart to keep up your routine of detoxing, diet,herbals etc. it can only help.

Take care and thanks for the update and if possible visit again in the future, it really helps others to hear success stories.


jo

Happy for you pmm. Live healthy and enjoy your life 😊

pmm73 - Wonderful news that you're doing so well!



"Do you think this is solid advice?" As long as you don't have any symptoms that indicate active infection - then YES!

Celebrate!

I think it means 2 or 3 out of 10 (pain level)

Great news, and congratulations. ANy improvement is good to hear about. I hope we continue to see a lot more posts like this. It can give us all a lot of hope when treating these diseases. Many LLMD's use the 1 year mark as an important yard stick in treatment, and most seem to expect some good improvement after the 1 year mark. In fact most of the LLMDs I have spoken with say that in most cases, reaching remission takes about a year on average.

All you can do is listen to your body, as you probably know, there is no test that can prove treatment success and the only real endpoint to therapy is the resolution of your symptoms and how you feel.

It sounds like you have had some noticeable improvement, and the less time that you have to be dependent on treatment, the better. Ultimately the goal is get off of treatment eventually and allow your body's natural immune system to take over and return you to homeostasis.

I have asked a lot of people who have gotten to remission from Lyme "how did you know when you were better" and many describe it is a gradual process where symptoms slowly improved until one day they noticed the symptoms were gone. A lot of them describe it as a gut feeling where they just knew they were better. Only you know your health and how you felt before Lyme, and this is all you can really base it on

I think your doctor's advice is good. You want to wrap things up, and if your doing well there is no need to stir the pot too much. ILADS and some others suggest to keep treating two months after all symptoms are gone, But I don't think this is always necessary. You don't want to be in a situation where you are constantly treating with no end in sight if you are feeling better.

I also think supportive measures are a good idea. Eat right and take steps to improve your health naturally. Get active again, but dont try to do too much too fast.

Good luck, sounds like you are on the right track. Do keep us updated and tell us about your treatment plan and what you feel helped and didnt help. This type of info can be very helpful to other members who are struggling.

This is such good news. Just don't go out and celebrate with a lot of sugar or alcohol. Keep being healthy for a few more months before you test those waters. LOL

You seem to be proof that the abx took you to a better place and with the supportive methods you've been using to help your body, it's at a place it can take over on it's own. Keep up the good work, don't push your activities too much, continue to be aware that your body and mind are still in recovery and trying to build reserves.

This is so awesome. Glad I found this thread and read it pmm!

Yay PMM!!!!!

I'm doing a happy dance for you!

Enjoy.

VCL