Daughter Showing symptoms Need a Pediatric DR. that is llmd - Detroit

Looking for some guidance on where to get some help for my daughter. She was diagnosed at Bauemont with Aseptic Meningitis and discharged last week weds after going in on monday. We believe she is about 15 days from infection and I know this is time sensitive. She has been put on azithromycin 250mg bty her pediatrician because as of this monday we went in because of the rashes developed and she developed Bells Palsy. She s off of sugar and only eating veggies fruit and chicken right now. Diet help also welcome.
Cheers
Dennis

Hopefully you can find and see an LLMD before her course of antibiotics is up. Try and get at least 30 days if she is tolerating it and you can't get an appointment quickly. Don't forget to give her probiotics 2 hours away from her antibiotics and include a strain with s. boullardi to prevent c-diff. Yogurt and pickled foods are great too if she will eat them.

If she will tolerate a warm bath with epsom salts, it can be soothing for aches and pains.

You may see new symptoms or a worsening of current ones - sounds like you are already. I suggest keeping a simple spreadsheet to track basics including temperature (high or low or none), symptoms and a ranking of how she is that day - 1-5 or something. This is useful when you do get into an LLMD. It all blurs together after awhile.

Hope she's on the mend soon.

I started a website which should show in my tag for parents. It has lots of great links. All the folks here are so helpful so do come back with your questions.

Thank you, I found out about ILADS.org last night and submitted a request. I have also looked at the google site and contacted one of those DR. s . I have now submitted a request on Lyme association.
She did have a test done last week that was sent to the MAYO clinic to test for lyme and it came back negative. I am getting a feeling there is a big divide on schools of thought with Lyme. Any one have any opinions regarding MAYO clinic Lyme tests. from what I understand it may have been to early to detect as well.. Any help is welcome thank you.

Goshawk I did send an email to Girlie as well. is there something that you see that my email is not enabled. sorry been trying to figure it out but not seeing how to mend that situation.

Hi dennishayesiv - welcome!

Sorry for the reason you're here...I have been away from home today...but will check my emails in a few minutes.


I suggest you find a Pediatric LLMD - a very experienced one (based on her symptoms)

I doubt if the Mayo clinic lyme tests are worthy. So, don't believe the negative result, if she was bit and now has these symptoms...it's lyme.

I will email you some information.

So we got to meet with a LLMD today. Was surprised that there was no urgency as far as antibiotics. She is on azithromycine from her primary but I thought there may be a recommendation to change. Any thoughts appreciated. Was also given cat's claw. Which is a suppliment/homeopathic for killing off spirochetes right?

She s scheduled to see him in 3 weeks. Our primary said she would extend it before. She s only on 250mg at this point. Any ideas how long she should run on with the antibiotics?

dennishayesiv said...
She s scheduled to see him in 3 weeks. Our primary said she would extend it before. She s only on 250mg at this point. Any ideas how long she should run on with the antibiotics?

Treat until symptom free plus an additional 4 -8 weeks.

Has she had any improvement since starting the abx?

The no-sugar diet is good. Sometime gluten free is also recommended.

Is she taking probiotics - minimum 2 hours after her antibiotics? This is really important.

And detoxing - when the bacteria dies-off - it creates toxins causing inflammation resulting in an increase in symptoms and sometimes additional ones appear (herx)
Detoxing can help greatly with minimizing these herx responses.

- Make sure she's drinking lots of water
- Squeeze some fresh lemon juice into some glasses (have her use a straw and rinse her mouth in clear water after to prevent damaging tooth enamel
- warm epsom salt baths
- Take something to support her liver - eg. Milk thistle seed extract

Here is a link to more detox ideas.

www.tiredoflyme.com/detox-methods.html

Dont bombard her with too many at once. Have her start with a few...and every couple of days, add in another detox.

dennishayesiv said...
Thank you, this is some helpful information.
She has been drinking water with lemon and doing Epsom foot baths. have not heard of the milk thistle for liver support. She is taking probiotics 2 hrs after the antibiotics. As far as improvement the rash went away. still dealing with the Bells Palsy, dizziness and being lethargic. She had a hard time sleeping the night before last, Last night she was at her moms so I am not sure about that. will know soon.

That's good about the rash...hopefully the rest of her symptoms will follow suit.


Hang in there Dad - your daughter is fortunate to have you and her mother looking after her so well.