Mino for start

expect at least a few months with MUCH WORSE symptoms that he ever had, it is very possible you could end up in ER with him his condition will deteriorate greatly in the first phase of the treatment, that is called a herxheimer reaction which is exactly what he is experiencing now on a daily basis, but much much worse.

i was warned about the mino both by the doctor and by patients that took it, but i did not think it will be THAT bad, i ended up in ER and thought i am going to die. My heart was bating erratic, was not able to walk up stairs, i had terrible brain pressure and pain, half of my face started to go numb.... i don't want to scare you but mino is a very very rough antibiotic, but it is among the best for this disease.

after a couple of very rough months, things should start to get easier and easier and symptoms will start do disappear one by one.

also i hope your dad has an LLMD and will provide him with more than just mino, mono-therapy (just one antibiotic) when u are chronic means 90% failure guaranteed. i'll search for the trials if u don't believe me. long term he needs more than just mino if he had lyme for a long time...

George - If I'm remembering correctly - your Dad has some severe symptoms (wasn't he diagnosed with ALS?)

If that's the case...it will take awhile before he sees much improvement...and he can have some worsening of symptoms.

Make sure you have your Dad detoxing...this is important...the killing of the bacteria is producing endotoxins - which results in inflammation and worsening of the current symptoms.

Is he taking a binder?

Is he taking probiotics daily?

What else for detox? epsom salt foot baths?

George T. said...
Mpost-
Thanks for your reply.. after of 2 months you was feeling better from the mino.. But what about your previous symptoms before start with mino?

the mino regimen for me was the 4th one, i took one month of azythro+tinidazole, one levofloxacin+rifampin, one doxy +cipro+tinidazole then mino+cipro+tinidazole, then clindamycin+septra DS+tinidazole, so mino was not the first nor the last, but it was by far the worst of them, and it was the mino itself not the rest of the antibiotics, that made this so bad.

after all these antibiotics, i felt horrible and even 1 month after i stopped them i was still in really bad shape. recovery is swift for people that have early infection, not so with us that have missed the tick for years.

George T. said...
Mpost-
was the same or was better? We dont have an LLMD in Greece.. Doctors here dont even believe in Lyme..

tell them it's ok not to believe in lyme, lyme is not a religion...

to date there are over 700 peer reviewed papers about chronic lyme, so u can give them a print of this
www.ilads.org/ilads_news/wp-content/uploads/2017/02/CLDList-ILADS.pdf

George T. said...

He will start Rifadin also in next week (i hope).. what ER is??

it's where the ambulance or a friend takes u to save your life
/en.wikipedia.org/wiki/Emergency_department


BTW u should be aware mino can cause intracranial hypertension, so watch if he develops vision loss or serious head/brain/eye symptoms, and talk to your doctor immediately.

Now you scared me.. Mpost- we dont have an LLMD and i cant find doctors here that spesialized on lyme.. the (best one) in Greece told me to take an antibiotic for 1 month.. and this was not even oral.. How you feld and you go on intracranial hypertension?? i convinse my dad to start antibiotics after a long time.. if he will not feel a bit better after of 2 months for example i dont think he will continues to take it.. And if this is so dangerous maybe i have to stop it? Your situation now is better from this before you start antibiotics?
Girlie- yes i can wait but if mino is so dangerous maybe i will stop it? He was taking Rifadin also for tuberculosis before 25 years ago for 3 months..

if i make the dose 1 x 100mg the day will be better for start?

how i will understand if has serious reacthion from mino?

I found this on intracranial hypertension from minocycline use.

Looks like it resolved in almost all cases after discontinuation if mino.

Nausea and headaches were symptoms discussed.

apps.who.int/medicinedocs/en/d/Js4953e/4.3.html#Js4953e.4.3

mpost said...
mino is a very important antibiotic for lyme because it gets absorbed in the brain very well, if y have neuro symptoms and your doctor prescribed it, you should take it. any antibiotic has side effects, some are serious. not treating lyme has the side effect that it may cripple you and turn yourself into a shadow of your former past. i would always choose to treat it than this alternative..

i just told u what the risks are with mino so u are on guard, but these are usually rare cases.

I'm thinking he's treating without a Doc

Yes I am treating without a doc..

Mpost- I make a test to a lab in Germany.. I send the results in this forum.. it was 500euros and they dont even reply to my emails to explain me the results..

George T. said...
Mpost- I make a test to a lab in Germany.. I send the results in this forum.. it was 500euros and they dont even reply to my emails to explain me the results..

i don't know of any lab and test anywhere in the world of anything that is "explained" by the lab workers.... They just process your blood and provide the results. It's the Doctor that explains your results and may tell you what to do. It does not matter if your test costs $20 or $2000. Diagnosis is something that involves more than just a blood test, it involves your symptoms, and that part you cannot discuss with the lab technicians.

Sometimes a blood test is not even required, if you have all the symptoms of lyme disease , you are a hunter and u found a tick on you, then odds are you have it and the doctor can put you on antibiotics right away, he does not need any tests...

The tests are just guiding the diagnosis, checking for coinfections and reassuring the doctor he is not treating you for something you don't have. This condition has similar symptoms with MS/ALS/Alzheimers, etc... It's easy to confuse them.

Anyway, do as you wish but self medication this disease is not a good idea, have you noticed most of us take 3+ antibiotics daily, based on what coinfections that tick that bit us had ? If you just treat one infection the others will prevent you from getting better, u need to hit them all at once to see progress. For this you need to visit a LLMD. If you don't have one in Greece, you could fly and get to one, then continue followups remotely.

Regarding the forests in greece, i did not say greece does not have forests, it has fewer forests than other countries in europe where this disease is much more prevalent.

This is the map of MS distribution across the world
/multiplesclerosis.net/wp-content/uploads/2013/01/global_2x.png

notice your country is in the low risk zone. lyme is FOR SURE growing, everywhere, but there is a reason why u cannot find lyme doctors in Greece but u can find them in Germany, France, Poland, etc... it's the number of patients.

yes much better. just some lingering symptoms. eye pain , sometimes brain fog. no heart issues, not tired.

i have not taken abx in 2.5 yrs, only herbals. im planning to restart maybe i can remove more lingering issues.

but i dont have mycoplasma nor babesia, just bartonella and lyme, so maybe an easier case. or maybe not. time will tell.