My Story w/ Lyme & Help Needed re: Cyst Busting Abx

Hi All -

Wanted to introduce myself.

To make a long story short, I found a tick on me father's day weekend after camping (Sunday night), went to doc on Weds following week and was put on Doxy 200mg / day for 30 days.

Went off Doxy for 3 weeks and had a VERY LIGHT ring form around the epicenter of my tick bite. I never had the a-typical bulls eye that most get with Lyme (I know, some don't get it at all).

Had blood work done and all came back negative except strand 41 which most people have come back positive. My Rheumatoid levels came back inflated (29.9) - I'm a 32 year old male, yet I was walking for 10 miles a day while on vacation 2 weeks ago.

I called my doc re: this and he put me on Minocycline that I'm currently on (200 mg day (100 x 2)). We also talked about introduction of cyst busting abx the break the bacteria out of their cyst form so the Mino can do its job better.

I was put on flagyl (500 mg twice a day) and boy did this stuff make me feel DIZZY! I feel like I've been drinking which is starting to drive me insane!

I've been reading about Tindazole (generic of Tindamax) being much easier on the body as well as less harmful side effects. I also started researching about Grapefruit Seed Extract to bust cysts as well.

Does anyone have any thoughts on Tindazole and the side effects of it? Did it make you feel really dizzy? Did you move to Tindazole from Flagyl?

I'm also looking into going homeopathic as well, so if anyone has any info on GSE to bust the bacteria in cyst form, that'd be great!

This is the GSE I'm looking at:
/www.amazon.com/Nutribiotic-Liquid-Concentrate-Fluid-Ounce/dp/B000M7OOPS?th=1

Thank you in advance for any and all help.

Kat1000 said...
I was on tini for 2 months. My LLMD had me start with once a day 3x a week, then 2x a day 3x a week. When I first added the second dose, I would get dizzy in the evening if I moved too fast, and it definitely made me tired (or maybe that was the lyme symptoms herxing). It was paired with doxy for me.

The second month I switched to mino, and it was not as effective for me as doxy, so I went back. Also added in samento (herbal drops).

Then I had candida, and switched completely to herbal (samento, houttinaya for bart, and red root) and lots of supplements. I'm now taking rifampin for bart and adding back doxy, plus herbals and supps.

Everyone is different so you do need to see what works best for your symptoms. Do you know what coinfections you might have? Are you seeing an LLMD?

Hi Kat -

Thanks for your info. I am seeing an LLMD who was recommended to me by the Lyme Disease Association of South Eastern PA. Thankfully, he's one of the few who accept insurance.

I did have a blood panel and all co infections came back negative, which is frustrating.

I guess what I'm looking to do right now is attack the bacteria in their cyst form since I know and my LLMD suspects that I have full blown Lymes (based on symptoms - knee pain and light rash).

The flagyl was just too strong (1000 mg day 2x500 was too much for me) on top of making me extremely nauseas, could not get clear thoughts out, felt impaired at times and the CONSTANT dizziness.

That's why I'm wondering from those who have tried Tini / or used hollisitc approaches to breaking out these little suckers from their cyst forms.

I don't get dizzy on the Tinidazole.


But, I've taken Flagyl in the past and don't recall being dizzy either.


I think you should give it a try. (Plus even though it does have the black box warning because of studies showing bladder cancer in mice/rates, the studies were with the Flagyl. Tinidazole is in the same class, but because it's similar, they've put the warning on it as well)
So, I say it's potentially safer - being that it was on a similar drug....not Tini.

Hi Girlie -

Yes, he prescribed me to take the Flagyl 2 x 500mg every day. From reading here, it sounds like some people only take it once a week.

I started the Flagyl regimen last Weds evening and by Sunday morning I had to stop it (last dosage was 9a Sunday morning and Monday I started feeling better), it was too strong for me - plus that taste - YUCK!

I just got off the phone with the office and waiting to hear back re: alternative options to flagyl based on how I'm reacting to it.