If it was up to the mainstream medical community...

all of those but add in depression, brain tumor, MS, neuropathy, migraines, sinus infection, and I'm sure there are more.

Girlie said...
Are you saying you were diagnosed with these?

or going by symptoms you could have these? (but not blood work)

If it's the first - none.

If it's the latter: Sjogrens, Lupus, Dementia, hyperthyroid, Parkinson's, MS, Depression, Anxiety

latter.

I just visited a ALS forum.

There's so many people that are scared they have ALS, then get all the test and are negative. But then still puzzled. And list all there symptoms and they are soooo lymie.

I wish there was a way to redirect all those people (the ones that really don't have ALS) to this forum.

The labels I got - fibromyalgia (no surprise) and get this..........."Stiff Person Syndrome". Yep, look it up, its there. LOL.

Im surprised they don't have Sick Person Syndrome yet.......it would make their jobs so much easier.

Yep! Me too! Two different neurologists said the same to me. One of them got super angry saying it was malpractice, that she did the test and it was negative for Lyme! Then she proceeded to tell me I have epilepsy and to start this medication but to let her know if the skin on my hands starts to peel off (needless to say I have never gone to her gain!!!)! Seriously I have lost sooo much hope and trust in the medical system! I asked a fellow whom I know who happens to he an ER doctor what his thoughts are on Lyme (assuming I'm going to get the same old 'there's no Lyme in this area' line) but instead he said they have not studied the ticks in our area since the late 1970s!!! He said they probably carry a lot more then just Lyme! I hope some day in the near future this whole controversy gets resolved, it's really horrible to go from doctor to doctor getting all sorts of BS like maybe your depressed, or maybe it's your hormones! Let me give you some anti-depressants and send you to a therapist!!

One of "diseases" was hyperthyroidism (I had air hunger problem in that time and doctor insisted I was anxious and in the middle of thyroid gland attack). When he saw that he misdiagnosed me (blood test for thyroid gland was fine), he said he knows few similar cases of women who had problem with their husbands and those women had "air hunger" problem until they got divorced

I have a VERY close girlfriend (known her for years) and she got a knee replacement. Her communication with me is the following: Her knee never really healed properly. Then she got a super bad herpes outbreak. Boils on various places. Migraine headache that has been there now for 2 weeks. GI problems. Eye problems.

She is going to have a metal test done in San Francisco, CA because she thinks it all started with her knee replacement. She thinks it is an allergy to the metal in her knee.

She saw what I went through and she just won't even go get a lyme test. She has been to specialists and 2 gps. No one has even suggested she get a test, but me. She says, I have not been bitten by a tick!

I just wonder how much she will spend or how bad does she have to get?

Oh and I was sent to a neurologist because of my initial head pain. I asked him "Do you think I could have lyme disease?" He said, "No, you don't get a headache from lyme disease." I left and never went back to him.

Pirouette said...
nonames -

Except the Lyme-friendly gastro who gave me a long and thorough breast exam... found another similar complaint about him on yelp.

-p

I have a 'breast' story too. I will email you about it though...

astroman said...
Its easy to blame conventional medicine on all this labeling without finding root cause.

The way I see it - a big part problem is with people who live with their head in the sand and refuse to learn of their own condition beyond what conventional medicine tells them. A good part of HW is filled with individuals like that, just not here.

Not necessarily. My head definitely wasn't in the sand...and it took me over a year to even think about LD as a possibility to ask my dr. to test for it.

Why? Because the websites I went to said:
Bullseye rash, flu-like symptoms, fatigue...

None of those applied to me. I guess I'm not the 'norm' though.

And then my Dr. did test me through the government lab testing...and was negative.
I just happened to stumble across this forum a couple months later....and posted my symptoms...and members suggested I test via Igenex.

astroman said...
But you tried- and came back to looking, you looked to it MORE. Some dont go that far.

You're no "head-sander" lol.

yah - but 14 months later...and a gazillion symptoms at that point.

There is so little education/mention of Lyme in suburban Northern California I had no idea that funny looking bite thing that was on the outside of my upper arm was a Bulls-eye. It lasted for a good 2-3 months. People commented on it. "Is that painful, does it itch" Nope and at the time since I was completely ignorant as to what it meant it was the least of my worries. Thank you CDC When I'm finished treating and a few years back at work I will be very active taking them on. A healthy me can be a force to be reckoned with.

I'd be dead and quite frankly there were times in the first year and a half of treating when I wished that we didn't realize it was Lyme (my son read an article). When I got bite and by fluke I do know when that was I'd had a cortisone shot about an inch away two weeks earlier. The worst possible coincidence. I'd always been really healthy. Never caught the things my kids brought home from school, the things going around the office. The prior years I'd spent dealing with issues that all were caused from a spinal issue. I'd had 3 major surgeries with major painful rehab in the previous 18 months to the tick bite. My immune system was done. The stress on my body from the pain and healing just let the toxins go nuts.

I never did the rounds of doctors like so many of you did. My orthopedic surgeon and neurosurgeon both knew that what they had done was healing but they could see the pain in my eyes even though I would smile and they both (god bless them) were searching for some form of a solution for me. My physical therapist thought my neck was collapsing. It was the only thing that made any sense to her. She has a friend who has Lyme so she understands the severity and yet when we realized it was Lyme she was relieved.

I tested CDC positive. My concierge internist said he didn't believe that Lyme was real. Fired him. After missing my annual GYN appt for 3 years, I finally was well enough to go last year and she asked wth happened. Her head whipped around when I said Lyme. Her response was "you had to shut your life down didn't you?" I started going to this woman after my OB retired. My internist recommended her. She delivered his babies. When I told her his response she was stunned. "We get the same journals" "The studies are very clear, I stopped hiking, made my daughter stop hiking etc"

I guess the old saying ignorance is bliss applies for most doctors. Less for them to learn