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LLMD in CT - Found one

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Posted 8/19/2011 7:21 PM (GMT 0)
Ticked Off! and anyone else... I did find one that accepts insurance.  I haven't seen him yet but have an appointment on Tuesday.  I'd be happy to share the name with you - he is in Sharon, CT and is an infection disease specialist.  Email me if you are interested.

[email protected]

 

Posted 8/19/2011 7:36 PM (GMT 0)
Ahhh, msrunner,

There are two schools of thought concerning the treatment of Lyme Disease. The Infectious Disease Society of America (IDSA) maintains that Lyme is rare, and totally treatable with 21-30 days of antibiotics. Any symptoms remaining after that are not to do with an infection. They do accept insurance and inform the CDC as to recommended treatment protocols.

The Lyme Literate Doctors who are accredited by the International Lyme and Associated Disease Society (ILADS) do not take this "one size fits all" approach to Lyme. Patients with ongoing symptoms usually find relief by being treated by these doctors who employ both antibiotics and herbal treatments. They treat until well after all symptoms have been resolved. They do not accept insurance so as to be free to prescribe what they feel is needed to get the patient back to full health.

There is also the Naturopathic and Homeopathic option which has helped many who can't or would prefer not to use antibiotics.

This is, of course, an over simplification of the situation -- there are many exceptions.

My point is that if you do not get a full recovery after being treated by this Infectious Disease Doctor, don't settle for poor health. Keep seeking treatment.
Posted 8/19/2011 8:06 PM (GMT 0)
Are you confident that ALL infectious disease doctors operate this way or just the ones you've seen? If I am going to kick this thing, and I will... I want to hear from everyone and do not want to assume that an infectious disease doc will dismiss my case after "21-30" days. I simply don't beleive they all do that.

I see your point though, just not sure I agree with it entirely. Perhaps I will in time though. We'll see.
Posted 8/19/2011 8:53 PM (GMT 0)
No, like I said, there are exceptions and my summary was a simplification of the situation.

I just wanted you to be aware of the differing approaches to Lyme treatment.
Posted 8/19/2011 11:10 PM (GMT 0)
It would be much, much better for you to call the doc back and ask just how they treat for Lyme. Almost all ID docs stick to the party line pretty close, and they base their info for treatment on "Expert Opinion" rather than scientific data.
Please follow this link:archinte.ama-assn.org/cgi/content/abstract/171/1/18

You will need to determine for yourself if this ID doc follows ILADS guidelines or the IDSA guidelines. You can find the summary of ILADS guidelines here:
www.ilads.org/lyme_disease/treatment_guidelines_clearing_ilads.html
Posted 8/20/2011 1:19 PM (GMT 0)
I too believed that it could not be possible that an ID dr. with such a great reputation and recommended by my other doctors who I love would not treat my lyme successfully.  Believe it.  He had no idea.  Told me I probably had MS and lyme and that that was common.  He never did any coinfection testing but kept testing me for syphllis.  When my brain MRI showed lesions on my brain and he ordered IV, the insurance co. denied me, he did NOTHING to fight for me, instead stating that the insurance co. dr. had good intentions and was a nice guy, just nothing he could do.  He had absolutely no clue on what to do next.  Do not waste your time.  I wasted a year of my time and health with him. 
Posted 8/20/2011 3:35 PM (GMT 0)
There are exceptions to every rule. There has been at least one member here that got ILADS recommended treatments for their tick-borne infections.

Please remember, we are not allowed to 'bash' or 'inflame' any docs or members here. If you are not a patient of this doc, then please allow this member to speak without feeling like they need to defend their choices.

MSRunner, please understand that we have 'seen' and 'heard' of many a member that has started treatment with an ID doc to only be turned away after only 30 days of abx and told they have to live with their symptoms, when in reality they still had active infections.
Posted 8/20/2011 5:11 PM (GMT 0)
Ooooo sorry didn't mean to bash your choice just trying to be sure you are aware of the differences between LLMD and ID. I hope your dr. is an exception. :)
Posted 8/22/2011 1:17 PM (GMT 0)
All great points.  My thinking here is that I want to experience an ID doc myself so perhaps I'll arrive at the same conclusion you do.  Armed with this information, I'll be able to have an intellegent conversation with him... so thank you for everything you all shared.

On a side note, I felt pretty good over the weekend so I continued my running.  It was hard than $%&# but I completed a 15 1/2 mile run yesterday feel pretty good today.  The rest of the week's recovery will really tell me more. 

Thanks again everyone, much appreciated

Posted 8/22/2011 8:57 PM (GMT 0)
MSRunner,
I'm really glad that you are taking the info that was presented here and will arm yourself with it!! Use that info to be sure that you get the treatment that you really deserve!

Please be sure to share with us what your opinion is of this ID Doc, and don't forget we can help you find a LLMD if you wish.

That's great news about your run! I sure hope that if there are any repercussions from it, that it's only a few minor things!! That's a lot of miles!!! shocked
Posted 8/23/2011 5:55 AM (GMT 0)
I was treated by an ID doctor for almost 2 years, until my symptoms went away. This was after 2 years of treatment from a neurologist then a hematologist. He took insurance and treated me until we both felt I was done. He treated me while I was pregnant and for over a year after. After I stopped treatment, he told me I could come back any time if my symptoms returned.

I heard from a friend that he was still treating Lyme with long term antibiotics as recently as 5 years ago. Unfortunately, he retired a few years ago.

I think it is worth it to try to find someone that takes insurance. There is an ID doc in Connecticut that has been a speaker at Turn the Corner symposiums. He used to treat Lyme until all symptoms were gone. He treated my friend for years but this was over 10 yrs ago. I moved away from the east coast years ago so I am no longer familiar with the docs. He might be worth checking into if your doc doesn't work out.
Posted 9/17/2017 11:56 AM (GMT 0)
Hi, I am desperate to find an LLMD as close to home as possible. My sister has a positive Bartonella diagnoses and because her sysmption went from a slight slurr and twitching, to what looks like bells palsey with rumblings under her left side of face, arm and leg and speech is very hard to understand, was just told by an ALS specialist that she difinitivelyhas ALS.

I need with everything I have for this to be her Lyme Dosease and not a death sentence.
Posted 9/17/2017 1:46 PM (GMT 0)
MSRunner, I'm not sure where you are located in CT, but I see an LLMD in WMass who has been treating Lyme for over 20 years. He is a functional MD, and has worked with Dr. H. in NY. PM me if you are interested in his contact information. He does not, however, accept insurance.
Posted 9/17/2017 2:17 PM (GMT 0)
Sheepla, this thread was started in 2011 and I think most of those members have hopefully healed and moved on. You might want to Post a New Topic with the title -- Looking for LLMD in ______ and give your state.

KB69 I have not seen MSRunner on here since I have joined.

The email option for this forum is not longer functioning, is what I heard from one of our old, long time members. Therefore, I think the email address given in the first thread is no longer active.
Posted 9/17/2017 2:53 PM (GMT 0)
Thank you PeteZa ... will do and thank you for the article.
I am so sorry for all of the typos was writing from phone and clearly couldn't see very well.


Sheila

Post Edited (sheepla) : 9/17/2017 8:57:38 AM (GMT-6)

Posted 9/17/2017 3:21 PM (GMT 0)
Sheepla, please PM me, I have an LLMD in Orange CT, a neurologist, that you might wish to consider.

I obviously failed to notice how old the post was -- thanks, PeteZa. I'm not always on my game. smile
Posted 1/15/2019 10:13 PM (GMT 0)
Could the person who posted an LLMD neurologist in CT contact me with the name of the doctor? I need an LLMD badly in NY or CT - especially one with neurological expertise. I am willing to travel for a couple hours to see one. Anyone else with a recommendation in these areas, please feel free to contact me.

The LLMDs where I live are not accepting new patients at this time. I've been sick for three years. It has interfered with my ability tow ork and I'm my only support. I had a tick bite several years ago but did not get treatment at that time. I have a positive WB for Borrelia. I've got neurological symptoms.

Thanks for your help!
Posted 1/15/2019 11:52 PM (GMT 0)

steva said...
Could the person who posted an LLMD neurologist in CT contact me with the name of the doctor? I need an LLMD badly in NY or CT - especially one with neurological expertise. I am willing to travel for a couple hours to see one. Anyone else with a recommendation in these areas, please feel free to contact me.

The LLMDs where I live are not accepting new patients at this time. I've been sick for three years. It has interfered with my ability tow ork and I'm my only support. I had a tick bite several years ago but did not get treatment at that time. I have a positive WB for Borrelia. I've got neurological symptoms.

Thanks for your help!

Hi steva - welcome!

KB69 has their email enabled - you can email and ask for the information.

I see a LLMD in Washington DC - if you’re willing to travel there - send me an email and I’ll fill you in on the appt costs.
I travel across the continent to see him - but only do that twice a year - other appts are phone calls.

He is an ID Dr - had been treating LD for many years.
Posted 1/16/2019 1:49 AM (GMT 0)
Hi Girlie, Thanks - yes I would be interested in your recommendation of an LLMD in DC. It would be pretty easy for me to visit a doctor there because I have immediate family in that area. My email should be visible on my profile, if you could email me. Or I can contact you, but I'm not sure how to find your email. Thanks again.
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