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combination antibiotic therapy

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Posted 10/4/2017 5:02 AM (GMT 0)
i caught lyme on easter this year. had migrating em rash. took a while for drs to settle on diagnosis (though i was certain it was lyme) so treatment didnt start til about two months in. took minocyclin for 30 days. all symptoms were gone but came back two months later. now theyve just been getting worse and drs wont give me antibiotics because they say it would be ineffective. i have an appointment with a lyme literate dr in nov but the 10+ cm em rash i have on my stomach right now tells me a month is too long to wait. i plan on going to every dr in the city til one puts me on antibiotics (im in germany so it will be free). i want to do an at least 3 month combination therapy. any recommendations on drugs and dose? after the treatment i will try a few months of herbs just to be sure.

i want to eventually get tested for co infections if next round of antibiotics doesnt stop all symptoms, but a wise lyme specialist who advised me over the phone noted that if i was symptom free for those two months, then i probably dont have a co infection. also, crazy as it sounds, i think i got lyme from a cat flea. long story and cant 100% rule out tick, but maybe this also reduces odds of co infections?
Posted 10/4/2017 6:20 AM (GMT 0)
Ho toto2 - welcome to our community.

I'm sorry that you were only prescribed mino for 30 days. The ILADS Guidelines say treatment should continue until symptom free PLUS another 4-8 weeks.

What a shame that the Dr.'s wouldn't prescribe more antibiotics when your symptoms came back. It is still a relatively early infection and can be effectively treated with antibiotics.

You mentioned 3 months combination therapy...you don't know how long it will take. It could be longer than that - so you can't put an 'end-date' to it. You will need to stay on treatment until you are free of symptoms PLUS several weeks longer.

There are many different drugs and combinations.
Some examples of combinations for lyme:

Doxy and Azithromycin (doxy - 200 mg twice daily/ Azithromycin 500 mg once daily)

Ceftin and Biaxin (Ceftin - 500 mg twice daily/Biaxin 500 mg twice daily)

Ceftin and Minocycline - (Ceftin 500 mg twice daily/Mino 100 mg twice daily)


Also a cyst buster should be added - Tinidazole (or Flagyl) - many take it only a couple days per week.



You may also need to treat the co-infections. You mentioned getting lyme from a cat flea. Cats carry bartonella - so I wouldn't rule it out.

There will be other meds/combinations for the coinfections. (Bartonella / Babesia)

There is an online Treatment Book by LLMD MR - you can subscribe to for a few $$ per month:

TreatLyme.net
Posted 10/4/2017 6:21 AM (GMT 0)
Are you taking probiotics? This is imperative...you need to replenish the bacteria in your gut that is being killed with the abx.

You should also be detoxing - flushing out the toxins created with the die-off of bacteria.

Here's a link to a website with some good detox methods:

www.tiredoflyme.com/detox-methods.html
Posted 10/4/2017 11:04 AM (GMT 0)
thanks girlie! thats really solid info.
i will see if i can get a dr to prescribe something. i got shut down by another one today because he says doxy is dangerous and thats all he'd prescribe. he did give me the name of a specialist in the region so hopefully she can help. im so mad at the drs here. they treat lyme like its nothing serious even though 50%of ticks here are infected and i know a ton of people with chronic lyme. i was always extremely cautious but it got me anyway.
Posted 10/4/2017 1:26 PM (GMT 0)
Toto2- I'm in a similar situation. I was treated for only 21 days following a tick bite. I was symptom free for 4-5 weeks. Then symptoms returned and worsened. I'm seeing an LLND. She started me on doxy and pulsing tinidazole. Along with a few supplements.
It's all very frustrating.
Posted 10/4/2017 1:59 PM (GMT 0)
ashley - I started with doxy and tini. I felt better a few weeks in. Switched doxy to mino, then stomach issues so went 100% herbal. When bart symptoms increased, went on rifampin until my stomach was bad again.

It is a frustrating road and requires a lot of patience. I've had good days in 7 months of treatment, and that keeps me going. I think whatever we can do to improve our immunity is key. And detox of course. Lots of detox.
Posted 10/4/2017 2:04 PM (GMT 0)
Kat1000-At what point did you know it was Bart? What were your symptoms?
My co testing was negative, I do know they are unreliable. My LLND hasn't mentioned doing anything further with cos. So I'm trying to figure it out on my own.
Posted 10/4/2017 2:18 PM (GMT 0)
Sore feet, muscle pain, twitches, pulses, skin mottling. I think he suspected it from the beginning, but the foot pain became more pronounced after treating lyme. Twitches still there but much more subdued.
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