Really trying to hold on to some hope

decarte - Are you familiar with Dr Wahl's testimony?

CD3764 said...
Hey dacarte,

It's been a long while since I've posted on the forum but, I stopped by today and just had to post here.

So very sorry to hear about your concerns!

My personal experience leads me to ask if you've ever considered that your symptoms might represent damage that needs to be addressed.

I say this because I could NOT get rid of the various manifestations of peripheral neuropathy I had....and this was after 5 months on abx , 2 years on herbs (6 months on full Cowden and 18 on Buhner's full Lyme/Bart/Babs protocols) and doing tons of things to heal nerves.

I recently decided to consult a Functional Medicine Dr.

Her first recommendation was B12 shots. I've long known that blood levels of B12 do not necessarily indicate that the body has enough so I decided to go for it.

It's only been 3 wks. and the improvements are HUGE.

She also ran an organic acids test:

/www.greatplainslaboratory.com/organic-acids-test/

The results showed that I have a few things going on that could contribute to peripheral neuropathy and we're addressing those issues with supplements and a few herbs.

Take a deep breath - your path will become clear and you will heal.......I have no doubts.

I'm interested too in what the organic acids test showed that could contribute to peripheral neuropathy. I just received my kit to do the test (mine is through Genova though) and I too have neuropathy. My doc ordered it for chemical sensitivity though.

CD3764 said...
Hey dacarte,

It's been a long while since I've posted on the forum but, I stopped by today and just had to post here.

So very sorry to hear about your concerns!

My personal experience leads me to ask if you've ever considered that your symptoms might represent damage that needs to be addressed.

I say this because I could NOT get rid of the various manifestations of peripheral neuropathy I had....and this was after 5 months on abx , 2 years on herbs (6 months on full Cowden and 18 on Buhner's full Lyme/Bart/Babs protocols) and doing tons of things to heal nerves.

I recently decided to consult a Functional Medicine Dr.

Her first recommendation was B12 shots. I've long known that blood levels of B12 do not necessarily indicate that the body has enough so I decided to go for it.

It's only been 3 wks. and the improvements are HUGE.

She also ran an organic acids test:

/www.greatplainslaboratory.com/organic-acids-test/

The results showed that I have a few things going on that could contribute to peripheral neuropathy and we're addressing those issues with supplements and a few herbs.

Take a deep breath - your path will become clear and you will heal.......I have no doubts.

After gathering myself a little I asked myself, "what have been my symptoms recently". They are nerve pain, twitching, wasting, numbness and tingling, sore burning feet.

Then I asked myself have I experienced all of these symptoms before. And the answer is "yes".

I then asked myself is there any symptom that is completely brand new? I thought long and hard about it and the answer is "no".

So as sh**ty as these symptoms are and some I'm experiencing much more intensely this time around, none of it is brand new, none.

So I'm going to go see the neurologist, just because getting things checked it out can only help. But I'm also going to go see a Functional Med doctor that ISN'T an LLMD.

Just to get a different non-lyme, non-lyme box, non-lyme perspective (and dare I even say non-lyme bias perspective) point of view.

I won't even mention Lyme to this functional doctor and see what a different view and opinion can bring.

While some of this may be from damage - that need to be 'fixed' ..or maybe just more time to heal...it does appear that DaCarte has symptoms of active infection.

He had gotten to a point of almost sign/symptom free...for a period of six months...and now those symptoms are back.

That to me isn't 'just' damage....but infection that needs treatment as well.

Piroutte and girlie,

I'm with you it's why I'm doing both herbs and abx and going aggressive. It's hasn't been too long in Lyme time and perhaps I'm being impatient, once again relatively speaking.

1000 daisies,

Using hbot (again) has crossed my mind again. I had my doubt it "fights" Lyme but I always believe the scientific evidence that it can heal tissue and cells.

The military uses it for this reason in soldiers and professionally athletes use it for the same reason as well.

So there's something "there" there or these institutions wouldn't waste the time or money.

First, I'm also sorry you're going through this...
It's unbelievable what you guys are going through.

I haven't read all the posts, but the one with supplements and herbs, yes.
I don't see many neurotoxin binders there.

MSM was a big help, as well as chlorella and bear garlic.

During Buhner, I could never LIVE without these binders.

The 1st book of Buhner ignore binders, and that was the weakest part of the protocol, in my opinion.
I don't know the other books as I did not read them.

I was basically LIVING on binders, more than anything else... or I would just be totally dysfunctional.

---------------------------
Another topic to consider is EMRadiation.

I listened to an interview with dr. K now, and he said that normal radiation found in houses breaks cell walls by displacing calcium (if I understood correctly).

He said that ion pumps get dysfunctional and then you accumulate more toxins and heavy metals inside, nutrients cannot get in well (no matter how much you take).

The same way nutrients don't get in well, supplements and herbs neither.
so it's not the amount the problem, but how to correct these ion pumps again.

Cell potential goes lower, you get CFS. Alzheimer, many CNS diseases.
The problem with heavy metals inside is the antenna effect: all antennas are metallic to get the radiation.

We get these heavy metals inside us, that accumulate, we become even more antennas to bad EMRs.

In the past, chelators did help people he said.

Now chelators help only minimally, the load of heavy metals do not decrease because people are exposed to EMRs the whole time, the cell wall ion pumps are weak, not functioning well.

He's suggesting that simple ionic foot baths can do something to invert that situation.

It helps raising cell potential, for example, plus pull some toxins from the feet skin.

He said he has seen very good results with autistic kids only due to ionic foot baths. (in another video).
It takes 4 months to start seeing results , usually, he said. Foot baths 2x a week is the average.

I'm in contact with a lady in Canada, suffering from lyme and babs + bart for more than 10 years for sure.
Severe symptoms.

After a couple of months on an ionic foot bath (not the expensive one dr. K recommends, but a model of 200-300 dollars), she's having major healing crisis NOW.

Not before.
Babesia seems to be getting mad (herxes), but she wrote me today saying it's the first time she starts to feel hopeful again.

I'm particularly sensitive to EMRs, so I know that this stuff makes me feel crazy, even though I have no more lyme for the last 8+ years.

I still get mad when I'm bombarded with EMR in certain places.
I feel they're harming me.

Dr. K mentioned that he had several Alzheimer disease patients, who weren't Alzheimer, after they became exposed to smart meters (in a matter of weeks, they BECAME Alzheimer!!).

He said, smart meters ARE like a cell phone tower INSIDE your house.

It's a crime and not only sensitive people suffer: he sees blood values changing from the non-sensitive people as well.

As for me, I know my cell potential was weak, severely depleted, just because by starting on the violet Ray of Tesla, it was like night and day: so much difference in energy, stamina, relaxation...

And my lyme had been long gone when I started that.

Only today, I understood that what's depleting me from that ionic energy could be EMRs too (not only infections).

Went through Buhner's literature once again and focused on muscle wasting/atrophy.

He talks alot about muscle tissue/cell breakdown and atrophy. Emphasizing Bartonella and Mycoplasma.

I swear I think sometimes the "co-infections" are a lot worse than Borrelia.

I think people that get worse are not addressing the co-infections as hard, me being one of those people.

I've never really went hard after bart specifically, even though I have had the hallmark sore soles and red streaks symptoms before.

Girlie said...

dacarte3 said...
Went through Buhner's literature once again and focused on muscle wasting/atrophy.

He talks alot about muscle tissue/cell breakdown and atrophy. Emphasizing Bartonella and Mycoplasma.

I swear I think sometimes the "co-infections" are a lot worse than Borrelia.

I think people that get worse are not addressing the co-infections as hard, me being one of those people.

I've never really went hard after bart specifically, even though I have had the hallmark sore soles and red streaks symptoms before.

Yup, the co's are worse than Borrelia from what I've read, and seen.

I'm also seeing tons and tons of articles on line with lyme and muscle wasting/atrophy and it's slowly restoring my faith that it's lyme.

Not that it makes it any better but at least theoretically there's something that can be done about it.

dacarte - my wasting happened pretty much all at once, with the weight loss. This was within the first couple of months of having lyme.

My legs, arms, back (especially left side thoracic area), face, hands (worse on left side)
I had these hollows under my eyes...I looked sick.

Even now my fingers on the left hand - if I feel them they're still worse on my left hand...just nothing there really..except skin and bone. They work fine though.

I am still rehabbing...trying to get muscle tone back.

Also Girlie,

Do you have/had mycoplasma?

I just found one of your post in an old thread and you described so many things exactly what I'm going through right now. It's not "kind of the same" or some of it the same, but the SAME.

So I'm wondering.