Has anyone been to Klinik St. Georg outside of Munich?

Hi everyone.

Has anyone been to this clinic in Germany for hyperthermia? I am likely going to be going for 2-3 weeks treatment end of November/early December. Please let me know if you have heard of anyone who has had success here. I am not responding to antibiotics and I refuse to spend another year sick. So I am desperate to try something else that can help. Thanks for any info you have!

That's exciting to hear that she is better! I'm 99.99% going unless I have some sudden and miraculous response to the meds I'm taking. I'm not too confident that will happen so I've already started the process of securing a spot at the clinic for early december. I'm excited and hopeful!! But also terrified! I am SUCH a scaredy cat and I don't like being poked and prodded. But I will surrender it all during my time there as a solid attempt to get better and be back to the person I once was.

Girlie or anyone else with the ability can you fix the link to a hyper link so the pages are not out of whack, please. Thanks!!

Have you been getting guidance from a non profit group Lyme and Cancer services. If not they can help tell you what to do to prepare ahead of time and all sorts of other things. I have just started talking with them.

jrpsf said...
Girlie or anyone else with the ability can you fix the link to a hyper link so the pages are not out of whack, please. Thanks!!

I wasn't able to fix it, jrpsf. I had to delete it...sorry. What I usually do is create a tiny url out of the long link...but this one wasn't allowing me to.

and another thread:


www.healingwell.com/community/default.aspx?f=30&m=3726689

Yes Evanston! I get the lonely part. That is the part that sometime sucks the most. The symptoms and stuff would be somewhat easier to deal with when there is a good support system. This can really be isolating. I have noticed it really weeds out who truly loves and cares about us. I get it that it is too much for some to handle or hear about but still we need the support. Two months will fly by before you know it. I will say that in my past experience visiting Germany many years ago that the people I met there were awsome and very kind. Just know though that at the clinic they may not do a lot of hand holding so to speak. They are used to treating people and they know what they are doing but are so used to people like us American asking so many questions about what they are doing and why. At least that's what I heard. But I am ok with that. I would still ask questions any way! Keep us posted!! Best wishes...

Alyeska - maybe start a new thread - and we can look at what you've tried...and offer suggestions ?

Evanston1 said...
That's exciting to hear that she is better! I'm 99.99% going unless I have some sudden and miraculous response to the meds I'm taking. I'm not too confident that will happen so I've already started the process of securing a spot at the clinic for early december. I'm excited and hopeful!! But also terrified! I am SUCH a scaredy cat and I don't like being poked and prodded. But I will surrender it all during my time there as a solid attempt to get better and be back to the person I once was.

I'm so glad you'll keep us informed about your progress. I really need to know for sure that the treatment works before I can decide to spend so much money. If it works, it will be a drop in the bucket compared to how much money I've spent and will continue to spend on treatments.

I'm with you about being a scaredy cat, so if we're willing to go this far, we must be pretty desperate! I never used to be afraid of needles until I got this stupid disease and needed constant blood tests.

Like you, I'm just really nervous about the safety of this treatment. We need to be here for our kids! I wish you the very best of luck!

Alyeska said...

Girlie said...
Alyeska - maybe start a new thread - and we can look at what you've tried...and offer suggestions ?

New thread posted... Sorry, I'm a noob!

No need to apologize...it just might be better with your own thread.

I’m mostly amazing! My daughter is 1000% perfect! Totally back to the kid she once was before getting sick. I feel great almost every day. However, on paper, I still don’t look so great. My immune system is SHOT! So I’ve needed immunoglobulin infusions called Hizentra and that has helped me look way better via lab tests. And even though my immune function is low, I would have no idea without the blood tests because I feel great. Still working full time, back to exercising every day, have gained all my “sick weight loss” back so I look like a normal healthy person again and I’m on NO ANTIBIOTICS. That’s the biggest miracle of all because I never thought I’d get there. My daughter has also gained all her weight back and looks great! I highly recommend Germany. Gave me my life back on every way. And completely healed my daughter. Keep in mind.... it is NOT a pleasant or easy treatment. But neither is years of endless antibiotics. I’m happy to talk live if you have specific questions. Take care!!

Sorry - against the rules to post contact info.

You can add your email to your profile though. And Evanston can see if there.

CTLyme said...
Sorry didn't realize I wasn't allowed to include my email address. Just edited profile so email should show. Thanks!

No worries! I do see your email is in your profile now.