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Posted 10/9/2017 4:00 AM (GMT 0)
Been hovering at 95% for a while. Back to playing 4.0 tennis and working and life has resumed and I'm so grateful and I'm still aiming to post a success story by the end of this year!!!!

My last remaining symptoms have been numbness and tingling, vibrating mostly at night and some spelling issues. There are so many possible causes, from damaged vagus nerve to auto-immune response, it really is a mystery.

My last doctor's visit, he said we had to hit the biofilms hard and finish this! I started Biocidin and wow, Bartonella reared its ugly head, but its very mild this time around. So I'm back on Rifampin for a couple of months and the Desbios Bartonella Nosode.

I've been doing LDI for 18 months. I get the following shots every two months: Borrelia/Babesia/Bartonella, Mold/Candida, Epstein Barr and Airborne Environmentals. This have been great and not so great! While I no longer react to Mold and environmental stuff or have to take allergies, and the epstein barr is in check, I sometimes flare from the shot and the flair lasts weeks. Feels like a continuous herx - vibrating, tingling. Awful.

This last visit, I wanted to know what was causing the flare, because if I'm taking 4 shots, who knows. So I only got the Candida/Mold shot and the environmental. So far so good, so maybe my B/B/B dose is the one I'm still reacting to.

I'm off the Buhner herbs (took for 2 years along side the antibiotics). Just trying to see simplify and see what I can do without.
Posted 10/9/2017 4:07 AM (GMT 0)

cr3ativegirl said...
Been hovering at 95% for a while. Back to playing 4.0 tennis and working and life has resumed and I'm so grateful and I'm still aiming to post a success story by the end of this year!!!!

My last remaining symptoms have been numbness and tingling, vibrating mostly at night and some spelling issues. There are so many possible causes, from damaged vagus nerve to auto-immune response, it really is a mystery.

My last doctor's visit, he said we had to hit the biofilms hard and finish this! I started Biocidin and wow, Bartonella reared its ugly head, but its very mild this time around. So I'm back on Rifampin for a couple of months and the Desbios Bartonella Nosode.

I've been doing LDI for 18 months. I get the following shots every two months: Borrelia/Babesia/Bartonella, Mold/Candida, Epstein Barr and Airborne Environmentals. This have been great and not so great! While I no longer react to Mold and environmental stuff or have to take allergies, and the epstein barr is in check, I sometimes flare from the shot and the flair lasts weeks. Feels like a continuous herx - vibrating, tingling. Awful.

This last visit, I wanted to know what was causing the flare, because if I'm taking 4 shots, who knows. So I only got the Candida/Mold shot and the environmental. So far so good, so maybe my B/B/B dose is the one I'm still reacting to.

I'm off the Buhner herbs (took for 2 years along side the antibiotics). Just trying to see simplify and see what I can do without.

I'm so happy to read this. You give me hope!
Posted 10/9/2017 4:20 AM (GMT 0)
Can you explain the vibrating please...i think this is a new symptom for me, but i thought i was imagining night vibrating? Thanks
Posted 10/9/2017 5:23 AM (GMT 0)
This is great news, cr3ativegirl!

I can't wait for you to post your success story!
Posted 10/9/2017 5:25 AM (GMT 0)

sharo said...
Can you explain the vibrating please...i think this is a new symptom for me, but i thought i was imagining night vibrating? Thanks


Mine used to start late afternoon and last for about 4-5 hours...it would feel like there was something vibrating inside my thoracic area. It feels electrical.

Now, it comes and goes any time of the day..sometimes for many hours and very intense ...other times it's barely there.
Posted 10/9/2017 8:32 PM (GMT 0)
Yes, the vibrating comes and goes. Mine used to start like clockwork at 5 pm. Then get worse as the night wore on. Now, it usually comes at night after I've been asleep. I think the vagus nerve is irritated by the pathogens.
Posted 10/9/2017 9:33 PM (GMT 0)
Hi Cr3ative girl! Thanks for the update smile Good to hear you're moving forward too. Well done and long may it continue!!
Posted 10/10/2017 11:38 AM (GMT 0)

Girlie said...

sharo said...
Can you explain the vibrating please...i think this is a new symptom for me, but i thought i was imagining night vibrating? Thanks


Mine used to start late afternoon and last for about 4-5 hours...it would feel like there was something vibrating inside my thoracic area. It feels electrical.

Now, it comes and goes any time of the day..sometimes for many hours and very intense ...other times it's barely there.

Thank you...i honestly thought i was losing the plot...i have been getting it in my lower legs and it is like a light vibration...i even tried to debunk it by opening the storage bed and lying on the spot to see if it was maybe something vibrating in a holiday store bag...lol...if caught by anyone, they would have thought i was off with the fairiessmile
Posted 10/10/2017 11:57 AM (GMT 0)
Great new, congrats!

Jason
Posted 10/10/2017 1:45 PM (GMT 0)
Wow - this is awesome.

And thanks so much for sharing - the success stories are SO important to share!

-p
Posted 10/10/2017 7:38 PM (GMT 0)
What dose of Plaquenil did you take for your Babs? Thanks
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