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alinia? anybody try it

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Posted 5/31/2016 11:34 AM (GMT 0)
I took Alinia a few years back when treating what we thought was a mepron resistant strain of Babs.
Now I'm back fighting Bart again and just started Ainia again a few weeks ago. This time I'm pulsing a Ceftin/Bactrim combo 2 weeks on and two weeks off with (1) 500 mg Alinia every day.

This stuff is pretty expensive. First time on Alinia my Rx plan covered 30 day supply at Tier 2 band name co-pay. This time around under my new Obama Care plan all they will cover is a 6 day supply at the same Tier 2 co-pay.

Not much good or bad to report yet on this new protocol.

Post Edited (tickbite666) : 5/31/2016 6:47:55 AM (GMT-6)

Posted 5/31/2016 3:48 PM (GMT 0)
>Need to know I'm feeling crappy right now because I have babesia...if not...don't know why I'm feeling so crappy.

that's the biggest questions isn't it girlie? what is causing what. if it was clearer for those with multiple infections (which seems most people) it would help our future treatment decisions. i'm almost 2 years since being sick and i still can't tell if my main head symptoms are from babs or bart. everything i've read doesn't make it clear to me since my head issue description doesn't fit well into either of them + both have similar reproductive lifecycles and get worse later in the day. argh!!!
Posted 5/31/2016 3:57 PM (GMT 0)
Yup, Rikky1 - I'm extremely frustrated. A month or so ago...i was feeling that I had a few stubborn symptoms that I needed to address (significant ones, though) - and maybe I needed to treat Babesia....
But the past week .... I've felt really crappy. shivers almost all day long, all-over body pain, some pressure in my head behind my eyes. Crappy sleep last night - up early - only 5 1/2 hours sleep.

The minocycline pretty much fixed my head pressure last summer....so what...i have to go back on that again?
geez - it's getting real old. Definitely not fun anymore....

Is it because I did a couple rounds of Artemisinin? (brought the babesia bugs out - kicking and screaming?)
Is it because I never successfully treated bart?
Is it because I stopped my trial of CBD oil?
Is it because my infections are just getting worse now?

too many variables...
Posted 5/31/2016 7:57 PM (GMT 0)
Rikky/Girlie what about trying A-BART or A-BABS? Those are potent and you'd know if you reacted pretty quick. You do have to get Byron White products from a provider. You could even split a bottle of each.
Posted 5/31/2016 8:02 PM (GMT 0)
A-Bart is next on my list as well. I also just added Houtt tincture.
Posted 6/1/2016 7:09 AM (GMT 0)

jrpsf said...
Girlie-From Google-Mepron is a medication that interferes with the reproduction of protozoa (single-cell organisms) that can cause disease in the body. Atovaquone is used to treat or prevent pneumonia caused by a fungal infection called Pneumocystitis carinii.

Alinia- is used to treat diarrhea in adults and children caused by the protozoa Giardia lamblia. Nitazoxanide is also used to treat diarrhea caused by the protozoa Cryptosporidium parvum. These conditions are also sometimes referred to as travelers' diarrhea.

Alinia's usage is very singular. That's why I said I beleive it needs to be paired with other abx's to be effective. If you look on WebMD or sites like it Alinia has virtually no side effects. There's usually a huge list of precautions and side effects.

When I took my combination I had major nerve burn/bart symptoms. I stopped because it brought on such crazy heart palps and I didn't know then what I know now about Bart and heart palps. I was worried it they were from the Biaxin it it was long Qt syndrome.


Well seeing as Babs ( as well as malaria ) is a red blood cell protozoan parasite I would think Alinia can be used for that. I never heard of alinia for malaria though. I took it and couldn't tell what symptoms was for what infection. My feet puffed up so swollen I couldnt get my shoes on and the skin on the bottoms started to peel. I always thought that was a bart symptom???????? Alinia made my pee greenish too. I pulsed it with biaxin and rifampin. Rifampin makes pee orange+alinia green well that was some interesting stuff I was peeing at the time.
Posted 6/1/2016 3:40 PM (GMT 0)
I will be off the Rifampin and biaxin the days I do Alinia. So, I can't look forward to the weird pee color.

Feet issues are often bart - but it's usually pain/stiffness...not heard of skin peeling off...or swelling...maybe that's Babs?
Posted 6/5/2016 8:23 PM (GMT 0)
Girlie did you start the alinia?..are you pulsing ?.omg it is getting something i am one hurting unit..
Posted 6/5/2016 9:53 PM (GMT 0)
Sorry, Bluelyme - I meant to say I would be off the Alinia on my Rifampin and biaxin days.

I am pulsing my Bart protocol...and doing the Babs when I'm not taking the bart meds...right now it's Artemisinin.


i must have been having a bad brain day when I posted that...sorry for the confusion.

I haven't been able to get my hands on a Pharma for Babesia, and Alinia was the one I was thinking of trying.

Sorry you're suffering - pain is one of your symptoms? It is with me...it sure wears on me.
Posted 10/11/2017 1:04 PM (GMT 0)
Hi Girlie, I am on similar protocol right now- doxy everyday, alinia and rifampin pulsing both on alternate day, the days i take rifampin, I don't take alinia, I was wondering did it work for you? I was planning to do both now everyday, I don't know If that would be too much. My main symptom is heart palps along with heavy beating all over body, and a feel like my veins mainly facial are expanding. I am also doing buhner.

Girlie said...
Sorry, Bluelyme - I meant to say I would be off the Alinia on my Rifampin and biaxin days.

I am pulsing my Bart protocol...and doing the Babs when I'm not taking the bart meds...right now it's Artemisinin.


i must have been having a bad brain day when I posted that...sorry for the confusion.

I haven't been able to get my hands on a Pharma for Babesia, and Alinia was the one I was thinking of trying.

Sorry you're suffering - pain is one of your symptoms? It is with me...it sure wears on me.

Posted 10/11/2017 1:49 PM (GMT 0)
I am thinking of going that route like take Alinia 20 days on and then off, while on doxy and rifampin. Currently i am taking doxy everyday, with rifampin/Alinia on alternate days, but I have this feeling I am not reaching lethal concentration in blood for both drugs, may be pulsing your way will be better. So were you able to take Alinia same day as Rifampin? How you are feeling now?

jrpsf said...
Girlie I've most commonly seen Alinia used for treating Bart not Babs. Regardless of that if it work who cares what you are taking it for.

I took 500 mg twice a day but when I just took Alinia I found it didn't do much except cause hair loss....now that was after a few months of taking it with other abx's so don't let that scare you as I wasn't anywhere near to having bald patches etc. Just was noticing that when washing my hair substantially more hair was in the drain.

I felt that the alinia was much more effective when combined with the other abx's.

I pulsed the alinia 20 days on and 20 days off with Biaxin and rifampin, taking no breaks on the other two drugs.

Posted 10/11/2017 5:46 PM (GMT 0)
inom - I never did do the Alinia.


I'm currently taking Mepron with Ceftin and azithromycin (pulsed) along with Artesunate.
Posted 10/11/2017 6:12 PM (GMT 0)
Ok, Thanks.

Girlie said...
inom - I never did do the Alinia.


I'm currently taking Mepron with Ceftin and azithromycin (pulsed) along with Artesunate.

Posted 10/11/2017 7:19 PM (GMT 0)
I'm on alinia now. Wow. I think it is making me super nauseated. Did this happen to anyone else? I almost wonder if it is from the dying babesia rather than the drug itself. Mepron makes me nauseated too.
Posted 10/11/2017 9:25 PM (GMT 0)
interesting you should mention nausea, Sheeks.


In my three years of treatment I've had NO nausea.

Since I started treating Babs with Mepron, I now am getting it - very low -level though...and just once in a while.

In my case I don't think it's the Mepron itself...but maybe a die-off of the Babs (i.e. herx) because I am on my 5th day off and I had a bit of nausea yesterday.
Posted 10/11/2017 11:36 PM (GMT 0)

Sheeks175 said...
I'm on alinia now. Wow. I think it is making me super nauseated. Did this happen to anyone else? I almost wonder if it is from the dying babesia rather than the drug itself. Mepron makes me nauseated too.

I think I got mild nausea when I started it, its been one month now and I am also taking doxy and rifampin (4th month now ) and I remember pretty bad nausea first few weeks of starting them too. In my opinion nausea is more related to gut getting robbed of micro biomes, and when I take probiotic and saccharomyces boulardi, it always get solved.
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