(No Subject)

Hi,

I've just joined the group. Thank you for this forum... After 1.5 years of suffering with primarily psychiatric symptoms (totally out of my character), emptying my savings to see what seems like 100s of allopathic and alternative healthcare practitioners, and a virtual stopping to my once vital, vibrant, and non-stop lifestyle, 2 LLMD's have just diagnosed me with Lyme/Bartonella. I am in denial--though I know something has been amiss for this entire period.

It began with Interstitial Cystistis out of nowhere, progressed to severe panic, depression and suicidal thoughts (I LOVE LIFE!!!), to cognitive issues (loss of words-and I'm paid to speak for a living as a professor and corporate exec), deterioriting handwriting, memory issues, joint pain and inflammation, lower back pain (could be from yoga , and hopelessness.

I did take the Igenix tests. Results as follows: IgM;+ for band 31, I for 39, + for 41, ++ for 58 and + for 66.
IgG: I for 31, ++ for 41. Any insights?

I started, begrudgedly, xithro yesterday--horrible stomach effects--upping to 500 mg tomorrow, to be followed by Rifampin next week. Have only done natural/holsitic remedies for nearly all little ailments prior. Was also put on about 10 supplements and asked to get more bloodword and brain MRI.

I thought I just had mid-life crisis and hormonal imbalance! So, any feedback would be SOOO appreciated. I feel totally overwhelemed and frightened that I have become a "sick" person and won't get my life back.

Healing and light to all,

Thank you so much for the prompt response, Girlie! Excuse the typos. I am a bit bleary eyed. The 31 was + on the igM and I on the igG. So, in your opinion, I have it? 150 mg 2x daily for rifampin to begin next week in addition to the xithro. I told doc about my sensitive stomach. What is EBV, by the way?

I trust that you are feeling well and healing!!! I fully expect healing with the antibiotics if my stomach can hold out. I am also doing supplements and praying that I do not experience worsening of symptoms (Herz?) as I have much work, travel, school, and an imminent residential move. 🙏 But I am so eager to rid my system of the bacteria, assuming there, from the 🐜🐜! How do people function, work, travel, workout and live life while undergoing treatment? (Mostly rhetorical....).

Have a peaceful night. Thank you again.

Hi,

I sooo need support right now (what's best way to post to whole group)? I haven't yet started the Rifampin. Doc switched me to Minocycline from Xithro today due to stomach issues. I have one doc saying it's Bartonella and prescribing the combo of Minocycline (2x day) and then adding the Rifampin (2x day) next week. The other I saw said it's not Bartonella, but just Lyme, and was adamant that this treatment protocol won't address the Lyme. I'm so confused and upset. Who do you listen to?

I'm also wondering about psychiatric symptoms from either/both--do they go away with antibiotics or necessitate an anti-D as well? I feel like a pill popper and have only prior done all holistic remedies.

New symptom of teeth pain/sensitivity... In my head?

This is so debilitating. I would love to hear about success stories and full healing. Anyone?

Thank you.....

I'm so sorry for your suffering, TxBart. I'm also thrilled to hear you are getting better with treatment. What are you using? Herbal treatments? Other?

Thanks kindly for the feedback and advice. I truly needed it.

Have a good night.

I’m not tolerating the antibiotics... Stomach issues. Doc wants to do IV?! Daily. Seems crazy. Says I’m too chronic for herbs. Who has healed with herbs? I’m not definitive for Bartonella but being treated for treating for that and Lyme.

Hi MIndful67,
Welcome to our forum, I can tell you that if you keep treating, try to do your best at detoxing and building your immune system up there is a very good chance that you will get better.

I have been treating for just over a year and yes there have been many ups and downs. There have been times were I really struggled with the thoughts of if I would get better or not.

There also were times were I was just plain sad, fearful and feeling alone with these infections.

This forum has helped me through it all, and even if I wasn't posting a question, just reading other posts can be very helpful at times, especially at our darkest moments.

Then there is the best part, we can all help each other here. Maybe we don't always have all the answers but we can offer support and a shoulder to lean on.

I just want you to know that I am about 93% better after a year of treatment. I am still slowly improving and I believe it will just take some more time, but I will get there.

I always remind myself that I had these infections for quite some time without being properly diagnosed so I just have to keep focusing on moving forward and getting to the finish line.

It takes time and many adjustments but we will get there.

Take care and I wish you the best of healing, Jo