I saw a new Neurologist today, should I talk about Lyme?

I realize now that I made a mistake not checking to see if this guy was LL or not, but I went to Neuro today for this numbness thing that happens periodically.  Every time I get emotionally upset I get this wave of numbness that radiates around the left side of my head and face down to my torso.  Aside from that the left side of my face feels like there are places on it that are numb. 

Anyway, I went to the neruo and told him about the 20 year diagnosis of Lupus and Fibro, I didn't mention Lyme.  He did some office tests and the most remarkable one was when he started tapping me with a pin, on the entire left side of my body it felt like he was touching me with a finger instead of a pin.  He wants an MRI with contrast of my head and neck, he says that the only thing that could be causing this is something going awry with the right side of my brain.  Apparently as we age, we get something in the brain that he called some kind of spots, I don't remember exactly what he said those were called.  It is normal to have 10-20 at my age.  He wants to see how many I have and see if there is anything else going on there  He said that when the test comes back it will list a bunch of things that cold be the cause of what is making this happen and one of the things he mentioned was Lyme. 

I was too afraid to say anything about the Lyme.  He was already kind of pushy when I told him I didn't see a Rheumy for the Lupus, and that my primary doc sees me for that. 

Give me feedback, please, I want to hear what someone else thinks about it and if you would mention the Lyme or not.

Thanks!

Pomfrey,

due to a lesion in my left eye my eye Dr. sent me for a MRI. they did both eye and brain. my brain showed 10 to 15 lesions in the frontal lube. there was 6 resons listed as possable causes. 3 cancer related, lyme, migrains, and viral infecton. so i had a lyme test done. came back positive for IgM.

i was sent to a neuro by my ID to rule out MS first b4 he would treat me for lyme. well i did that and still he tells me he doesnt belive i have lyme.

my neuro knows i have lyme as i showed him my test. well i just got my test report today on a EMG i had done. in it he listed i have possable lyme disease.

so its my thinking your dang if you do and danged if you done. you have to follow your gut and do what you think you need to do.

i wish you all the best

frustrating isnt the word for it, i am way pass that now. totally teed off is what i feel.

Howdy Pomfrey :)
How are ya today? Sorry dumb question but i can still hope you're doing as good as normal.
(That question was made up by the devil himself i could bet!)
I hope things are getting sorted out for you! I had your symptoms too all on one side and weakness too. actually still have the weakness on one side according to my hospice dr. a couple weeks ago.

YIKES. Ooo ooo, i know your question though, it's like the flippin unspeakable subject cause God forbid anybody over hear ya in the doc office.
Maybe it was just my big mouth?
Yeah that was definitely part of it...has gotten me into some not so friendly uhh i'll just say 'creative discussions' and they're 'hott'-so apparently very in fashion these days :D hehe.

SO what i've kinda learned to do after feeling out the doc a little bit, (for whatever the heck this is worth to you comin' from me lol), but i've rolled over and played dumb (about dead too a couple times but that wasn't on purpose on MY part *cough idiotic doc cough lets pray he doesn't reproduce cough cough* haa) Spacie No Brain Teenager, cause we teens ain't got no brains right? lol well there's no denying it wasn't a hard role to play...either that or i'm dumber than i thought LOL, wouldn't surprise me lol.

Anywayy I just kinda figure out a way to make it look like the doc came up with the solution.... I just try to frame w/e i'm saying about Lyme Disease in a question. (hahah sometimes i've said 'Borrelia Burgdorferi' and some docs actually didn't know what that was LOL. NOW who hasn't done their homework...ah!...very creepy.)

I don't know exactly what you're thinking you want to tell him about Lyme though... that you've been diagnosed?? Ya kinda lost me there. But the brainless dummy works for me, maybe somethin' like that would work for you too...? Maybe print some reliable info out to counter what he could say that's not correct about Lyme? Or maybe only consider telling him if there would be med interaction possibilities???? Beats me i'm just tryin' to help, tryin' but failin' i get the feeling, sorry.

Dagum, what neuro did you go to? I go to a local neuro, right here that is..well he's Lyme friendly and purdy open minded. i really love the dude, he has mucho stuck up for me and is really a brilliant man who knows his sheeet. My mom recommended him to a VERY dear lymie friend from SC and he found chiari malformation! that multiple other neuro's were clueless!!! likely clueless cause they saw the L word on the dagum records. Did dr. NS give you the name of the neuro you saw? If he did, it's probably mine. dr. NS knows his stuff too!! (lucky for us!!)

Okie doke smoke my brain is more bbq now, i hope i was a little help at least..
Hope you're feeling better soon.
~ Spacie Grrracie

I just saw a new neurologist because of left side numbness issues that often coincide with pain in the right side of my neck.

I gave her a copy of my positive Lyme results and my SPECT scan of the brain that showed Lyme/ Fibromyalgia/ chronic fatigue indications.

She admitted she didn't know much about Lyme. 

I told her about the 5or 6 other neurologists and rheumatologists I had seen . I also told her the only help I got was from LLMDs.

She increased my neurontin dosage and said she would talk to an infectious disease doctor.

At my next visit with her in Sept. I am taking copies of the many pages, actually folders, of info by LLMDs about chronic Lyme.

saxmar

don't tell him. he already suspects it. just see where it leads.

bleepitybleep - Spacie Gracie hasn't posted since 2014 - I'm not sure if you'll get a reply to your post.


But, I do see her email is enabled...so maybe send her an email anyway?