Fasciculations

I am almost positive they are Hoagie. That was one of questions the NP asked me at the JC clinic.

Thank you. I am going crazy here. An uptick in all symptoms. Almost constant fasciculations, numbness in some fingers and toes, stiff uncoordinated hands, can hardly walk now. My core feels weak now. It's a little more challenging getting up from laying down and even rolling over. It's not super hard, but it takes more effort than usual.

Are you on any gabapentin, Hoagie?

Fasciculations were one of my first symptoms...within a few months I got them all over my body.

I didn't know I had lyme...at that point. One Dr. I saw instructed me to take magnesium...which I did and kept increasing - it didn't help mine.

Only thing that helped was treatment.

Evanston1 said...
Hoagie- what infections do you have? Which labs have you had your blood work done through? Igenex?

I'm not sure of the lab. I do know it wasn't Igenix though. I tested positive for Lyme, Mycoplasma, and active EBV. But I am treating all 3 Bs. Not sure about babs. But I am almost positive I have bart despite the negative test result.

I always thought my twitching was bartonella.

And it resolved after lyme and bart treatment. Would appear randomly every now and then.


It flared when I treated Babesia.


I'm starting to think that there is more overlap than i thought.
Maybe some symptoms are caused by all three B's.

Ok thanks for listing those. I m just hoping someone might see it and think of something that may help.

I would look into some of these they might be helpful.

Buhner p. 218 2nd ed.suggests for severe brain/CNS involvement to add:
Scutellaria baicalensis tincture,

plus Chelidonium majus(greater celandine) tincture:1/4 tsp 3X daily

plus pueria lobata(kudzu root tincture)1/4 tsp 3-4X daily

NAC may also help:2000 mg 2X daily, as will...

Leonurus cardiaca(motherwort) fresh plant tincture: 1/4 to 1/2 tsp to 6X daily.


I believe that can be added to the Neuroborrelis protocol which includes these: Uncaria rhynchophylla tincture 1/2 to 1 tsp 3-6 X daily , and Tryptophan1500 mg 3 x daily(note: will lower brain inflammation) from Buhner p.217


Since you have heavy neuro involvement Some of this could help.

So when I was hospitalized with extreme numbness that went to whole body(including head) heavy numbness and going downhill fast(other bad neuro symptoms also),

I started Buhner's Neuroborrelis protocol and added some things for numbness and twitching, B12, B6,Sida acuta, folic acid,magnesium and he does suggest the gabapentin too( I never used that though).


These protocols along with the ABX I was on at the time did help to turn things around for me and lessen my symptoms and got rid of some of them all together.

Another key thing is to use herbals that will do remyelination of neurons that have been damaged: Salvia miltiorrhiza, Withania somnifera, Uncaria rhychophylla help with that.

To restore neuronal structures,;polygala senega(Chinese senega root).

Just some things to research and check out.

I hope the best for you and your family and just wish we could figure this out and get you some relief from these symptoms.

Take care, Jo