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Posted 12/10/2017 10:22 PM (GMT 0)
I was diagnosed with Bartonella and Lyme last January. I started treatment with herbs at the beginning of the year, and I felt fantastic. Symptoms I had for 7 years were gone! I did two rounds and decided I was done. My son was recently diagnosed with Celiac disease so we are now eating a gluten free diet. All of a sudden I am back to feeling horrible. Not all my symptoms are back, the worst is still gone. But I am extremely fatigued and my skin is crawling, I also have allergies that I have never experienced before. What is going on? Is this die off? Did I not completely heal? Did I have another co-infection? The skin crawling and itching is driving me crazy. And it's hard to get out of bed again. I have been well for so long, that I really thought I was done with this. I would greatly appreciate any thoughts.
Posted 12/10/2017 10:48 PM (GMT 0)
Resurfacing symptoms. Super frustrating!

I am not familiar with herbals but how long did you treat for? Did your doctor keep you on your treatment plan 2-3 months past the resolution of your symptoms? What were you taking? All this info will help other folks better answer your questions.

Sorry you aren't feeling well. Hopefully we can get you some answers.
Posted 12/10/2017 11:02 PM (GMT 0)
Rounds usually describe antibiotics, not herbs. With herbs you take them 2-3 months after all symptoms have gone away and many do a maintenance dose of herbs after that.

Hubby and I did not do it that way. Hubby quit his herbs way too soon and relapsed. He went back on the herbs - starting all over and adding in one by one and finally got 2 months symptom free under his belt and quit again.

But all the time both of us detoxed like it was a full time job and we ate,slept and gently exercised with the focus on building our immune systems.

From everything I have read, that is what you do with lyme disease. Many people are bit by ticks and do not get lyme disease. I believe that a trauma happens (or Dr. Rawls calls them system disruptors) and the immune system is weakened and lyme begins to flourish.

Can you think of something that was a trauma or drama in your life about the time your symptoms returned?

I still have to remain stress free and out of the drama or I know I will get lyme symptoms again. My lyme was brought on by a hangover. I so regret partying with girlfriends to get that ill. Never again.
Posted 12/10/2017 11:12 PM (GMT 0)
These infections can take some time to go away and yes if they weren't treated long enough symptoms will come back.

Most people have more than one infection.

I would be asking the same questions above like PeppermintTea did.
Posted 12/10/2017 11:30 PM (GMT 0)
sounds like parasites to me
Posted 12/10/2017 11:46 PM (GMT 0)
I did two 30 day rounds of the Buhner protocol with a two week break in between. To my understanding it was a 30 day treatment, if you didn't feel better after the first treatment, you would repeat the process. I must have misunderstood something. My doctor wanted to try to heal my sever stomach problems before starting antibiotics. He had me on a diet and taking probiotics for two months. I figured I would try the herbs while I waited. It worked so well that I decided to continue on them and not take the antibiotics. I was afraid they would destroy what little hope I had of healing my gut. Sorry for the poorly written response. I'm so tired. It made more sense the first time I tried to post a response, but that one didn't go through for some reason. Thanks for your help!
Posted 12/10/2017 11:48 PM (GMT 0)
Severe not sever!
Posted 12/11/2017 2:39 AM (GMT 0)
Were you doing Buhner's Babesia treatment?

I know people have posted that his book says 30 days.

But, I think people are not stopping at 30 days...not that I've seen/heard.


I found a thread on it:

/www.healingwell.com/community/default.aspx?f=30&m=3745256
Posted 12/11/2017 2:59 AM (GMT 0)
Thank you so much Girlie! That was extremely helpful!
Posted 12/11/2017 6:24 AM (GMT 0)

sevenyearssick said...
Thank you so much Girlie! That was extremely helpful!

Glad to help!
Posted 12/11/2017 8:49 AM (GMT 0)
Hi darrylG - welcome!


I read some of the posts...and it looks like Buhner DID say not to go over 30 days.

"However when I read Buhner's info, I see him repeatedly saying not to use certain herbs for more than 30 days including CSA and artemisinin.

" If so, I would use cryptolepis, 1 tsp 3x daily of the tincture for 10-14 days for babesia. 3x daily is what I use for antibiotic resistant staph infection of long duration. Normally, babesia should not need to be treated for months and months with artemisinin. If it works it should work within 30 days max. Although cryptolepis has no known side effects or contraindications it is a strong herb and I definitely would not go over 30 days of use."


That was for cryptolepis.

I do know that the Artemisinin should be pulsed. But, the whole herb, Artemisia doesn't need to be.
Posted 12/12/2017 3:02 AM (GMT 0)
Thanks again Girlie. We will read further on that discussion.
Posted 12/12/2017 3:14 AM (GMT 0)

darrylG said...
Thanks again Girlie. We will read further on that discussion.

He doesn't say why not to go over the 30 days...what will happen?


I've used it more than 30 days...and I'm still here.


Many people do use it more than 30 days...
Posted 12/12/2017 3:38 AM (GMT 0)
Honestly, it sounds like Candida to me. Second guess parasites. From what you've said, it sounds like a gut-related issue.
Posted 12/13/2017 1:10 AM (GMT 0)

Girlie said...

darrylG said...
Thanks again Girlie. We will read further on that discussion.

He doesn't say why not to go over the 30 days...what will happen?


I've used it more than 30 days...and I'm still here.


Many people do use it more than 30 days...

Good to hear there's nothing wrong on using it for more than 30 days.
Posted 12/13/2017 1:28 AM (GMT 0)
Thank you all so much! I thought it was parasites, but I have done two "cleanses" with no results. One using pharmaceuticals and one herbal... nothing. Anyways, I'm thankful that more people are using Buhner's protocols, and we can share our experience. Does anyone know where the whole "use only one drop at first" thing came from? I have multiple books and that is not what my books say. My books say to start with a 1/4 teaspoon, and increase to a 1/2 teaspoon. I got a mildly rebuked for mentioning what I did, even though I did what the book told me to.
Posted 12/13/2017 2:18 AM (GMT 0)

sevenyearssick said...
Thank you all so much! I thought it was parasites, but I have done two "cleanses" with no results. One using pharmaceuticals and one herbal... nothing. Anyways, I'm thankful that more people are using Buhner's protocols, and we can share our experience. Does anyone know where the whole "use only one drop at first" thing came from? I have multiple books and that is not what my books say. My books say to start with a 1/4 teaspoon, and increase to a 1/2 teaspoon. I got a mildly rebuked for mentioning what I did, even though I did what the book told me to.

The low and slow that many of us recommend is because some people are very sensitive and will be affected by even a few drops of a tincture.

Starting at 1/4 tsp 3x day I think is the low end dose for many of Buhners Herbs - but that can cause a herx for many of us.

Everyone is different though and some people do start higher and increase quickly.
Posted 12/14/2017 5:30 AM (GMT 0)

sevenyearssick said...
Thank you all so much! I thought it was parasites, but I have done two "cleanses" with no results. One using pharmaceuticals and one herbal... nothing. Anyways, I'm thankful that more people are using Buhner's protocols, and we can share our experience. Does anyone know where the whole "use only one drop at first" thing came from? I have multiple books and that is not what my books say. My books say to start with a 1/4 teaspoon, and increase to a 1/2 teaspoon. I got a mildly rebuked for mentioning what I did, even though I did what the book told me to.

I've only been on the forum a few months, so I can't say as to the forum guidance on the doses. I can tell you from my personal experience on Buhner's herbs that I get strong reactions from just a few drops of tincture. I'm very thankful I'm one of those cautious people who read up and research everything before trying it. If I was one of those who just jump right in after hearing about something one time, I cannot even imagine the pain I would have endured if I had tried to take ALL the herbs at Buhner's starting doses at once. Just thinking about it makes me shudder. I'm sure I would have ended up dead or in the ER from a cytokine storm or liver/kidney failure. I'm 7.5 months into treatment and still on TINY doses of the killer herbs. I've had herxes all throughout treatment, even days after adding or increasing herbs.
Posted 12/14/2017 6:12 AM (GMT 0)

sevenyearssick said...
Thank you all so much! I thought it was parasites, but I have done two "cleanses" with no results. One using pharmaceuticals and one herbal... nothing. Anyways, I'm thankful that more people are using Buhner's protocols, and we can share our experience. Does anyone know where the whole "use only one drop at first" thing came from? I have multiple books and that is not what my books say. My books say to start with a 1/4 teaspoon, and increase to a 1/2 teaspoon. I got a mildly rebuked for mentioning what I did, even though I did what the book told me to.

What were the two "cleanses" you mentioned? Would you name each?
Posted 12/14/2017 11:51 AM (GMT 0)
I’ve had all over itching/crawling. Lasted for about 6 months. about 6 months prior I was diagnosed with rosacea. We then bought a new mattress and the itching started. Traded it for another one (found out allergic to latex which first one had) but still itched/crawling sensation with second one. It was worse at night but still present during day. My husband had no ill effects. I was convinced it was either the mattress (chemical sensitivity) or demodex mites (there is a link with rosacea). I washed with sibu sea buckthorn soap and loaded the oil mixed with moisturizer all over my body. It seemed to help. I know mites exist on us all but can get out of control if you have a weak immune system. So no idea which it actually was but thought I would share my story in case it helped! The mattress still seems to bother me - but other neuro stuff (restless leg). So itching could also just be a neuro manifestation.
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