Update on everything(Late stage Lyme,possible babesia and according to LLMD STREP)

Sounds like you've made good progress, Chris. Keep at it -youre doing well!
Your LLMD is very experienced.


"My Lyme is fortunately "only" late stage, according to my LLMD, since it's on and off"

What do you mean 'only' late stage?



"The Lyme and possibly Babesia will clear within months because I caught it before it turned chronic."

Did you not have lyme since your bit in 2014? If so, your lyme is chronic.

I thought you had it since 2014?

Late stage = chronic

Okay, but the fact that she said that my tick-borne diseases wasn’t that big of a deal, is a really good sign still right?

Since it doesn’t seem to be persistent or cause any major symptoms.

Thank you PeteZa, I’m just happy to live a perfectly normal life, without any difficulties, my workout has never been better, I just went 6 miles on a bicycle in 15 min and did 1.5 hour workout afterwards with 15 min of sauna to finish it off, amazing feeling!

I decided to extend my stay here in the states so I’m going home in September. Is it too optimistic for my llmd to say that it’ll all be cleared by then?

She will now put me on Vitamins A/B’s/B6/B5/E/D continue on cefuroxine, finish Zithromax and start on biaxin / clarithromycin, oil of oregano, perilla pearls, b-active and a lot of other stuff I can write down if anyone is interested

Through a IgE, ASO and Streptozyme Titer were all high.

My symptoms were/are swollen glands and tonsils, rheumatic arthritis and rash/spots in around face/neck area that come and go like crazy.

Chris I remeber you lol. If I remember right, you had similar symptoms to me.

I am often wondering about strep / PANDAS. I was hospitalized by strep about 5 years ago. Prior to that, I got strep throat twice a year every year since my kids started pre-school.

My LLMD tested for strep antibodies and mine were still super high. He didn't say anything about why he was testing for it, or comment on the results.

I am trying to learn more on the strep/ PANDAS/ lyme connection.

No, strep does not seem to be my LLMD's his main concern.

However, there was one question out of two hundred on the pre-visit checklist/questionairre. I think the question said- Have you ever had strep throat before?.

During my first appointment as we were going through the health history he breezed through it and quickly moved on to the next section.

I was surprised when I got back home to find that out that of several blood tests I was to do, 2 of them were to test for strep antibodies.

Also to my surprise 2 of them came back really high. Here I dug up my tests and here is what they were:

anti-streptolysin O 527 (normal range 200IU or less)
Dnase B antibody 347 (normal range 301iu or less)

His practitioner called me when the results came in and didn't mention it. He also sent paper copies with his notes on it and didn't write anything on that result.

My Lyme Western Blot came back with 2 bands IGM (39, 41) and 4 IGG (30, 41, 58, 66) so I guess he wanted to focus on lyme.

Could Strep light up the Lyme Western Blot? Is there a Strep - Lyme connection? Is Strep just another co-infetion that comes out when Lyme jacks up your immune system? Can adults get PANDAS? I wonder if the Strep episode that almost killed me left lasting damage?

I have not had a bonafide case of Strep for about 5 years. Although there were a few times I was feeling rundown and started getting that feeling like Strep was coming on, but it would pass. I would be getting that "Strep crash" feeling (woozy, behind your body, malaise, extreme fatige, pale skin, temparature dysregulation). Then I would have a moderate sore throat for a few days then it would pass. Could those episodes have been Strep? maybe

I have been treating Lyme with antibiotics for 5 months now. I took a break after month 4 to see where I was and how long I could go before symptoms come back. On my 8th day I woke to a moderate headache, mega twitching everywhere (especially the glutes), crappy run down feeling. To my regret, I decided to plow through it without taking meds. I went to play volleyball that night hoping it would make me feel better. Boy was I wrong. I started tocrash near the last game and could barely make it to the car. By the time I got home I was at 103 fever curled up on the bathroom floor in misery waiting to use the shower. Thrashed in bed all night with sweats fever and headache, oh yeah and sore throat.

I started Clindamycin and within 12 hours started to feel better. After a few days not too bad.

Was that strep? maybe Sinus infection? maybe? Lyme, Babs, Bart? no idea

It's all so confounding

The strep episode that almost did me in was about 6-7 years ago I think. oral anti-biotics were not working. My throat was closing shut and I was having trouble getting air to my lungs. They gave me a few antibiotic and steroid injections and I started to recover. I had a few more injections over the next week at my doctors office. It seemed to pass.

Sorry for my whole strep life story. hahaha hope you like a short novel.

I will ask my LLMD about it more on my upcoming appointment in about 3 weeks.

Post Edited (Missouri) : 12/29/2017 10:01:45 AM (GMT-7)

Chris12321 said...
Hi again and sorry for the long response

I have been feeling really good lately, my energy is still really high but at this moment(22.54, 6th of Jan) I looked myself at the mirror and saw a lot of rashes. All very itchy and annoying. It was itching on my body as well, so I decided to take a look.

Oh boy I had huge rashes on my back and my neck.

Those are the only symptoms... No twitching, no pain, no low energy(my workout session was the best I have had in 3 years).

I did eat A LOT of red lenses pasta(to avoid gluten) and meat substitute(crumbs of some kind?!) and tomato marinara sauce(with 6g of sugar per cup). I ate 4 portions but the itching started shortly after... Are there any connection? Besides the red rashes I have also gotten a lot "dust-looking particles" in my face that my LLMD told indicated strep, big time...

It's terrible, I can eat and eat and eat but now I'm starting to think that the most part I'm really feeding are all harmful bacteria in my body... I weigh 160, and I'm 6.1 foot. I remember doing a challenge 4 years ago of trying to reach 190 pounds in 1.5 months for the Christmas of 2013. I weighed 170 and were able to gain 20 pounds in such a short period, but I can't do it now... I eat gluten-free, dairy-free, alcohol-free and very little to none sugar.

Has anyone experienced the same?

Hi Chris,

I don't have that myself, but I know a lady who is now in remission - and she has erythema nodosum.
She said it only flares when she eats food from the nightshade group.

I'm wondering if the tomato sauce could have triggered it for you.

Although that doesn't explain the dust looking particles and inability to gain weight.

Are you and your LLMD confident that you don't have active Lyme or a coinfection that still needs treatment?
What is the plan for treating the Strep? Maybe that's what is needed.

I have dug further in the ACA matter and according to this website

https://kimmiecakeskickslyme.wordpress.com/2013/09/23/lyme-and-aca-the-herx-rash/

I do not have anywhere near these kinds of rashes. Mine are for the most part in the face and disappear as fast as they come.

And a further elaboration Girlie, I'm getting off the antibiotics fairly soon, and will take Perilla Pearls(and then Golden Pearls), Vitamin A, B, B5, B6, B12, B-active, D, D3(10000 iu), and E. Oregano Oil as well. According to llmd I am continuing Buhner(I am taking low doses though as should continue this way, due to all these new products).

But MAAAAN it's gonna be expensive, I earn $200 a week and I'm literally using all of those on llmd and medicine/supplements.

Definitely - the weight gain is a positive indication.

I had lost about 14 lbs when I first got Lyme. The weight loss happened quickly - and I couldn't gain it back until several months after I started treatment.

I’m glad to hear that Missouri!