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Posted 12/30/2017 5:07 PM (GMT 0)
Sorry I feel like I've been posting a lot lately! I feel so beyond awful the last few days, the switch happened out of no where, I had been doing fairly well for awhile and feeling encouraged that treatment is actually working, until recently! I can't get out of bed, I'm exhausted, my whole body aches, the pain moves around my head, my back, my legs and my stomach is not right either. I feel dizzy and off as well. I have the weird headache that moves around, it will be a vice in the back then it moves to the top and in front going into my nose like a weird nervy pain. My llmd is off for the holidays so other then upping my detox I don't know what to do, I feel so beyond discouraged! This disease really messes with ones head, you get excited to feel normal and then bam thrown right back into misery! I'm really scared and feel lost!
Posted 12/30/2017 5:39 PM (GMT 0)
Hi no need to feel bad about posting...that is what our forum is for.

Many of us have been scared and not sure what to do before.

I would back down and/or stop taking anything new you have added in the last few weeks.

Take binders and continue detoxing.

Is there another llmd that covers for yours when they are away? I would definitely give them a call.


When I have had major increases in symptoms(after adding new stuff, increasing doses or a flare up) it has taken me at least 2 to 3 weeks to get out of the cycle of it all.

Well I hope this starts to pass soon and please take care, Jo

Ps I know the ER is always helpful for Lyme and co but cant get a hold of the llmd that should be on call for your llmd, the ER might be able to rule out some things to ease your mind.

Post Edited (goshawk) : 12/30/2017 10:48:45 AM (GMT-7)

Posted 12/30/2017 5:44 PM (GMT 0)
i would stop the antibiotics for a few days...let your body catch up to the toxins...and of course try to focus on detoxing during this time.

Are you taking a binder? If not, that would be something to add in.

Hang in there...it will get better.
Posted 12/30/2017 5:50 PM (GMT 0)
I agree with everything that has been said above.

Baby yourself for a few days. Treat you like you would a sick and ailing friend. Make yourself some broth, tea and cuddle in a blanket and watch a nice movie.

One thing about lyme for me.... it never stayed the same for long. Before I knew it, something new would arrive.
Posted 12/30/2017 6:01 PM (GMT 0)
Thank-you! I feel so emotional too, sitting here sobbing! So happy to have a group of Lyme friends that understand what I'm going through! If I didn't have this forum I would be so very lost and alone!
Posted 12/30/2017 6:13 PM (GMT 0)
tony, you are not alone!
Posted 12/30/2017 6:27 PM (GMT 0)
HI again, do you currently take anything for the ammonia build up they say we can get in the brain?

A good tincture is Neuro-Antitox II CNS/PNS by Jernigans.

I started using it after I was having some major setbacks after being 95 % better. It has really helped a lot .

I think some members use Pinella and Burber to for the same issue.
Posted 12/30/2017 10:59 PM (GMT 0)
Thanks Goshawk, PeteZa and Girlie! I am taking yucca for detox which I believe also helps with the ammonia build up. I did have Neuro-antitox but I've been out of it for awhile, I guess it's time to get more. My llmd recommended l-ornithine as well. I feel incredibly depressed lately as well, not sure if that is part of my flare or herx or something on it's own, but everything makes me cry!
Posted 12/30/2017 11:17 PM (GMT 0)
Hi Tonyaraven, I just wanted to offer a little support. I, too, experience depression during a flare or herx. Depression isn't one of my major symptoms, but in those moments, it can be overwhelming.

Hang in there, and know that for so many of us, there are lots of ebbs and flows with these diseases. Just because you're going through a rough patch right now doesn't mean you have lost ground. Like others have said, focus on detoxing and try not to get discouraged. You can get through this!
Posted 12/30/2017 11:37 PM (GMT 0)
Thanks kB! I needed that! I'm trying hard not to spiral down, so it's good to know that it could be part of the whole flare/herx! I hope 2018 starts out better then 2017 is ending!!
Posted 12/30/2017 11:44 PM (GMT 0)
tony, I was a big cry baby with lyme. I think it messed with my hormones and I would just cry. I was depressed, anxious and crying..... oh and when I was lucky I was napping. LOL
Posted 12/30/2017 11:45 PM (GMT 0)
I'm with you on the New Year -- I am set for 2018 being a much better year for so many of us!
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