Morgellons and llmd treatment suggestion

Hi, I just wanted to get some feedback on some of my aggravating symptoms(sores all over scalp/itchy/biting sensations in right leg and torso,and one vision incident) I have been having which I have confirmed this morning by microscope is Morgellons. Unfortunately, and very disturbing.

I was doing pretty good about 90% better since Sept/16 until a few weeks ago when this got worse.

I could go on and on....it's just upsetting to add another issue to this Lyme stuff.

Anyways, I called my llmd and asked if I should be on any other medicine for this. He said that when you treat the Lyme ,you also treat Morgellons too. So He suggested I just stay on the zithromyicin and malorone I'm currently taking.

He doesn't do herbals but he is aware I am on Buhner's (lose doses so far, still slowly increasing).
Jk,Sida acuta,Andrographis, Cats claw-tomentosa,Cats claw-rhynchophylla,Salvia miltiorrhiza,scutellaria baicalensis.

Also thanks Trumpet123 for alerting me to this Morgellans in your post yesterday. If anyone else has some of these similar symptoms you might want to check it out to be sure if you have Morgellans or not. I really hope you don't have it.

Do you think I'm on the proper things to take care of this or should I add something else?
If anyone else has this what has worked for you?

Thanks I would appreciate any input on this matter, sincerely, Jo

I always reach for Buhner when anything comes up so this is what I found.

buhnerhealinglyme.com/herbs/herbs-for-morgellons-disease/

Jo, I am very unfamiliar with Morgellons. It definitely sounds scary.

I hope you find some relief.

Most of what I have read on the web is negative, so be very careful saying you have this to a doctor!!! Many patients have reported that their doctor told them they were crazy.

Most of us with lyme have been told we are crazy and it is all in our head. I just wanted you to be aware.

I will definitely put you on my prayer list.

Ginger Savely's website is www.gingersavely.com. Doctors can get her email address at that website and email her for her treatment protocols. (She won't send it to doctors.) There will be a Morgellons conference on April 29-30 in Austin, Texas. It's a great conference for patients and doctors. See www.thecehf.org for details. You can get an information paper about Morgellons by emailing the Lyme Association of Greater Kansas City at [email protected].

If a person has the fibers and sores, Lyme treatment alone likely won't heal it. I don't know a lot, but am friends with a few Morgellon's patients on Facebook. There is one gal that really knows her stuff on Facebook, but she doesn't have a 'Facebook group'. I can share her name in an email to anyone looking for support and guidance.

Morgellon's is connected to Lyme, and the person does need Lyme treatments, but they need more than what those without Morgellon's symptoms would need - plus doing the other things.

Traveler said...
If a person has the fibers and sores, Lyme treatment alone likely won't heal it. I don't know a lot, but am friends with a few Morgellon's patients on Facebook. There is one gal that really knows her stuff on Facebook, but she doesn't have a 'Facebook group'. I can share her name in an email to anyone looking for support and guidance.

Morgellon's is connected to Lyme, and the person does need Lyme treatments, but they need more than what those without Morgellon's symptoms would need - plus doing the other things.

The severity definitely matters. I can only speak from the perspective of mild to moderate Morgellon symptoms, not severe.

magoo2 said...
Like many diseases they can be more than one cause.
I had M and when we treated dental and then parasite it went away. I treated parasite first but M never went away until we treated dental. Just my experience

I'm wondering if you can elaborate on the dental issues you treated?

I did miss the question. I had a terrible dental infection that my regular dds missed. After that we had some cavitation issues. I highly suggest attacking the dental. Find a biological dds with an eav or a cavitat. My St. Louis doc is simply the best at finding dental and parasite-simon yu
After dental parasite find some ozone treatment and the Morgellons will be gone-dental will have to be double checked some months later-often it has to be done again. Find a biological dds who usues prp and ozone.

Post Edited (magoo2) : 1/1/2018 6:50:03 PM (GMT-7)

Dental is a big part of Morgellons and it sucks-you may have to get a cavitation cleaned out two of three
times-really sucks .Hit it hard. The only thing that sucks more is Morgellons!

Dental-parasite-ten pass ozone will cure Morgellons as long as you get the dental cleaned out

I didn't do it but I would check marcons also. I just learned of it

The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.

Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.

dacarte3 said...

The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.

Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.

Thanks for the reply. Can you give me some suggestions for addressing "gut parasites?"

The Sal said...

dacarte3 said...

The Sal said...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems.

Prior to my LLMD beginning treatment with antibiotics, I had some very general tooth pain on my upper left side. My dentist hasn't been able to see any problems. Interestingly enough, once I started doxy to treat the lyme the tooth pain disappeared. He's switched me from the doxy to flagyl, and I noticed that same general pain returning to my same tooth area. My dentist again, can't find anything wrong with my teeth.

I know I have Morgellons as I've seen the fibers, but it's been greatly improved since starting antibiotics, but I can't say it's completely gone.

Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.

Thanks for the reply. Can you give me some suggestions for addressing "gut parasites?"

I didn't do any drastic.

I took a couple of different antifungals. I drank fermented probiotic vegetable juice/drinks. The real deal probiotics that have a strong fermented smell and you can hear the bacteria in it. The legit kind, not the dead synthetic probiotics you find at the grocery store or CVS. I got mine from a company I thoroughly researched from Australia.

Boosting my gut biome (and thus my immune system as well) is the route I took. Turning my own biological army to fight against parasites, yeast and fungus. Then the antifungal was nystatin in powder form.

I've written some past post that more thoroughly explains what morgellon symptoms are.

Most people with Morgellon symptoms have lyme. But most people with lyme don't have morgellons. (yes I wrote that correctly).

A small minority of people with morgellon symptoms don't have lyme at all.

It's in this small minority of people did I dig deeper into my research, because they are some what like the "control group" because they don't have lyme.

So then what "really" causes it?

The answer is when a person's immune system is significantly suppressed and a person's gut flora is depleted (antibiotics is a common culprit of this) parasites, yeast, and fungus start to run a muck.

The person than gets a severe systemic infection of parasites, yeast, and or fungus. This creates morgellon symptoms.

Lyme just so happens to be that perfect storm of a immunosuppressive and gut attacking, automimmune, multisystemic disease that creates the bodily environment that can bring about this domino affect in which morgellons manifest.

Then on top of all of that we help further destroy our gut flora with ABX trying to treat lyme disease.

Edit: some others on this forum went a bit more hardcore with it and took anti-parastic meds. Some where designed for animals, which just shows you how desperate we lymies can get because the main stream medical community are not helping us.

GardenGirl12 said...
Hi,
This post is very helpful to me. I actually thought I had Morgellons years ago but was too afraid to tell anyone about it. I have seen weird fuzzball things in my clothing and bedding for years (look like white eggs covered in navy blue or black or grey lint - everyone else thinks is lint). I did make the mistake of telling three doctors about it over the years, and of course they all thought I was crazy. Recently I started taking wild oil of oregano to help with sore throat issues and heart pains (I was just diagnosed with lyme after many months of heart issues) and I am now getting bites at night on my feet and back. I actually feel a little pinch and then I turn on the light and can find a tiny black "bug" in the pinching location. I find red bite marks so I know I'm not imagining the bites. Last week I finally had the courage to put them into a plastic bag and sent them off to a lab (waiting to hear back). All these years I've been terrified about what this is and haven't wanted to look under a microscope. I have recently tried looking under one of those microscope apps and with that limited magnification, it looks like some sort of parasite hiding itself in fibers. It feels more stressful not having anyone to believe me than to have the actual symptoms. I just wanted to know if everyone thinks I should tell my lyme doctor right away (waiting for my first appointment next month) about it or just wait awhile until the dr. sees that I'm not crazy. I am just really hesitant to tell anyone else about it after years of being dismissed and I don't want the "delusional" mark on my medical records.

its great you actually looked at it under a scope

look at pics of Sarcoptes scabiei mites and compare what you found on your body to that. are they similar?

https://en.wikipedia.org/wiki/Sarcoptes_scabiei