Thoughts on my symptoms?

My GP wouldn't sign either. Most mainstream docs will not be much help to patients who may be carrying tick borne pathogens. They just seem like they will not even consider the possibility unless you walk into their office with a bulls-eye rash.

In my opinion, only a LLMD can rule out these infections. I made an appointment with an LLMD before I knew what the heck was wrong with me , and I have not regretted it one bit.

Trying to get an Igenex doc signature still may be a good idea, but keep in mind the doctor you get to sign may not really know what to look for in the results. My results were interpreted negative. I had 4 bands light up. 5 are required for CDC positive. Luckily the results went to my LLMD, not some Lyme Illiterate doctor that would just call and say "your tests are negative, go see a shrink".

Hopefully if you did get a doc to sign, they would let you see the results. I had a doctor that resisted giving me my first Lyme test results.

magoo2 said...
https://www.youtube.com/watch?v=E1pfeGyuoqo


You may consider seeing a biological dds

I should have said this sooner. ENT and vestibular therapist ruled out Menieres and Vertigo recently.

Interestingly, I have a metal wire behind my two front teeth but it's been there for 15 years.

Post Edited (duder12) : 1/20/2018 8:45:29 AM (GMT-7)

Girlie said...

duder12 said...

magoo2 said...
https://www.youtube.com/watch?v=E1pfeGyuoqo


You may consider seeing a biological dds

I should have said this sooner. ENT and vestibular therapist ruled out Menieres and Vertigo recently.

Interestingly, I have a metal wire behind my two front teeth but it's been there for 15 years.

I do, too.

Did you have braces - and the wire was placed to keep the teeth from shifting?

They are usually made of stainless steel.

Yes and yes.

duder12- seriously find a biological dds and get check-and ent and my normal dds missed a major infection. That metal wire sounds extremely suspicious-any other metal?

Traveler said...

duder12 said...
I haven't made any progress on an LLMD yet but my condition continues to get worse.

I now have worse body aches with no relief and it has moved up to my face/jaw even. My skin and mouth feel dry. My skin also feels like it's sunburned and have had some tingly sensations but not very often. The sunburn feeling is on my back and arms and is really tough to deal with. The muscle aches and sunburn are constant.

The dry mouth gets the worst at night even though I run a humidifier. It is typical dry winter though so maybe that's contributing to it. I should also mention I did get a massage on my back neck arms and that's where most of the sunburn feeling is. I'm hoping that is contributing to it and it goes away soon. I have had the feeling before the massage but not near this bad.

Can I ask what is going on with you not being able to find a LLMD? Sorry, I don't know your whole story, or where you live. If you live in an area like I do and there are no LLMD's within a decent travel distance (I would have to drive 8 hours each way - un-doable for me). What obstacles are you facing? Maybe we can be of help?

I just moved to the twin cities area and am having to move all my medical here. My prior appointments to this post were not here.

Also, Lyme isn't the only thing I'm being told and/or thinking I could have. I also have had shingles in the past so I need to explore that avenue. I also need to work on stress and anxiety as that could be it as well. As you can see another poster wants me to remove a wire from my mouth. It's all very overwhelming.

Right now I'm in need of multiple new doctors and not just a llmd. Insurance is also switching.

It's a pretty complicated time for me and trying to get everything in place on top of a busy life.

I appreciate the help and concern I have received this far.

duder12 said...

Traveler said...

duder12 said...
I haven't made any progress on an LLMD yet but my condition continues to get worse.

I now have worse body aches with no relief and it has moved up to my face/jaw even. My skin and mouth feel dry. My skin also feels like it's sunburned and have had some tingly sensations but not very often. The sunburn feeling is on my back and arms and is really tough to deal with. The muscle aches and sunburn are constant.

The dry mouth gets the worst at night even though I run a humidifier. It is typical dry winter though so maybe that's contributing to it. I should also mention I did get a massage on my back neck arms and that's where most of the sunburn feeling is. I'm hoping that is contributing to it and it goes away soon. I have had the feeling before the massage but not near this bad.

Can I ask what is going on with you not being able to find a LLMD? Sorry, I don't know your whole story, or where you live. If you live in an area like I do and there are no LLMD's within a decent travel distance (I would have to drive 8 hours each way - un-doable for me). What obstacles are you facing? Maybe we can be of help?

I just moved to the twin cities area and am having to move all my medical here. My prior appointments to this post were not here.

Also, Lyme isn't the only thing I'm being told and/or thinking I could have. I also have had shingles in the past so I need to explore that avenue. I also need to work on stress and anxiety as that could be it as well. As you can see another poster wants me to remove a wire from my mouth. It's all very overwhelming.

Right now I'm in need of multiple new doctors and not just a llmd. Insurance is also switching.

It's a pretty complicated time for me and trying to get everything in place on top of a busy life.

I appreciate the help and concern I have received this far.

Definitely sounds like a difficult time! I do wish you luck in this!

I do have a couple of names of LLMD's in your area - or you can ask the members here for recommendations. You will need to enable your email option though, as we don't allow LLMD names posted here, unless they are all over the TV and writing books on these infections. Then they have put themselves "out there" and will deal with the added attention.

It's actually very common for Lyme patients to have a variety of viruses that have either been reactivated or were passed during the infection.

Don't do anything you aren't sure you need to do - no matter what you are told here. This is your body, and you are the one that has to live in it. Take all suggestions that sound reasonable to you, research them to see if it fits as something you should possibly do, then start talking to your doctors about it to find out more. There are no two identical Lyme patients, so what works for one may be something that another person doesn't need or may harm them - that's why we must all do our own research before trying things.

And, hang in there! We are here to help with suggestions, and as a sounding board if needed.