Does this sound like Lyme?

Hello all. I apologize for what newcomers prob ask all the time. Ok so I'm 32 years old and for the past 2/3 years my health has slowly started to change. I was once an energetic, fun loving mom. I have since become neurotic and feel like I'm trapped in a much older person's body and I'm not sure why it's happening. Here are my symptoms:

Joint pain, muscle pain, muscle weakness, shooting pains all over, flu-like symptoms, tail bone pain, nerve twitches all over, nerve pain, digestive issues- GERD, brain fog, weird vibration feeling in my brain, dizziness, fatigue, anxiety, depression, sensitivity to cold {easily cold and shiver all the time} & heat {when I'm too hot it just makes me feel yucky}, rib pain and also under my ribs, headaches, TMJ, ear pain, eye/ vision changes, sensitivity to light...

Does this sound familiar to anybody? I just want to figure this out, treat it and get better. My primary doc is giving me the run around and though my family is caring they also think it's in my head because I have developed health anxiety. I'm frustrated and don't know where to turn. I developed health anxiety because my once healthy became sick feeling over night. I would appreciate your feedback and your honesty.

Hi Blessedwithboys, welcome to our community.

No apologies necessary. We all were a newcomer at one time with questions and concerns.

In your list of symptoms - I have/had: joint pain, muscle pain, muscle weakness, shooting pains, tail bone pain, twitches, nerve pain, anxiety, depression, sensitivity to cold, rib pain.

I think this may be the first time I've read someone else having tail bone pain.

Do you have the tail bone pain all the time? Mine was kind of weird. I'd be sitting...and only feel it slightly...but then when I stood up...it was excruciating....and then as I walked...it would go away.

My tailbone pain went away with lyme/bartonella treatment.

Yes, you have health anxiety...because all of a sudden you have this onslaught of symptoms...I was the same...they came on very rapidly ....every week...a new one.

The good news - is you've found your way here...and we're going to help you. This forum has the best group of people - lots of knowledge and support.

I suggest you find a LLMD and schedule an appointment for an evaluation.
You might want to consider getting an Igenex Western Blot Igm and IgG done...and you can take those results to the LLMD appt.

Do you think your primary doc would sign a lab req to get tested?

You can call Igenex and order the test kit. Once the Dr. signs it, and you get the blood draw...you send it back to Igenex via Fedex. and approximately 3 weeks later you get the results.

/www.igenex.com

We can help you find a LLMD. Start a new thread titled: "Looking for LLMD in/near_____" and fill in the blank. (LLMD stands for Lyme Literate Dr.)

Then enable your email option (through 'my profile') so members can send you recommendations privately. we don't post the names of our LLMD"s on her for privacy reasons.

In addition to recommendations from members, you can also email me...and I will check my list and send you names if I have some in your location.

Hi Blessedwithboys,
Welcome to the community!

Count me in as someone that has had all of those symptoms and more. While I don't mention tail bone pain (as others have said, not many have that), I used to have it constantly, although nothing was ever structurally wrong.

I too would encourage you to follow up on this, and avoid a bunch of running around and see about getting in to see a LLMD (Lyme Literate MD) as they have chosen to educate themselves more deeply about these diseases.

I​f ​you haven't ​yet​,​​​​ it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as​​ ​​it is packed ​​full of ​​important information​​, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​​ ​​​​And, here's another good place to find helpful detoxing rout​​​​​​​​​​​​​​​​​​​​​​​​​​ines​​:​​​​​​ ​​www.tiredoflyme.com/detox-methods.html​
​

​​​​​​​​​​​​​​​​​​​For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will​​​​​​​​​​​​​​​​​​ need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​​​​​​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​You ​​​​​​ ​​​​​​​​​​​​can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your location.​

​​​​​​​​You can start a new thread titled something like "Looking for LLMD in the ​​(insert the nearest larger city & state)​​ ​​area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Y​​ou can go to ​​The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​

​​ ​​​​​​​​​​​​​​​​​​​​​​Y​​ou can email ​​​​the​​ ​​​​​​Tick-Borne Disease Alliance at​: [email protected]
​​

​​ ​​​​​​​​​​ILADS has their own referral system as well:
​​​​​​​​​​​​​​​​ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf

had most of your symptoms, many have resolved but the cognitive ones were my first to come and last to go

It sounds like you have a Multisystemic infectious disease or MSIDs. Therefore you are experiencing body wide inflammation.

This can be caused by several different pathogens that exists on Earth.

Based on your symptoms the odds are the pathogens are those most associated with lyme. These pathogens are Borrelia, Bartonella, Babesia, Mycoplasma, Anaplasma, Rocky mountain spotted fever, and Ehrlichia.

You can take different test to try and find out which ones you have for piece of mind. But there's treatment protocols for each and many of the elements of those protocols cross over, allowing you the ability to treat multiple pathogenic infections at one time.

I know of someone up in NH who has tail bone pain as a symptom (along with many others). Not sure if she injured it somehow before Lyme and company set up and it was attracted to that weakness.