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What helped you the most with bartonella anxiety and panic attacks?

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Posted 10/20/2016 7:00 PM (GMT 0)

bluelyme said...
Thanks mike careful with that cymbalta i had a buddy it backlashed on him ..but thank you for your honesty and testamony..
i apologize for riding you a bit its just that i want you to walk and enjoy your golden years with trish ...consider starting a gofundme account or doing something like bee venom or antibiotics ..you can order them online without a doctor .. both the bees and the abx

Thank you Bluelyme. I had that "backlash" with this drug happen to me a year or so ago when I tried it too and it made me spin out and become suicidal when I had NO such issues at that time. This is why I so HATED the drug. My only guess is, like Valium the VA gave me for 45+ years, it never helped unless I had stress and then it would be like magic. But did nothing otherwise. Just weird so I don't know.

If ANYONE knows where or how to get antibiotics online, please prvate or public message me? Heck send smoke signals! Just someone let me know? I meet with my primary care doc Monday and it is that time of year I may switch my Medicare health plan? My biggest issue with that is, if I do I am forced to find a new pain management clinic fr my 30 check ups required by Federal law for Opioid Medications. I never want to go through withdrawals again by missing meds EVER. Anyway, any of the "Online ABX" ads I saw looked like they would take the money and be a scam?
Posted 10/20/2016 7:16 PM (GMT 0)
Just a side note with the propranolol, for about 3 or 4 days when I first started taking it, I felt a little sedated and tired but this cleared up and I haven't had that reaction since.
Posted 10/20/2016 7:23 PM (GMT 0)
I was having anxiety for a while, but it is much calmer now. I was on Gaba and tryptophan already during the bad streak and had been for a year or so, so that wasn't the cause or the fix ...

we started diffusing *a lot* of Peace & Calming essential oils in the house. That helped me relax for sure.

I don't call what i have depression, I call it fatigue ... I have moments where I just want to curl up and not be social, but it's generally after a busy week or a night out. I have a very hard time doing a weekend full of activity after working all week... I need 1 day it seems to recover and just do things for me like rest and sauna, etc. -- and that includes being around people, cause people can be really high maintenance, LoL... not my hubby though. he's been very understanding and awesome.

So, nothing magical for me has changed it. I hope it's the herbs helping, but I need to give peppermint tea a try... I haven't done that one yet.
Posted 10/20/2016 8:03 PM (GMT 0)
Thanks guys!

And mike im having the same problem see my post! Lol
Posted 10/20/2016 10:46 PM (GMT 0)
I totally hear you about your anxiety. Luckily I don't have depression. I had taken klonopin for 10 years because I was having night terrors. about three years ago, I stopped having any kind of relationship with my family ( sadly, mental illness runs in my family). Surprise, I didn't need it anymore until...Bartonella. It's totally different from before. I would be sound asleep and felt like I was tasered. I would take 1 mg of valium and .5 mg of klonopin before I went to bed. Most nights it worked other times I would be up every hour waiting until I could take more medication. This goes on for three or four nights and then it stops. I tried all the herbs mentioned without much luck.

I hate the thought of taking that crap, but it's the only way I can survive. My mantra is to do anything that helps. Luckily, I live in Michigan so I got my marijuana card and that helps too. Well it makes me go to sleep which is a wonderful respite.

Best of luck to you. This is not fun at all.
Posted 1/31/2018 9:15 PM (GMT 0)
The anxiety is the pits
Antidepressant helps getting to sleep,but still wake 2 am feeling wired and full of angst and fear of having a stroke or something,heart pounding,can't face the day
So exhausted just want to.lie in bed next day doing nothing.
Am trying TCM herbs now.
Hope people get some relief from this ancient
It's the most awful scary thing going!
Posted 1/31/2018 10:01 PM (GMT 0)
I get horrendous panic, anxiety and racing heart when i start drifting off to sleep. My doc said that my nervous system is getting too supressed so your body does that because it thinks you are dying. It's horrible.

One thing i used to take that helped the adrenalin was Prazosin. I guess it blocks adrenalin receptors so you can't get that huge anxiety dump. U have to have a doc who knows about it tho because blocking too many adrenalin receptors isn't smart so make sure you're not taking anything else that does the same. Maybe something to ask about? I hope u find a solution to this god-awful problem
Posted 1/31/2018 10:28 PM (GMT 0)
I suppose I may consider myself lucky? My former primary car doc who just retired saw my Valium 10 Mg prescribed pills had expired some 8+ years ago (I do NOT like any drug that I can think of) wrote me a new prescription for it saying they would have become too weak to be of any use. To BOTH of our surprise the pharmacy calls to say my insurance refuses to pay for them if over 60 years of agesmile Turns out the reasoning is because there is an incredible number of Senior Citizens who stop breathing when taking it. So I called him to tell him and he asked me if I was worried and I reminded him how depressed I had been in my first year of Lyme Disease and how suicidal I had been and just maybe I looked forward to it! Now he (unlike some here) DOES know me and DOES understand my sense of humor and said OK Great, would 120 of the 10 Mg be enough to help you? Of course I said yes it would be just about right and since they are SO super cheap (MY cost NOT using any insurance was only about $25.00 or so) just write a new scrip.

So even though they do very little to help me, they at least do help a bit. MY biggest problem since my original comments on this has been I developed SEVERE Sleep Apnea last year after I stopped using this forum. Only instead of Obstructive Apnea, I now had Central Apneas. Reason being it comes from the constant heavy doses every single day & night of Opioid Pain medications I am forced to take to endure all the 6 spine fusions and 4 bullet & shrapnel wounds, Mastectomy I had to have and the subsequent 4 follow up surgeries I then needed that essentially butchered me. I will be required to take these till my death. What they do as it turns out, is signal the brain to no longer tell you to take a breath. So my wife Trish began walking into whatever room I may be in and freaking out when she kept finding me dark blue and not breathing. So now I was forced to spend almost $5K for an ASV machine that is sort of short for a "Ventilator" I now use for any nap or sleep. It is SO bad I even use it daytime's now if feeling sleepy so I don't dose off inn this chair and stop breathing. Weird that a body can go over 4 minutes without a breath and not die...But dying I WAS so now have some bad heart damage from this too so Valium is now used quite a bit to stop the NEW panic attacks caused by me needing to strap these masks onto my face day & night to stay alive.

And did my Lyme disease ever get better? Nope and not even bothering with it any longer since about 4 months ago.
Posted 2/1/2018 7:39 PM (GMT 0)
He Mike - good to see you back here posting.


Sorry to hear you've also got the Central Sleep Apnea now.


I wore a monitor and I had a few CSA events as well. I'm considering doing another test to see how I'm faring since I've treated.
Posted 2/1/2018 9:56 PM (GMT 0)
Hi Girlie,
Well my bad luck was in full force since I had suffered from OSA years ago but had to stop treatments after several sinus surgeries made it impossible to use my machine any longer. Lost 98% of my hearing etc. But Trish talked me into buying a NICE high end machine this time (out of pocket and bypassing Insurance and all their "rules") and sadly it was this new machine that showed me I had now developed Central Apnea instead of the obstructive. But the REAL lesson was how severe it was with over 28 incidents per hour with some over 4 1/2 minutes not breathing. Thank GOD for the company I bought it from as they to our amazement took it back (which they tell you in LARGE print they do NOT do, and even paid shipping both ways etc. I kept all the other gear we had bought of course but had to purchase the new machine that could force me to breath (an ASV machine) and I now battle the panic attacks as best I can and of course I am losing my hearing and have severe Vertigo symptoms due to sinus (as mentioned) and pressure on some ocular nerve that may cause blindness. I didn't waster a lot of time arguing against Trish's wishes for me to get the machine with all it would cost me since whatever time I would have would be here with her at least. The only other option would be death and very soon from the damage to my heart.

My Dad died from this as well and Trish's guardian who was like her own father also died of it so I take it very seriously. When I found I had several events up to 4 1/2 minutes without A breath I was honestly stunned. I really had no idea a human could live through something like that. It sure got my attention. Anyway, I won't actually be posting again since I no longer treat my Lyme in any way. My legs are now 100% gone and all the other symptoms are much worse but I don't have all that much time left anyway. Most of all I quit posting after one or two people got quite hysterical over one of my posts a year ago as they were unable to even comprehend the meaning of it and I was just to fed up to much care trying to beat any common sense into them given their sheer hysteria and over reaction (in MY opinion granted. Easier to just move on given I can't see anything I can possibly contribute to all who are fighting this awful illness. I simply can't afford to spend the money it requires and I stuck with the protocol (herbs) for a little over 1 year plus added quite a few other things and got ZERO improvement. If I had been a spy type without all my surgeries when I got this illness I might find it worth more effort. But if I had NO Lyme, my broken old body is SO beat up by now I am unsure my life would be much better? I only responded the other day to this thread when I got an email alert from my prior posting on it, and thought I would mention my partial success with Valium 10 Mg once I began my ASV treatments for Central Sleep Apnea. I swear, put a full face mask on me and hook me up to all this crap to breath in the 100 plus degree weather we have had the past 6+ months and it was like I was a POW all over again....NOT a good place. Then being evacuated with all these fires? Surprised even the Valium helps sometimessmile Take care,
Mike
Posted 2/8/2018 1:52 AM (GMT 0)

Just Mike said...
Hi Girlie,
Well my bad luck was in full force since I had suffered from OSA years ago but had to stop treatments after several sinus surgeries made it impossible to use my machine any longer. Lost 98% of my hearing etc. But Trish talked me into buying a NICE high end machine this time (out of pocket and bypassing Insurance and all their "rules") and sadly it was this new machine that showed me I had now developed Central Apnea instead of the obstructive. But the REAL lesson was how severe it was with over 28 incidents per hour with some over 4 1/2 minutes not breathing. Thank GOD for the company I bought it from as they to our amazement took it back (which they tell you in LARGE print they do NOT do, and even paid shipping both ways etc. I kept all the other gear we had bought of course but had to purchase the new machine that could force me to breath (an ASV machine) and I now battle the panic attacks as best I can and of course I am losing my hearing and have severe Vertigo symptoms due to sinus (as mentioned) and pressure on some ocular nerve that may cause blindness. I didn't waster a lot of time arguing against Trish's wishes for me to get the machine with all it would cost me since whatever time I would have would be here with her at least. The only other option would be death and very soon from the damage to my heart.

My Dad died from this as well and Trish's guardian who was like her own father also died of it so I take it very seriously. When I found I had several events up to 4 1/2 minutes without A breath I was honestly stunned. I really had no idea a human could live through something like that. It sure got my attention. Anyway, I won't actually be posting again since I no longer treat my Lyme in any way. My legs are now 100% gone and all the other symptoms are much worse but I don't have all that much time left anyway. Most of all I quit posting after one or two people got quite hysterical over one of my posts a year ago as they were unable to even comprehend the meaning of it and I was just to fed up to much care trying to beat any common sense into them given their sheer hysteria and over reaction (in MY opinion granted. Easier to just move on given I can't see anything I can possibly contribute to all who are fighting this awful illness. I simply can't afford to spend the money it requires and I stuck with the protocol (herbs) for a little over 1 year plus added quite a few other things and got ZERO improvement. If I had been a spy type without all my surgeries when I got this illness I might find it worth more effort. But if I had NO Lyme, my broken old body is SO beat up by now I am unsure my life would be much better? I only responded the other day to this thread when I got an email alert from my prior posting on it, and thought I would mention my partial success with Valium 10 Mg once I began my ASV treatments for Central Sleep Apnea. I swear, put a full face mask on me and hook me up to all this crap to breath in the 100 plus degree weather we have had the past 6+ months and it was like I was a POW all over again....NOT a good place. Then being evacuated with all these fires? Surprised even the Valium helps sometimessmile Take care,
Mike

Just Mike,
Don't know if you'll see this or not, but I just wanted to say I thoroughly enjoyed reading your posts here. Not sure if I'd seen many of your posts before, as I just joined 6 months ago. Some may read these posts and be horrified by all the suffering you've endured. I read it and think Wow! what an amazing person. I love your humor. Hope you and Trish find lots of joy and adventure during the time you have left together.
Posted 2/8/2018 3:34 AM (GMT 0)
Good to see ya mike .. ya you are an OG for sure ....so are you jdf and girlie ....will post about your jemsek visit soon i hope ?
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