LLMD in Illinois ?

Hello fellow Illinoisan! My LLMD is located in Chicago's northwestern suburbs. He is very good and understands TBD infections very well. He has published a peer article on Lyme, has written a book and has been quoted on Lyme articles within the medical community.

If you wish to have his information, please let me know and I can forward it to you once you enable your email.

Hi everyone. I'd love information about the doctor. I believe my email settings allow communication that way. I had to beg for a measly ELISA with my GP. I never was too sure about pursuing Lyme because the LLMDs are hard to come by, but I'm done allowing myself to not pursue this aspect of my medical issues the same way I pursue the "mainstream" medical issues. My wedding was supposed to be in two months and no longer is because I couldn't get through a ceremony right now, let alone a party after. I need to get on the road to recovery!!

Yay! My first response. Thank you!

Thanks for the idea on the wedding. One reason we don't do that is several people we want at the wedding and reception would have to travel cross country, so I wouldn't want them to do that twice for our wedding. I am actually quite content waiting. I want my wedding day to be something I look forward to, not something I have to get through which is what it would be now.

My fiancé has been supportive of my journey for the past 3 years -- I have Ehlers Danlos Syndrome and POTS -- you are right it is invaluable to have that kind of support.

Unfortunately, I do know for sure that my EDS was inherited and my specialist said 70% of EDS patients get POTS on some level. My great aunt, Mom, and sister have EDS and my sister had POTS as a teen. Unless some infectious disease was passed down from my great grandmother to all of us? She didn't have EDS by the way and lived in her own home until 93. :)

I've accepted the EDS is here to stay, but I think if I could figure out this infection clearly going on with my lymph nodes, I could get the POTS under control.

Whenever I try to up the activity level to help with the POTS (or my sanity), I get a fever and my lymph nodes swell up. Sometimes I ignore it, but it just compounds and after a week or so of "overdoing it", I won't be able to move my arms because the armpit lymph nodes cause so much pain. If I just do bed rest and don't do things like get on the computer too long or talk too much, they stay down until late evening, but that is just no way to live life!

I'm also looking for an llmd in Illinois.

Hi What's going on!
Welcome to the community!

Goshawk has given you some really good information, I just wanted to stop by and say welcome!