My Story

This is my first post. I wanted to share my story and any feedback would be greatly appreciated. I will try and do the condensed version.
about a year and a half ago we got a cat that had fleas and this is where we believe we received the disease. When I say "we" I am referring to my wife and myself. I will let her share her story.

Initially all of the symptoms did seem to be worse for my wife and I would say that has continued to be true. After her seeing numerous doctors and much research we found an LLMD in Missouri. We live in Nebraska. We scheduled an appointment for my wife in March of 2017 for our first visit. We were initially infected in September of 2016.

After her visit we mentioned my symptoms and the doctor agreed to see me as well as he had an opening. We were with the doctor for over two hours and we feel very comfortable with him. We were both given many prescriptions for antibiotics and other medications as well as recommendations for supplements and other protocols to consider.

My most dominant symptoms were/are eyesight, brain fog, anxiety, pin pricking on skin, and a strange feeling on my left side. I have had chest tightness as well.

In the past year I have been to a neurologist (given muscle relaxers), physical therapy to include dry needling, oral surgeon twice, dentist, primary care doctor, chiropractor multiple times, eye doctor multiple times, EAP counselor for many sessions, cardiologist (all checked out well) as well as following up with our LLMD in October of 2017.

I have been on oral antibiotics for the last year. I should say I also have an underlying anxiety disorder, psoriasis, and am an alcoholic, although have been sober five years. I am currently just finishing Minocycline and Cipro.

I take Otezla for the psoriasis and Wellbutrin and Xanax for anxiety.

Supplements include Magnesium, Idoral, Tumeric, Shaklee vitamins, B12, CoQ10, DHEA and Vitamin D. Bloodwork is checked every four months.

I still get very strange symptoms in my chest, some skin feelings including movement on my feet at times, brain fog, anxiety, feel cold a lot and vision issues. Sleep is good. Fatigue is not an issue. Bowel movements have not been the same since all of this, but nothing bothering me.

I was tested with the Western Blot. One test was indeterminate and one test was negative, but with my symptoms and the bands I was positive for, the LLMD was pretty confident I had an infection of some type. We go back in April. So, that is the gist for me. Any feedback would be appreciated. Obviously my wife and I have done a lot of research. I really would like to approach this as holistically and naturally as possible. My faith in God has been huge in all of this. Thanks in advance!

Post Edited By Moderator (Girlie) : 2/27/2018 11:06:36 AM (GMT-7)

Hi Rynos123,

It's great that you don't have problems with fatigue. Have you treated for co-infections like babesia or bartonella. Both of them can cause anxiety but not necessarily fatigue. The tests aren't always accurate, so your LLMD might treat based on symptoms (mine did).

I struggled with anxiety for a long time. It mostly is gone now, but I just can't figure out what made it go away.

I'm currently on some of Buhner's herbs plus a few other supplements. Antibiotics didn't work for me because I think tried them too late (8 years after I got sick). It seems like you just have to pay attention to how you feel and try to figure out what is working and what isn't, because it seems like something different works for everyone.

Hi and welcome to our forum

Glad you have joined us but sorry you both have infections.

You have received some good advice and feedback so I'll just say take care and I wish you both the best of healing, Jo