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Cat Scratch Fever Diagnosis 25 years ago... AND Now

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Lyme Disease
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Posted 3/17/2018 9:03 PM (GMT 0)
I dont even want to think about mosquitoes, deer flies and black flies.

Lots of water here. Cant avoid them in my neck of the woods. Some years are better than others though.

They have those holster mosquitoes repellent things, guess they do help.
Posted 3/17/2018 9:46 PM (GMT 0)

BrookieGirl said...
I'm so sorry Girlie. That sounds awful. I dont have debilitating nerve pain. Is it better? Or do you still have it?


The initial excruciating pain that woke me from a nap - shooting up the back of my neck and across my left shoulder blade area, down my arm (the arm then went limp and numb.....sent me to the ER dept.?

Yes that slowly subsided over four months....and then I returned to work (ignoring the lump in my throat, the episodes of anxiety and depression, the tingling, numbness sensations on left cheek, and a few others)
But then after a couple weeks back to work plus the addition of hormone therapy - things went south again..with the pain ramping up and the new symptom of vibrations in my torso area)
Posted 3/17/2018 9:58 PM (GMT 0)
I had anxiety and depression for the 1st time ever as well. It's awful! I'm a super happy, laid back person by nature so it shocked me and everyone that saw me going through it.

I had vibrations down my legs and into my feet. My feet constantly feel like they are vibrating still or tingling. Anyone relate to That? Not my hands as much, but I do notice if I'm on my phone while lying down my hands/fingers go numb pretty quickly.

I am so happy those symptoms have gotten better for you. I can't imagine trying to hold down a job, although having 2 under 4 is kinda crazy I can stay home though - for that I am beyond grateful.
Posted 3/17/2018 10:08 PM (GMT 0)
In addition to the vibrations in my torso, I also had my right leg 'buzzing'. - yes it's different than vibrations...lol.

I don't have the vibrations anymore, but I have shivers now...not sure the change means things are better or worse.

I Hate this disease. its not just the pain, etc...but I've had a lot of fear with the disease...I think that's not uncommon.
(Fear that I had ms, ALS, or Parkinson's disease. Fear that I will be like this forever. Fear that I had some rare disease....fear that I will get cancer from ignoring regular screenings because I just don't want to have another procedure done to rule out the cancers...)
Posted 3/17/2018 10:10 PM (GMT 0)

BrookieGirl said...
I had anxiety and depression for the 1st time ever as well. It's awful! I'm a super happy, laid back person by nature so it shocked me and everyone that saw me going through it.

I had vibrations down my legs and into my feet. My feet constantly feel like they are vibrating still or tingling. Anyone relate to That? Not my hands as much, but I do notice if I'm on my phone while lying down my hands/fingers go numb pretty quickly.

I am so happy those symptoms have gotten better for you. I can't imagine trying to hold down a job, although having 2 under 4 is kinda crazy I can stay home though - for that I am beyond grateful.


Me too - never been depressed or have anxiety before either.

Don't worry, your old 'self' will come back - it's not gone..it's just hidden right now.

The past few weeks I have had some blocks of tme when I did feel my self again....it was great.
Posted 3/17/2018 10:24 PM (GMT 0)
That's very promising to get glimmers of the old you!! Have you been treating for 5 years? At what point could you do normal activities - like grocery store, meals, cleaning etc?!

I'd have to agree - I would have like cell phone vibrations in my heart area - but buzzing is definitely a more accurate word for my legs and feet.

Thank you for the words of encouragement! I can't stand the fear either - I have gone through all those diseases as well... and I tend to question ms still... although I have no reason to, but fear is an ugly monster that plays tricks in your head.
Posted 3/17/2018 10:39 PM (GMT 0)

BrookieGirl said...
That's very promising to get glimmers of the old you!! Have you been treating for 5 years? At what point could you do normal activities - like grocery store, meals, cleaning etc?!

I'd have to agree - I would have like cell phone vibrations in my heart area - but buzzing is definitely a more accurate word for my legs and feet.

Thank you for the words of encouragement! I can't stand the fear either - I have gone through all those diseases as well... and I tend to question ms still... although I have no reason to, but fear is an ugly monster that plays tricks in your head.

No, I've been treating for about 3 1/2 years. First LLND apart was end of August, 2014
But plateaued with symptom improvement after about 2 or 2 1/2 years in and my LLND wasn't giving me the time or attention to help me move past that.
I just recently had my first appt at the J clinic....
Hoping to get rid of my remaining symptoms (< 10)
Posted 3/17/2018 10:42 PM (GMT 0)
I will be praying for you. What is less than 10?
Posted 3/17/2018 10:42 PM (GMT 0)
Swooshing sound in my right ear. Is something I had 2 yrs ago not it's back with treatment so I'm hoping it's the buhner herbs doing its things
Posted 3/17/2018 10:45 PM (GMT 0)
My level of duties has been up and down the whole time.

Good days and bad days...and some good parts in bad days and vice versa.

I've not had fatigue as a symptom...just pain and others.

So I've always been able to do shopping, some meals ands some housework.
Vacuuming is hard on me because I have mild POTS so my heart races when I bend over to pick up something off the floor.

My house doesn't look like it used to..a lot gets left..because I don't have the drive I used to have...
And sometimes I just don't give a flying f--k
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