xfmlg said...
This afternoon, i went to my bank and pretty well emptied my savings account to pay these tax bills. I refuse to let this issue affect me in an adverse way. Now that the tax bill is somehow paid, it will take a bit of scrimping and saving to top up my savings so that i can live into my old age without worry. That is always a concern. Where will my income come from when there could be two decades of life left in me to live. How long should i continue trying to make a living wage. Here in Canada, my pension amounts to $1,350 per month. The reason it is so small is that i was in business for myself and very often i was in a position of living from self- paycheck to paycheck without putting any money aside for retirement. Life is not easy and i never asked for govt help. I will not ask now either. I sure will give that member of Parliament a piece of mind as to how the govt treats lyme suffers. How do i organize other suffers to take likewise action with our politicians so that they can be persuaded to act in the interest of illness suffering people instead of the medical and pharmaceutical monopolies that currently are in the health power structure. xfmlg
In my opinion the main roadblock that prevents all of these issues from being solved is the IDSA and all of their publications that say diagnosis requires CDC positive serology and 28 days of treatment always cures every patient.
If insurance comapnies, gov't officials, tax collectors, did not have all of the IDSA garbage to fall back on in court; then we could move forward.
As long as IDSA and CDC and NIH are colluding and supporting their Lyme "story", I fear we will be stuck.
We need randomized controlled trials showing long term antibiotic treatment benefits the patients. Or in your case supplements. We need science showing that serology is not always positive. We already have a lot of that, but those studies were not looking at untreated late infection. That one is a catch 22. How can they tell if study participants are carrying late Lyme? We need advances in PCR and/or microscopy to make headway.
Or, I keep hoping we get lucky and see Canada, France, or Australia create their own guidelines and stir up an
open debate on a global platform.
But it all starts with the science. The facts.