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Who has had hyperthermia at any of the clinics outside of the US?

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Posted 4/15/2018 8:53 PM (GMT 0)
Hello!

Wanting reviews, info, and anything else you’re willing to tell me about hyperthermia!

My husband and I both have Lyme. I have it worse. He has some symptoms but is still functional. I function but fluctuate between 50%-80%.

Some days I can only do a few things at home others I might be abele to get out of the house and have a pretty decent day. Mostly I feel I am neuro. Although I do have some joint pain here and there.
Posted 4/15/2018 9:12 PM (GMT 0)
One of our members (Evanston) took her daughter to Germany for Hyperthermia.

She reported that it helped her. We haven't had an update lately though.

I'll try to find the thread and post it here.


On the other hand, Yolanda Hadid didn't think it was a game-changer for her.
Posted 4/15/2018 9:16 PM (GMT 0)
Ugh. That’s what makes it SO HARD!!

How do you justify spending that kind of money on something you don’t even know if it will work?!
Posted 4/15/2018 9:19 PM (GMT 0)
/www.healingwell.com/community/default.aspx?f=30&m=3972618


The one thing that surprised me is it was reported (not sure in the above thread) that hyperthermia only treats lyme, not the co-infections.

I can't find the thread - where she was posting from the clinic.
Posted 4/15/2018 9:47 PM (GMT 0)
www.dailymail.co.uk/tvshowbiz/article-3044023/Yolanda-Foster-documents-experiment-hyperthermia-Instagram-snap-continues-search-Lyme-disease-cure.html
Posted 4/18/2018 1:03 AM (GMT 0)
I just sent my medical records and paperwork to the St. Georg Klinik.

In my research, I've talked to several people who have went there in the last few years and all of them I've spoken to have improved drastically. One is convinced she is cured, but admits it's way to early to tell for sure. I think she got back about 6 months ago.

They've told me I should hear back in about a week, so I'll know more then if I'm going to do this or not. I'm seriously considering it. I think I've stopped improving with antibiotics.
Posted 4/18/2018 1:18 AM (GMT 0)
Good luck Sai!

Keep us updated! I’d love to hear if you do go how you do!
Posted 4/18/2018 1:28 AM (GMT 0)
Our issue is my husband and I both have lyme.

My husband is for the most part asymptomatic. He has some symptoms but I know if we don’t start treating him soon it will get worse!

So in looking at st Georg Klinik for both of us it will be around $40,000!!! We only have about half of that right now.. so have to give it some time and keep saving! Just to go save our lives!!

It’s truly a crime that America doesn’t help people with Lyme more and there isn’t more funding for research! Ppl think we are crazy wanting to go over to Germany for treatment.. what other options do we have when i’ve tried everything America has to offer?!
Posted 4/18/2018 1:57 AM (GMT 0)
Have you looked into the Hansa clinic?
Posted 4/18/2018 2:10 AM (GMT 0)
It is crazy expensive, but it's to the point for me where I feel like it's time for my "Hail Mary." And this is it.

I also have a spouse with Lyme, but he is not at all as affected as I am. It doesn't seem to bother him much or even daily and I would say I'm like you, around 50-60% most of the time. Sometimes worse, sometimes better.

I don't mind spending the money if it's going to give me significant, life-altering improvement. But it's those uncertainties that worry me. I'm very scared to spend that kind of money and not get better. So I've done what I can and spoken to as many people as I can track down and listened to their experiences.

I wish you luck as you discern what you need to do. I know it's such a difficult decision to know what the right thing is to do. Unfortunately, until we find that silver bullet that cures everyone of Lyme, we just have to keep trying things. If I can be of help, let me know.

BeatingThisBeast said...
Our issue is my husband and I both have lyme.

My husband is for the most part asymptomatic. He has some symptoms but I know if we don’t start treating him soon it will get worse!

So in looking at st Georg Klinik for both of us it will be around $40,000!!! We only have about half of that right now.. so have to give it some time and keep saving! Just to go save our lives!!

It’s truly a crime that America doesn’t help people with Lyme more and there isn’t more funding for research! Ppl think we are crazy wanting to go over to Germany for treatment.. what other options do we have when i’ve tried everything America has to offer?!

Posted 4/18/2018 3:12 AM (GMT 0)
So what do you all think about the fact that it’s only for Borrelia not the coinfections?


How will you be well if you’ve still got a couple nasty co’S?

I think if it was a sure thing most of us would go - even tho it’s thousands of $$ but it’s not.
Posted 4/18/2018 6:11 AM (GMT 0)
The doctors at Sanoviv said hyperthermia treats all coinfections except Babesia.
Posted 4/18/2018 6:19 AM (GMT 0)

Hoagie said...
The doctors at Sanoviv said hyperthermia treats all coinfections except Babesia.

Is that Mexico, Hoagie?

So then you treat Babesia when you get home?

I’m pretty sure Evanston reported that the Germany clinic said they only do Lyme.
I don’t see how it would differ from place to place. I wish I could find the thread where she posted while she was at the clinic.
Posted 4/18/2018 8:05 AM (GMT 0)
just wanted to say that before u spend all $ on hyperthermia, you should try abx for at least a year or more... (i mean you should keep these crazy expensive and dangerous treatments like hyperthermia as last resort and not necessarily curative). i feel like people cling to hope especially because of the insane price. "Pay $50k and get cured.". It does not work like that ...

For example this lady went to the famous St. Georg clinic in Germany to do hyperthermia

This is her blog entry in April 2016 when she went there
daysofmylyme.com/germany-lyme-klinik/

This is a video blog post of her 3 months after the hyperthermia, when she had another lyme flare
/www.youtube.com/watch?v=IUrFsITIxiM

so do not expect to get "cured" with hyperthermia. Probably it helps a lot but it will not remove all your symptoms , but it may remove all your money, as the procedure is insanely expensive...

Anyway, better be informed than not ...

Post Edited (mpost) : 4/18/2018 2:10:05 AM (GMT-6)

Posted 4/18/2018 4:48 PM (GMT 0)

mpost said...
just wanted to say that before u spend all $ on hyperthermia, you should try abx for at least a year or more... (i mean you should keep these crazy expensive and dangerous treatments like hyperthermia as last resort and not necessarily curative). i feel like people cling to hope especially because of the insane price. "Pay $50k and get cured.". It does not work like that ...

For example this lady went to the famous St. Georg clinic in Germany to do hyperthermia

This is her blog entry in April 2016 when she went there
daysofmylyme.com/germany-lyme-klinik/

This is a video blog post of her 3 months after the hyperthermia, when she had another lyme flare
/www.youtube.com/watch?v=IUrFsITIxiM

so do not expect to get "cured" with hyperthermia. Probably it helps a lot but it will not remove all your symptoms , but it may remove all your money, as the procedure is insanely expensive...

Anyway, better be informed than not ...


Well, that was upsetting. I only watched some of it - her crying made me cry....

She mentioned her Lyme Dr. quitting on her...I wonder who that was?
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