Can't get rid of my fever!

Hi, Evanston1 - welcome to our community!

The fever can be lyme...or bart...(not sure, but maybe Babs, too?)

No, IV antibiotics are not your only hope. Keep in mind you have a fairly recent case of lyme and co's.
It's only been 3 1/2 months for you...you are one of the lucky ones that way.

I haven't had the fever - not one of my symptoms...but hopefully one of our members can share some information with you...how long it lasted, etc.

We encourage all new members to take a look through the thread at the top of the page titled: "New to Lyme?..Start Here!" It's packed full of useful information.

Are you detoxing? That is something that is very important when treating lyme. You need to flush out the toxins that are created from the bacteria die-off.

Rocky Mountain Spotted Fever is notorious for recurring fevers, too. I would run them for months on end, and only barely knocking them a little lower with the aspirin half of my pain pills.

Thanks for all your responses! I am having a cardiac MRI on Monday. I had an echocardiogram last week that looked "suspicious" so that's why I am having a follow up MRI. My hunch is that this is Bartonella endocarditis. I don't think it's from the Lyme because I'm on meds for Lyme. And from what I've read, it seems that Bartonella and Lyme would be the main culprits of cardiac involvement. And if it is Bartonella endocarditis, I will have some very rough roads ahead. The treatment is a very terrifying medication called gentamicin. I am trying to just take it one moment at a time and not jump to conclusions.

This whole experience is truly mind blowing! In one moment, I was on top of the world in my prime loving my life with my awesome husband and three kids backpacking in California during a summer vacation. And since, I've been beyond ill. And the worst part of it has been the doctors who treat these infections with two weeks of just doxy. I hate to think of how many people have died in the hands of these incompetent doctors who refused to treat differently from the way they were "trained" despite the patients' persistent ongoing illnesses.

I still do not understand what the controversy is. To me, the equivalent treatment of the medical commmunity would be to not recognize most cancers.... and the cancers that they do recognize would be treated one time with a two week run of chemo. Period. Nothing more. Can someone explain what the "controversy" is all about?

This is real stuff, real infections, real illness. With my own eyes, I saw a spirochete swimiming in my blood along with a Babesia infected red blood cell from blood microscopy done with a finger prick in my doctors office. It was the coolest and grossest thing ever. But it was real. Legit. So why would the greater medical community not recognize it??

Sorry to be ranting. I'm just stunned by this whole experience. I am strong and I will get through this. I have everything to live for and I will come out on the other side standing. But.... ***?!?!?

Hi Evanston,
Welcome to our community! I'm so glad you found us.

For the issues concerning the 'divide' on Lyme, you might find these articles helpful:
ILADS vs IDSA:
www.clinicaladvisor.com/controversy-continues-to-fuel-the-lyme-war/article/117160/

archinte.jamanetwork.com/article.aspx?articleid=226373

www.ncbi.nlm.nih.gov/pmc/articles/PMC2901226/

No one knows for sure why all the controversy, but I'm not usually one to believe conspiracy theories, but this time, it really makes me wonder what "they" have to hide (CDC, IDSA & more) since they are fighting so hard to make it extremely difficult to not only get a positive test (no new tests are being approved that aren't based on antibody tests, which are not accurate for these infections), but they are not recognizing the seriousness of these diseases either. Not to mention that there are many states that won't even recognize that Lyme disease is being spread in their state. These are only the tip of the iceberg for trying to understand why there is so much controversy with these infections.

But, that's why these forums are so important. Lyme patients come here to not only get, but to provide support for others going through similar experiences with the same infections. It's the only way we can help ourselves be as informed as possible and learn how to heal our bodies. Even the LLMD's often don't know as much as the collective knowledge on a good Lyme forum. That's thanks to the members that are willing to do research on their own, and to watch for other Lyme patients that are successful and finding out what they did to see if it would help them - then sharing it with others.

I would venture out to say that a good Lyme forum is essential to healing these infections.

Keep asking questions, and keep reading whatever you can. We are here to help just as much as we can!

Hi Evanston,

I hope your fever has gone? I was wondering if you ever found out what was causing your fever and if anything worked? I’ve had low grade fever for 6 months now and certain antibiotics are not working. Would love to hear from you. Tanya

Thanks Girlie,

Yes I got a weak positive on Elispot in February. Been on doxy since January but fever remains and new symptoms have started like burning aching, weak arms. Fun fun. This forum is great though. Trying to find a lyme literate doc but there aren’t many here in the UK.