Rage

Alice - Are you currently treating? Have you discussed this with your Lyme Doc?


...also, are you detoxing...particularly taking something for the brain/CNS?

Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.

yoga, meditation, etc... i think this is something that can be easily controlled with such techniques.
i would also be worried about responsibility. just because u have bartonella does not mean u can get away with rage. on the contrary, you need to work more to keep yourself together. but there is a hi risk that, since you know you have bart and since you know this may lead to rage, you will lower your bar and allow yourself to do things that you would not if you would just know u were healthy ....

so be careful, the mind is always playing tricks on us. get some meditation lessons (or use youtube and try yourself), they will help you enormously. breathing lessons are the easiest.

Alicethenut said...

Thanks for the terrible advice!

sorry, just trying to help. i have had rage too at some point during this disease, i think i know quite well how it feels like

i no longer have it. i'd say antibiotic treatment is the best thing to improve it long term.

The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!

Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!

Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?

Denise - How long after starting the Neuro-Antitox did it start working ?

I bought it and was taking it twice (or maybe 3 x) daily - but after a week I didn’t notice any improvement.

I don’t have rage but was hoping for some brain/CNS detox.

Girlie said...

Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!

Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?

Ok yes, that is very true and if there are homicidal tendencies or any danger to other living creatures then it becomes a whole different matter! The only injuries so far have been to inanimate objects around my house (including a 20 year old microwave with an attitude problem that will no longer be able to start beeping at random times for no reason! haha) and some minor ones to myself of course. Never have I ever raised a hand to another living creature. Even my screaming and yelling is to walls and objects and usually when I am home alone, although I'm sure my neighbors think I am completely insane at this point!

Girlie said...
Denise - How long after starting the Neuro-Antitox did it start working ?

I bought it and was taking it twice (or maybe 3 x) daily - but after a week I didn’t notice any improvement.

I don’t have rage but was hoping for some brain/CNS detox.

Hi Girlie,

I don't remember exactly when it starting working (no pun intended!) because that was over 12 years ago. It could have been several weeks or so. I "do" remember that I took this formula for months (at least 4 months).

Heidi, I took 30 drops 3x a day for a total of 90 drops per day which is the recommended dosage from his book. I do know someone that went to Hansa and her ammonia levels were off the charts (she was misdiagnosed with fibro for over 30 years) and Dr. Jernigan had her take 4 or 5 times the recommended dosage. Her liver was shutting down due to high ammonia levels. He worked on her for 2 weeks just clearing out her ammonia before he started treating her for lyme.

What's important to remember is that ammonia doesn't only affect the brain. This exotoxin can affect the liver, kidneys, etc. Below I copied part of an article:

www.tiredoflyme.com/ammonia-a-lyme-disease-exotoxin.html

"Lyme Disease can contribute to excessive ammonia in a number of ways. The first is that Borrelia Burgdorferi, the Lyme bacteria, releases ammonia as an exotoxin within the body. Wherever the bacteria resides within the body, this can occur, and if it's in the brain, there is potential for damage to occur to neurotransmitter receptors. This opens up the door to Lyme induced depersonalization and other discrepancies of the brain.


Lyme Disease can also contribute to the accumulation of ammonia in the body by hindering the body's ability to remove ammonia. We learned earlier that the body removes ammonia through the urea cycle, a process initiated by the liver. However, in people with Lyme Disease, the odds increase that their liver and/or kidneys may not be working efficiently. Herxheimer reactions, which is the release of endotoxins in the body from dead spirochetes, more than likely have the liver and kidneys working overtime which can result in an inefficient urea cycle. If the body's urea cycle isn't converting ammonia into urea properly, this in turn can cause a back up or accumulation of ammonia in the body from any source whether it be basic protein metabolism, or a CBS gene mutation. This is where ammonia becomes troublesome as it is forced to enter the bloodstream, and from there, infiltrate and disrupt other parts of the body - symptoms begin to manifest.

This is just one reason why it is so important to detox and support the organs while treating Lyme Disease."

Symptoms of Ammonia Toxicity

"Symptoms of ammonia toxicity, like many of the other conditions that can affect people with Lyme Disease, have a tendency to overlap making it difficult to discern the cause. When the body can no longer process ammonia efficiently through the urea cycle, ammonia will begin to back up into the body and symptoms such as severe cognitive dysfunction, nervous system dysfunction, irritability, headaches, chronic fatigue, food intolerance, and in more severe toxicity cases, coma, and even death can occur."

Hope this helps,
Denise

treat bart , holy basil helps lots and i had to nibble zanax and sequester myself during zhang treatment. its nice to have my emotions back

Girlie said...

Rare Squirrel said...

Girlie said...

Rare Squirrel said...
The problem with rage is that it isn't rational so rational advice is not going to help. It's like walking up to a toddler during a tantrum and telling him he isn't being rational and expecting him to sit up and say, oh ok, and then just stop. And I'm sorry but with all the just plain over the top BS we have to deal with having these diseases every single day, YES WE CAN ABSOLUTELY GET AWAY WITH RAGE AND ARE ENTITLED TO IT! You wouldn't tell someone with cancer that they need to stop whining about it and grow up would you? That's the equivalent of telling someone to swallow their feelings and never let them show. Doesn't sound very healthy to me.

Yes people can use meditation and other methods to try to cut down on the attacks of rage, but when they happen, they happen and there is no reason for anyone to make us feel bad about them happening! I'm sure that wasn't your intent, but that is how it came across and was a bit like adding insult to injury. I'd be more worried about someone NOT having rage when they have all of this going on and are living in a world that seems determined to keep us unsupported and suffering!

Well, as long as you don't hurt anyone...it's okay to vent.

What have you tried for it?

Ok yes, that is very true and if there are homicidal tendencies or any danger to other living creatures then it becomes a whole different matter! The only injuries so far have been to inanimate objects around my house (including a 20 year old microwave with an attitude problem that will no longer be able to start beeping at random times for no reason! haha) and some minor ones to myself of course. Never have I ever raised a hand to another living creature. Even my screaming and yelling is to walls and objects and usually when I am home alone, although I'm sure my neighbors think I am completely insane at this point!

Okay, definitely swing away at that nasty microwave. Time for a new one!!!

Hahaha! I knew I liked you Girlie! Yeah, no longer will it wake me up beeping to make popcorn (the weird random beeping was usually accompanied by it scrolling through the list of microwave popcorn size options). I kept telling it I make my popcorn on the stove with coconut oil now but I guess it got mad about that. LOL

Have you ever tried Kratom? I find that the Bali form of Kratom tends to be relaxing as well as helping with pain. It's legal (for now unless the FDA gets their way) and you can get it at smoke shops or online. It's been compared to opioids for it's pain relieving capabilities but I get a sense of calm with it too. Look it up and see what you think. There's a salmonella scare going on at the moment but who knows how much truth there is to that and how much is an FDA scare. Even umm...dang that Lyme brain...Buhner... I think...when asked about Kratom said, great herb! I'll have to see if I can find that reference!

Editing because I found the link to the interview with Stephen Buhner where he was asked about Kratom: http://www.tiredoflyme.com/tired-of-lyme-interviews-stephen-buhner-about-healing-lyme-the-2nd-edition.html

Post Edited (Rare Squirrel) : 5/17/2018 4:34:31 PM (GMT-6)

Girlie said...
Rare Squirrel - I haven't tried Kratom. But one of our members has posted about it: ChickenArise.


I think you have to be careful...cant you get dependent on it..like an opioid?


I also make my popcorn on top of the stove...but my husband doesn't like the coconut oil, so I use olive oil.
Then I put butter and nutritional yeast on it.

I put browned butter on my popcorn and it's super yummy! You'll have to try it sometime. I also use Johnny's Seasoning Salt (with the pepper strained out, yes I am that weird! lol) on it but shhhh don't tell anyone!

I think you can get dependent on it so yes, you do have to be careful with it. But when you've got serious pain, it can be a serious help. And I'm sure there are quite a few of us with serious pain in this forum unfortunately. You do what you have to do to get by and if it's there and can help, I'm using it! I don't use it often since I am on pain medication, but when I ran out, it kept me from going through withdrawal until I was able to get my next script. I've been on the same dose of two 5mg percocet per day which barely even takes the edge off my pain (I also have degenerative disc disease) for over a year and my doc refuses to increase it so sometimes I need a little extra help too. But I always suggest looking something up and reading about it before trying it. Just because something is herbal, doesn't mean it's completely safe! But many of the side effects or adverse reactions seem to happen to those taking way more than what is recommended and even those seem to be short term problems.

Charlie55 said...

Alicethenut said...
This is the second ipad I have broken because of bartonella rage, I’m so tired of this, when I get even a little frustrated I want to hurl every object near me. How do you all deal with this? I feel like a toddler with no control of my emotions or actions.

CBD oil be a good choice for rage, it'll ease your mind. And depending what state you're in, medical cannabis, sativa might be a better choice since you'll still be able to function compared to indica. But indica will definitely ease your mind.

And not all CBD oil is created equally, high recommended to get a quality brand, that has terpenes and other cannabinoids to get the full synergistic effect.

Any pharmaceutical drug you use for rage will have serious side effects long term and soon as you get off any of these mind altering drugs, lot of people have suicidal thoughts. Hemp probably your best option or working out, as it does release endorphins and relieves stress. Whether it's just simply walking, playing a sport, or lifting light weights...

I do use indica dominant strain of marijuana, it’s the most effective medicine i take to ease my symptoms, and it comes with no side effects, woo hoo!! Thank you for the advice.