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Lyme & Cholestyramine Article

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Posted 5/25/2018 3:46 AM (GMT 0)
Very useful info on the benefits of using CSM for detox.

www.ladyoflyme.com/blog/why-a-fast-detox-cholestyraine-can-cause-a-herx-in-lyme-patients-plus-information-on-the-role-toxins-play-in-our-bodies-and-how-they-cause-symptoms-inflammation
Posted 5/25/2018 9:04 PM (GMT 0)
Cool thanks for that. I have been on it about 2 weeks now without any major herxing but I used its natural comparable MCP for months and that really helped.

The first couple times I felt like it was doing something but in a very mild detoxing sense. I continue using it once daily 30 minutes after a fat meal.

Inflammation is at an all time low and I am attempting to use less Kratom with some success.
Posted 5/25/2018 9:41 PM (GMT 0)

ChickenArise said...
Cool thanks for that. I have been on it about 2 weeks now without any major herxing but I used its natural comparable MCP for months and that really helped.

The first couple times I felt like it was doing something but in a very mild detoxing sense. I continue using it once daily 30 minutes after a fat meal.

Inflammation is at an all time low and I am attempting to use less Kratom with some success.

Great news CA!

I started taking CSM once I stopped sleeping and spending more than 10 minutes at a time in my house. I take it twice a day now and have noticed tremendous strides within the week. I also have marcons and e coli in my sinuses. We are going to start hitting that with a nasal spray of colloidal silver and EDTA after a month on CSM.

I am SO happy to hear that your inflammation is down. CSM has been my hero. This stuff is incredible. But not to be taken lightly.
Posted 5/25/2018 9:57 PM (GMT 0)
I am so glad youre making progress. I imagine I have similar sinus issues. I am using ozone bubbled through oil and 15 minute ear insulflations as well as RI ozone daily. Ear wax has turned from yellow to orange. I hope I am killing mold in the brain as well as other areas.
Posted 5/27/2018 1:10 AM (GMT 0)
What brand of MCP did you take and how much? I was taking the Swanson Pectipure but my doc switched me to PectaSol-C. I have only been taking two a day and wonder if I should be taking more?
Posted 5/27/2018 1:14 AM (GMT 0)

Raleighgirlie said...
What brand of MCP did you take and how much? I was taking the Swanson Pectipure but my doc switched me to PectaSol-C. I have only been taking two a day and wonder if I should be taking more?

I take Pectasol-C. I use the powder so I can adjust the dosage easier. I started at 1 gram per day and gradually worked up to 5 grams per dose 1-2 x per day. I try to take a dose at bedtime 2 hours after everything else and another dose when I get up the first time to go to the bathroom, usually around 5-6 am.
Posted 5/27/2018 2:42 PM (GMT 0)
Thank you for the info WalkingbyFaith! Does the MCP give you alot of fatigue? I am having alot of fatigue and wondering if it's the MCP or just a flare or something. It's not sleepy fatigue, but very, very tired fatigue. I have spent majority of my holiday weekend so far on my sofa because I am so exhausted.

I have added milk thistle to my regimen too to help with detox as I do have the HLA gene for lyme and mold. I am also taking aloe to help move things out as I have a tendency to get constipated.

Currently taking MSM, vitamin C, D3, Turmeric, zinc, milk thistle, aloe and MCP. I have some Nutramedix burbur pinella on hand as well.

I am taking the MCP as I worked in a moldy building for 5 years (been out of it for 2 yrs now) and recently they found some mold in my hvac unit. My doc is just treating it as nobody here does the c4a test that does it correctly and sends to the Jewish hospital that she trusts, she does not trust Labcorp to do it as she said it is important that it be done correctly. I also failed the VCS test. I am to take the MCP for a month then take the VCS test again but man, this fatigue is really hard. I wasn't this fatigued before.
Posted 5/27/2018 7:12 PM (GMT 0)

Raleighgirlie said...
Thank you for the info WalkingbyFaith! Does the MCP give you alot of fatigue? I am having alot of fatigue and wondering if it's the MCP or just a flare or something. It's not sleepy fatigue, but very, very tired fatigue. I have spent majority of my holiday weekend so far on my sofa because I am so exhausted.

I have added milk thistle to my regimen too to help with detox as I do have the HLA gene for lyme and mold. I am also taking aloe to help move things out as I have a tendency to get constipated.

Currently taking MSM, vitamin C, D3, Turmeric, zinc, milk thistle, aloe and MCP. I have some Nutramedix burbur pinella on hand as well.

I am taking the MCP as I worked in a moldy building for 5 years (been out of it for 2 yrs now) and recently they found some mold in my hvac unit. My doc is just treating it as nobody here does the c4a test that does it correctly and sends to the Jewish hospital that she trusts, she does not trust Labcorp to do it as she said it is important that it be done correctly. I also failed the VCS test. I am to take the MCP for a month then take the VCS test again but man, this fatigue is really hard. I wasn't this fatigued before.

I don't recall having increased fatigue from MCP, but if it's moving toxins like it's supposed to, then it could be. Fatigue hasn't been one of my major symptoms at least not what I understand to be fatigue.

Wow! You sound a lot like me. I have CIRS from mold and have the Lyme and multi susceptible genes. I had mold at home and work.

I'm sorry you have this, but I'm glad to see someone else on the forum with CIRS who knows their HLA-DR type. I just posted a very long post on the subject today, as it has me worrying again.

Best wishes, and please notify us on how things come along with the CIRS reatment. I'm no longer with the doctor who diagnosed me with CIRS, and the doctor I see now doesn't follow Shoemaker and isn't very knowledgable of his work, although she has run the followup labs that I requested.
Posted 5/27/2018 10:48 PM (GMT 0)
The HLA-DR test explained a lot as whenever I take antibiotics I herx terribly. Heck, everything makes me herx! I just can't seem to detox very easily so I am doing dry brushing, epsom salt baths, lemon water and burbur pinella if needed. Yet, I still feel terrible. I am even doing the low sugar, no gluten diet to try and help with the diet aspect. I was doing no amylose but that's really hard so modified to no gluten and do the best I can with amylose free lol.

This fatigue is terrible though and it worries me as I have to work on Tuesday. I am wondering if this PectaSol C is just a lot stronger than the Swanson PectiPure I was taking and maybe that's why I feel so bad. I did go out and buy some Garden of Life fish oil at Sprout's today as I had forgotten that she said to take that as well. Maybe that will help. I might just skip taking any MCP tomorrow if I wake up still fatigued then just start again on Tuesday with just one pill instead of two and work my way up slowly. Maybe I started off too strong. In addition the fatigue, malaise, my back is hurting which is usually inflammation related and even my turmeric isn't getting rid of it right now.

I guess it means it's working though as something is definitely happening so I will try to think positive and continue to rest today and tomorrow in hopes of being able to get to work on Tuesday.

Glad to hear I am not the only one with mold issues smile At least we suspect mine are mold related. Hopefully this MCP works! What follow up labs did you request? I don't even know what to ask for...
Posted 5/28/2018 12:55 AM (GMT 0)

Raleighgirlie said...
The HLA-DR test explained a lot as whenever I take antibiotics I herx terribly. Heck, everything makes me herx! I just can't seem to detox very well . . . . What follow up labs did you request? I don't even know what to ask for...

I've had the same reactions to antibiotics. It never happened before until a year and a half ago even though my symptoms started almost 9 years ago and went full blown after a respiratory illness 3 years ago.

What does the HLA-DR gene have to do with having horrible herxes?

The followup labs I did were CD 57, MMP9, MSH, VEGF, ADH/osmololity, C3a, C4a, TGFBeta 1. The full list of tests is here: /www.survivingmold.com/diagnosis/lab-tests

The best thing I've tried for reducing inflammation is SPM Active by Metagenics. Took it in addition to curcumin and fish oil when I was herxing after taking minocycline for a week. I took 4 capsules every morning until I ran out. I finally ordered another bottle but am saving it for emergencies since it's so expensive.

I also take 3 tsp of Readisorb liposomal glutathione every morning to detox. I've been taking that and the fish oil and curcumin (3,500 mg/day) since Sep 2017. I should own stock in the supplement industry, LOL.
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