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Anyone's llmd recommending CBD for sleep?

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Posted 5/29/2018 1:51 PM (GMT 0)
Hello all, I am in really good shape with the tick-borne infections, barely have any symptoms at all at this point but I do have mast cell activation disorder and staying asleep is a real challenge.

I am thinking of trying CBD that is THC free for sleep but am nervous to try it without a doctor's okay. Maybe I am being silly to feel this way...

Anyones llmd or naturopath/practitioner recommending it? Has it helped you stay asleep for longer periods.

My sons llmd recommended it to him to use for bartonella anxiety but with small amounts of THC in it I wasn't comfortable with him using it as he is pretty young.

Thanks!
Posted 5/29/2018 3:16 PM (GMT 0)
Hi It wasnt recommended by my Llmd but i did try CBD and sorry to say it didnt do anything for me. It didnt help my sleep or any of my other symptoms.

THC on the othe hand did help me, it eased my symptoms and helped me sleep much better when taken in small doses.

I had to be very careful not to take too much or It would make me herx almost instantly so I guess it was definitely doing something to the bacteria as well as easing my symptoms.
Posted 5/29/2018 5:15 PM (GMT 0)
My llnd didn't recommend it, but a retired LLMD recommends it for people with lyme. (not particularly for sleep)

I tried it for pain, and it didn't help me.

I wouldn't worry about a Doctor 'okaying' it. There's almost nil thc in the cbd oil.
Posted 5/29/2018 5:16 PM (GMT 0)
sunny - what is your LLMD saying about your MCA - will it go away eventually - on it's own since the bacterial load is so low now?
Posted 5/29/2018 5:49 PM (GMT 0)
Girlie, I have not asked that specific question as we are addressing any imbalances we discover in hopes that it will all make a difference and improve the MCAD symptoms, which it has; my gut health, thyroid was low again, low histamine diet, adrenals, etc.. When the MCAD started I was pretty good from the TBI's fortunately so assuming it started due to a combination of factors, an overload of some sort. I had been on various short courses of antibiotics many times, often back to back weeks, in the year prior, for random infections and I am sure that played a role too.

I dont get the impression MCAD ever fully heals but can improve and wax and wane. A question for my next appointment for sure. I see an immunologist for it too.

Thank you Spanish and Girlie for your replies.
Posted 5/29/2018 5:52 PM (GMT 0)
i'm wondering how to find out if I have the MCAD.
Posted 5/29/2018 7:07 PM (GMT 0)

Girlie said...
i'm wondering how to find out if I have the MCAD.

like Lyme, it's mostly a clinical diagnosis from a knowledgable doctor, because the tests aren't always reliable.
Posted 5/29/2018 8:43 PM (GMT 0)

BabsBunny said...

Girlie said...
i'm wondering how to find out if I have the MCAD.

like Lyme, it's mostly a clinical diagnosis from a knowledgable doctor, because the tests aren't always reliable.

So based on signs/symptoms - is it like allergies - stuffy nose,etc?
Posted 5/29/2018 9:03 PM (GMT 0)
Hives, flushing, swollen face/eyes or lips, tongue, itchy throat, wheezing, allergic-type reactions to body care products and medications, anaphylaxis.

Basically you feel like you are having an allergic reaction to all kinds of things from different fabrics to a scent someone is wearing to dust or cold/hot temperatures, foods.
Posted 5/29/2018 10:06 PM (GMT 0)

sunny40 said...
Hives, flushing, swollen face/eyes or lips, tongue, itchy throat, wheezing, allergic-type reactions to body care products and medications, anaphylaxis.

Don't have any of those symptoms...or ever had...so hopefully that means I don't need to worry about the MCAD?

Oh - maybe the flushing? I get a red face sometimes prior to my sweating.
Posted 5/30/2018 12:04 AM (GMT 0)
An antihistamine that causes drowsiness might work since that would be a blocker for mast cell.
Posted 5/30/2018 1:33 AM (GMT 0)

sunny40 said...
Hello all, I am in really good shape with the tick-borne infections, barely have any symptoms at all at this point but I do have mast cell activation disorder and staying asleep is a real challenge.

I am thinking of trying CBD that is THC free for sleep but am nervous to try it without a doctor's okay. Maybe I am being silly to feel this way...

Anyones llmd or naturopath/practitioner recommending it? Has it helped you stay asleep for longer periods.

My sons llmd recommended it to him to use for bartonella anxiety but with small amounts of THC in it I wasn't comfortable with him using it as he is pretty young.

Thanks!

Hi, sunny40:

I've not tried CBD oil, but there's probably little risk in trying a low dose. You can start low and increase it until you get some effect or determine it's not helping. I have a friend that uses chocolate that has small doses of THC in it and it helps his mood and sleep tremendously. It's micro-doses.

Also, if CBD oil doesn't work for you, look for my post in the following thread:

/www.healingwell.com/community/default.aspx?f=30&m=2274320

It's the one dated 3/6/2018 5:42 PM (GMT -4) and is about halfway down the page. I mention some other options that may help with sleep.

Good Luck,
The Dude
Posted 5/30/2018 1:47 AM (GMT 0)
mine recommended cbd for reducing inflammation during the day and then I used a 1:1 CBD/THC at night. It helped with sleep. But perhaps you don't live in a state where that one (the THC one) is legal. Although you could get a medical card and then purchase it. I took CBD during the day and never felt sleepy, so if that is your sole purpose I would skip it. I use a melatonin spray for sleep sometimes.

I would like to add that my entire time using the 1:1 I never felt any sort of high, so if that's a concern, it's not an issue. It def made me sleepy though.

Post Edited (PDXtransplant) : 5/29/2018 7:50:25 PM (GMT-6)

Posted 5/30/2018 2:41 AM (GMT 0)
I'm using CBD for anxiety with amazing results. I tried it for sleep and it helps some.

For sleep, I use VIEW IMAGE It really really really helps. Out in 20-30 mins, sleep the whole night, wake up feeling good. It's all natural and comes in patch form. Really so glad I found it.

I also found that Calm magnesium supplement (two tsp) knocks me out like a light. I took two in the afternoon the other day and slept for 4 hours.
Posted 8/14/2018 1:09 PM (GMT 0)
I tried it last night as i started 100 mg doxy twice daily and again starting with a mild -2.5 hour sleep deficit. Tried adding about 100 mg pure cbd (,no thc) and it helped get the above defecit (instead of -8 i suppose). My dose was about 100 mg which was probably half my llnd recommends
Posted 8/14/2018 1:57 PM (GMT 0)
I need a good cheap pure source, us mail order maybe $100 for monthly supply of 250mg a night...any reco?
Posted 8/14/2018 4:38 PM (GMT 0)

10LymeB said...
I'm using CBD for anxiety with amazing results. I tried it for sleep and it helps some.

For sleep, I use VIEW IMAGE It really really really helps. Out in 20-30 mins, sleep the whole night, wake up feeling good. It's all natural and comes in patch form. Really so glad I found it.

I also found that Calm magnesium supplement (two tsp) knocks me out like a light. I took two in the afternoon the other day and slept for 4 hours.

So I tried that same patch a few weeks back and woke up with intense itching and burning all over my trunk! The patch was on my hip. It stopped about 30 min after I took it off and also took antihistamine. Apparently it’s hypoallergenic but I am allergic to something. I think it’s the adhesive. I am not sure if I would try it with MCAD. I have more MCS type sx but definitely get burning and itching with certain things as well as a “lump in throat” sensation.
Posted 8/14/2018 7:44 PM (GMT 0)
5 mg of melatonin is quite a lot. I know because I've ingested that amount on a daily basis for a while. At first it helped somewhat but then halfway through the pack it totally lost its effectiveness.

Shouldn't you be taking less than 1 mg? I believe the proper dose is 250 micro grams or mcg

Post Edited (insomniaaa) : 8/14/2018 1:51:34 PM (GMT-6)

Posted 8/14/2018 8:07 PM (GMT 0)
Up to 5 mg of melatonin isn’t a lot


My husband has been taking between 1 and 3 mg daily for many years now.
Posted 8/15/2018 4:57 AM (GMT 0)
I wa s actually talking about cbd oil not melatonin

Doors12
Posted 8/15/2018 5:44 AM (GMT 0)
Llmd recommended I get cbd oil from charlottes web, works like a charm highly recommend, of course it won’t work for everyone
Posted 8/16/2018 12:18 AM (GMT 0)

ltc1225 said...
Llmd recommended I get cbd oil from charlottes web, works like a charm highly recommend, of course it won’t work for everyone

The source I get it from here in Canada recommends CW Hemp for people on the US

I think it’s the same as Charlottes Web
Posted 8/16/2018 12:20 AM (GMT 0)
During my appt with Dr J - he asked me if I had tried CBD oil for pain.

I told him I did but it didn’t help
Posted 8/16/2018 12:27 AM (GMT 0)
CW is charlottes web. Just a side note for those using CBD; there are many who report the opposite effect-it keeps them awake OR it works at first and then not at all. There has been better reports of those you have access to using an indica THC strain.
Posted 8/16/2018 11:06 AM (GMT 0)
Thank you! Is hemp oil what all cbd oil is made from?

You all are great

Im on doxy and my sleep window is narrowing again. Im up since 2am despite entire sleep regimen, slightly sore stomach and vertebrae

Ugh indica sounds good right now may have to go that route if thc wont make me psychotic from lyme wrecking endocannibanoid system

Doors12
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