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Acid reflux with Lyme

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Posted 6/4/2018 10:54 PM (GMT 0)
Anyone else have acid reflux? Mine goes all the way up to my throat. Just wondering what you do for it. I looked it up, milk thistle is supposed to help.
Posted 6/4/2018 11:14 PM (GMT 0)
I had it...and it went away...then it came back when taking the minocycline (I think it was then)


Try the D-Limonene. It's an inexpensive supplement that works quite well.

Astroman has posted about it several times...and when I get that acid come back, I take the D-limonene - one capsule for three days in a row.

Also, try not to eat later in the evening...you don't want to lie down with food in your stomach.
Posted 6/5/2018 12:20 AM (GMT 0)
I haven't had it. . . But then yesterday I felt really good and went bicycling all around up and down hills-I don't know how far I went. I felt fine until today I suddenly got a weird chest pain, and I almost went to the ER, but by the time I got there, I was burping like crazy and I had all the symptoms of acid reflux- burning, acid taste in my mouth and everything.

The weird pain went away and I went right back home- a visit to the ER takes about four hours and I didn't want to go if I just had gas.
I don't know why I got it all of a sudden.
Posted 6/5/2018 2:26 AM (GMT 0)
Dill pickle juice not the pickle just juice 4 tbs every eposode
Posted 6/6/2018 12:57 AM (GMT 0)
Thanks all, I did some research on LPR. i just ordered the D-Limonene and some mastic gum. I also went to whole foods and got some manuka honey and manuka lozenges, slippery elm, marshmallow root, L-Glutamine...my tongue and throat are turning white and feel burnt from stomach acid. Do you think that lyme caused this?
Posted 6/6/2018 1:28 AM (GMT 0)
D-Limonene is your best bet. Jarrow brand 60mg, 100 for $10. Take one per night for about a week or so, then when you see improvements go one every two days for a couple months if needed.

Is stays in your gut for about 18-24 hrs I read.

Honestly I tried everything out there and DL was by far the best. I'm guessing its works a good 90% of the time.

The GERD forum here just about banned me when I post this there several times, as the mods there are wack jobs who only believe in Rx medicine. People who tried it PM'ed with thanks.

That said, Id also take it easy on acid foods, coffee and sugar and glutan for now (you should be doing that anyway if your guts a mess with lyme.)

White oral? - you might have Candida with the GERD, I had both at the same time.

LPR at night sucks, I almost drowned myself in gut acid several times.
Posted 6/6/2018 1:36 AM (GMT 0)
Are you taking antibiotics? I had terrible LPR from antibiotics.
Posted 6/6/2018 7:11 AM (GMT 0)
Thank you all! Nope, no antibiotics. My LPR started after a 10 minute choking/coughing fit.
This is what i take/eat everyday. Should i add/omit anything?
Taking 2x/day:
(~1 tsp each) Cats Claw, Japanese Knotweed, Andrographis, Houttunia.
Swish in mouth with Coconut oil once in AM
Pills 2x/day: Mimosa Pudica, 'Diet Detox' pill,  Oil of Oregano, 
Supplements 1x/day at night:
D3, C, Iron, Niacin, E, Lions Mane, Calcium, Potassium, Collagen, Fish oil, "multivit/mineral 50+"

Diet:
Salmon, Bass
Broccoli
Cauliflower
Yam
Lettuce
Spinach leaves
Kale leaves
Blueberries
Pumpkin seeds
Avacado oil dressing
Garden of Life Organic Meal
Shredded Coconut
Avacado
Granny smith apple
Almond butter
Green tea
Almond milk
Water
Posted 6/6/2018 11:47 AM (GMT 0)
I have LPR too. I tried many things to control it. it has been getting better but not gone, its like 80% better. when it was at its worse, i had the typical lump sensation in my throat.

I have made mostly environmental changes like not eating before bed, not taking any pills then laying down, raising the headboard of my bed by 8 inches. when it was at its worse, i slept elevalated in a recliner chair (lazy boy.) I take d-limenine too, that only gets it so far. its been better but not gone.

i have tried prilosec for two months on the onset of reflux, it did nothing. i did a strict acid-trigger diet for many months, no tomatos, spicy food, etc that didn't matter or help either.

i had larynxcopy procedure by my ENT, and endoscopy by GI doc. i have mild hiatal hernia in my esophagus. i am going to see if my environmental changes help to heal it.
Posted 6/6/2018 1:52 PM (GMT 0)
SierraDon i am in the same boat as you, had endoscopy, tried ppi's, omeprazole, nexium, etc, all they did was screw up my gut. Do you have vocal cord paralysis? I do. Food, pills and water want to go down the wrong way. With this LPR, i have to talk like mickey mouse or it hurts like hell. Its a catch-22, the manuka honey lozenges make my throat feel better, but they have cane sugar and rice syrup in them.
Posted 6/6/2018 3:59 PM (GMT 0)
Hi Serfr,

I used to have acid reflux but that changed when I started drinking barley grass with water daily. I also gave up coffee at the same time and it worked very well for me. Just a thought.
Posted 6/6/2018 5:07 PM (GMT 0)
Thank you Aurora, i will try it.
Posted 6/6/2018 7:00 PM (GMT 0)
Sefr, i didn't have the vocal cord analysis. when it was at its worse, i couldn't talk for about a week, it was too painful. this happened twice if i remembered correctly, before it settled down.

it seems largely improved for me now, it took a lot of trial and error to see what will work. i didn't try the manuka honey lozenges. its not gone completely, but say 75-80% better.

i thought some of the throat problems for me were from candida or bartonella. i had some mild case of thrush. since then i have been doing coconut oil pulling and rinsing with salt water. but i think the biggest help was the elevating the bed, and when it was really bad i slept in the recliner for a few weeks to keep my head elevated.

i may speak to the surgeon to see about correcting the hiatal hernia. though i want to give it a bit more time to see if i can manage it myself.

funny, i never had any reflux ever, not until infected with TBD. I think the reflux started about a year after getting infected. I think its probably bartonella, or candida or maybe lyme.
Posted 6/6/2018 7:57 PM (GMT 0)
I also never had reflux - or any throat issues prior to having TBD

I also think mine is bart related.

I did have a sensation of lump in my throat early on, but the reflux didn’t happen until maybe 6 to 9 months later.
Posted 6/18/2018 6:37 PM (GMT 0)
I saw an ENT today for my throat pain from acid reflux. On the form to fill out before he saw me, there was no category for Lyme disease, so I made one and put an X in it. He looked at my throat, checked ears etc. He wanted to stick a scope down my throat but I refused, I told him I already had it done 5 years ago, but he wanted to do it again. He asked me if I took prevacid, nexium, etc. I told him I took all that for months, all it did was mess up my gut. He told me to come back if I want the scope. I told him I already know what it is, vocal cord paralysis from Lyme, and my valves holding stomach acid back are stuck open. I know theres no cure, only treatment anyway. I'm taking D-Limonene, and a bunch of other herbs. I just thought he might know some new treatment or something. He said to take tums.
Posted 6/19/2018 5:26 PM (GMT 0)
I had silent reflux symptoms really bad 3 years ago. Had EGD with bravo and they said all normal. I took Nexium and Zantac for about 6 months then weaned off.

I've had periodic flares of it. I think mine is related to bartonella. I'm having a flare with all sorts of symptoms right now.

I'm on my 2nd bottle of D-limonene and 3 or 4 times in the last week, I refluxed it and it burned. For a few weeks now, I've had terrible dry mouth, especially at night. Last night was really bad and I refluxed the D-limonene before bed last night. This morning, my whole mouth felt sore and raw and my tongue has patches of rough spots like it's been burnt. I didn't even realize reflux was most likely causing the awful dry mouth until this morning.

Guess it's time to sleep sitting up again until it passes.
Posted 6/19/2018 5:36 PM (GMT 0)
Does reflux feels like a chest pain? I have pain in my throat and upper chest on the left side. But it hurts on the back of the body, not in front. Is that reflux? I still have a feeling of something stuck in my throat.
Posted 6/19/2018 5:57 PM (GMT 0)
Confused2910, yes, reflux feels like chest pain. The pain can radiate to the front or back, even onto the shoulders. When I suffer from acid reflux, I take a sip of water and within seconds I can feel the acid pain diminish a little. That's how I know it is acid reflux and not a heart attack. It sounds silly (heart attack), but when you suddenly feel chest pains, your left shoulder begins to hurt and you feel out of breath, I immediately panic and think "heartburn or heart attack"? Thank goodness that so far it has always been heartburn. I also try to listen for gurgling, stomach noises or bloating, which often accompanies the acid reflux.

When I first experienced acid reflux, it was so bad that when I bent down, the acid would come up to my throat and even up my nose. Nasty stuff. At night, it would get on my gums and teeth and even in the passageway between the ears and nose. My doctor put me on PPIs, which made things worse and it was hell getting off of them.

It eventually got better as I treated Lyme and Co. I still experience it when I eat trigger foods such as tomatoes or spicy foods but it is tolerable.

Early in the infection, I went to the ER a few times thinking it was a heart attack. Actually, I was SURE that it was a heart attack. Glad that I was wrong.

If D-Limonene doesn't work for you, try DGL. It works really well for some people, and the german chocolate flavored tastes great.
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